Dystonia Medical Research Foundation (@dmrf) header
Dystonia Medical Research Foundation (@dmrf) profile picture

Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.

Chicago
Joined December 2008
Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)Photo by Dystonia Medical Research Foundation (@dmrf)
The DMRF Legacy Society recognizes those who have made a lifetime commitment to the mission of promoting awareness, education, advocacy and research of dystonia. Make a commitment of support today that is fulfilled in the future. bit.ly/489FiWN #dystonia #dmrf
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There are many ways to offer support within the dystonia community. Visit the DMRF website at dystonia-foundation.org to learn more about online, virtual, and in-person support groups where you can make meaningful connections. #dystonia #dmrf #dystoniafoundation
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Be self-care aware! Give yourself permission to take a break when life with dystonia feels overwhelming. #dystonia #dmrf #dystoniafoundation
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It’s not too late to register and join us in the Hanson Cabin at the Beardsley Zoo in Bridgeport on Nov. 1 for Connecticut Dystonia Zoo Day. Check-in and registration begin at 9:30 am, with the program starting at 10:30 am. bit.ly/3qDcN1W #dystonia #dmrf
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Visit the Find a Doctor on the new DMRF website, with additional search fields to help you find a movement disorder specialist near you. dystonia-foundation.org/ #dystonia #dmrf #dystoniafoundation
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Brain donors are making a difference by providing researchers with invaluable brain tissue for study. This priceless gift allows researchers to study actual tissue which is key to learning more and brings us closer to finding a cure. bit.ly/4z04o6g #dystonia #dmrf
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Having dystonia can be a stressful experience. The DMRF offers support groups and educational materials to let people with dystonia know that they are not alone. #dystonia #dmrf #dystoniafoundation
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Relaxation techniques are important ways to take care of yourself, especially with chronic conditions like dystonia. #dystonia #dmrf #dystoniafoundation
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Visit the new DMRF website: Virtual and in-person events are listed chronologically with additional information. It is also easier to toggle between DMRF events and individual fundraisers. dystonia-foundation.org/ #dystonia #dmrf #dystoniafoundation
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Sharing our lived experiences can be very powerful. Offer support to others in the dystonia community by holding space for their story. #dystonia #dmrf #dystoniafoundation
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Living with dystonia presents daily challenges. Don’t be afraid to take some time out to take care of yourself. #dystonia #dmrf #dystoniafoundation
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Visit the new online calendar on the DMRF website, with listings of support group meetings and featured events such as Dystonia Zoo Days and webinars. dystonia-foundation.org/ #dystonia #dmrf #dystoniafoundation
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Did you know that you don't have to live in a particular geographic area to join a virtual support group? If you see a meeting on the website calendar that you'd like to attend, reach out to the group leaders for more details. dystonia-foundation.org/supp… #dystonia #dmrf
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Oct. 10 is #WorldMentalHealthDay. The theme is "Lived experiences heard: real voices, real change." Members of the dystonia community have a lived experience of a rare neurological disorder. Resources related to dystonia are on the DMRF website: bit.ly/4zcS56x #dystonia
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Join us at the Connecticut Dystonia Zoo Day on Nov. 1. Zoo Day is a meaningful way to come together and remind each other that no one has to face dystonia alone. Register by the Oct. 14 t-shirt deadline: bit.ly/3qDcN1W #dystonia #dmrf #dystoniafoundation
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Stay in the know about what is happening with research, advocacy, education and other resources in the dystonia community with the DMRF monthly e-newsletter. The October e-news is now available: conta.cc/4dJATNy #dystonia #dmrf #dystoniafoundation
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Thank you to everyone who participated in the Boston Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here: bit.ly/4y3s6NP #dystonia #dmrf
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Thank you to everyone who participated in the Rochester Dystonia Zoo Day. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here: bit.ly/4y3s6NP #dystonia #dmrf
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Visit the Resource Library on the new DMRF website, with informative content searchable by topic, type of dystonia, articles, brochures/fact sheets, videos and webinars. dystonia-foundation.org/ #dystonia #dmrf #dystoniafoundation
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Dystonia Awareness Month may be over, but you can keep the spirit of Virtual YOU Day alive throughout the year by building community and offering support to others who have been impacted by dystonia. #dystonia #dmrf #dystoniafoundation
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