I AM ALS

We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress

November is National Family Caregivers Month! 💜 Over 63 million family caregivers in the U.S. provide care daily. In ALS, that care grows more demanding, and no one should do it alone. Find support: bit.ly/Care-26 (case-sensitive) Source: Caregiver Action Network

“Nothing could have prepared us for such a tough duty. We thank Eric Dane and I AM ALS for their dedication to finding a cure one day for this disease.” —Galileo | caring for someone living with ALS Read his story: bit.ly/NCMGalileo (case-sensitive)

Happy Halloween, community! 🎃 👻 What's your favorite thing about spooky season? Tell us in the comments 👇

REMINDER—Flag submissions are open for 2027! The deadline isn’t until March 1, 2027, but don’t wait. Our volunteers will be preparing your flags all year long. Request your flag today → bit.ly/flags-27 (case-sensitive)

Linda Buhr sent this video message to her Congressmember last year. Tomorrow is never guaranteed in ALS. But she told her lawmaker she was going to dance with her son at his wedding. Last weekend, 17 months later, she made it happen. 💙 Congratulations to the Buhr family!

Scott’s life was about so much more than the disease he battled. He was a hard-working mechanic, a talented woodworker, a dog lover, and a funny, loving uncle. I will always remember his unwavering belief that he could beat ALS. —Joe | a family member of someone we've lost to ALS

This Sunday, Kellie, Will, Jenny, and Howie become the first EVER to run the @nycmarathon for I AM ALS 🎉 They've raised $125K+, beating their goal by over $50K. Every dollar unlocks more federal funding for ALS research. Cheer them on below ↓

Federal Agency Community Team (FACT) member Raphael presented at the @FDA’s Rare Disease Framework Hybrid Public Meeting to help speed up the pathway to cures. Join him and other like-minded individuals on the I AM ALS FACT team: bit.ly/join-FACT #ALS

November is National Family Caregivers Month. ALS caregivers carry so much, but they don't have to carry it alone. Join our free virtual Caregiver Conversations: Nov. 4, 8 p.m. ET: bit.ly/NCM-1 Nov. 18, 8 p.m. ET: bit.ly/NCM-2 (Links are case sensitive.)

I AM ALS Peer Mentors are trained community members impacted by ALS themselves. Every ALS journey is different. Apply to get matched, and our ALS Support Team finds you a mentor who understands YOUR experience and can help you navigate it. Sign up today: bit.ly/ALSpeers

“That is why I remain so hopeful…ALS is relentless, but we continue to prove so are we.”—Troy Fields | I AM ALS Legislative Affairs Team Co-chair, living with ALS Thank your lawmakers for reauthorizing ACT for ALS! 🔗: bit.ly/A4A-TY

🚨 ACT for ALS UPDATE 🚨 The president has about 10 days (minus Sundays and holidays, etc.) to sign the ACT for ALS, or it becomes law automatically. This happened because of YOUR actions! While we wait, thank your legislators: bit.ly/A4A-TY

There is no cure for ALS, but multidisciplinary clinics have been shown to extend survival and improve quality of life. The ALS Better Care Act would strengthen them with better Medicare reimbursement and speed up ALS clinical trials. Tell Congress: bit.ly/ALSbettercare

Joining an I AM ALS community team is a great way to build friendships, make an impact, and help end ALS. Work with a favorite sports team, meet a legislator, advocate for accessible clinical trials. SO many ways to make a difference. Find a team: bit.ly/vol4ALS

Want to help us pass more critical ALS legislation? Become a Consented Constituent today! It's low-commitment and low-effort. With just 2 minutes of your time, you can help move the needle for ALS! Join the movement: bit.ly/ALSconstituents

ALS can be overwhelming and isolating. At I AM ALS, you can find community and the support you need. Our Peer Support Program offers helpful info, resources, and a listening ear, plus check-ins to make sure you’re cared for. Request ALS Support today: bit.ly/peerintake

Caregivers! November is National Family Caregivers Month, and we're centering YOUR experiences. Join us for two caregiver-led conversations: Nov 4, 8 PM ET | Getting Started: bit.ly/NCM-1 Nov 18, 8 PM ET | Navigating the Journey: bit.ly/NCM-2

I AM ALS CEO Andrea Goodman on the historic news of renewing ACT for ALS, with 5 more years of impact. Thank your legislators for making this possible: bit.ly/A4A-TY (case-sensitive) Thank you @fox5dc for covering this powerful story!

“ALS is what I have, not who I am.” — Neil | living with ALS ACT for ALS offers hope and an accelerated path to finding cures for thousands of people like Neil. Thank your lawmakers for passing it → bit.ly/A4A-TY

Our stories are the foundation of everything we've achieved together. When we share them, we give ALS a human face and send a message no one can ignore: we need a cure NOW. Help us end ALS. Share your ALS story today: bit.ly/story-26