A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://xitter.cf/t.co/JhhNZoFYJi

Global
Joined May 2014
MEAction is launching its largest #MillionsMissing campaign yet – “Pace to the Capitol!” For the next 7 months, MEAction is bringing ME out of the shadows and into public places across America as we pace to the U.S. Capitol! meaction.net/pace-to-the-cap… youtube.com/shorts/yrA7DgC6y…
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Applications for the NextGen IACC Scholars Program (a funded research training and mentorship opportunity for graduate students at Canadian universities) are due by November 16, 2026, at 11:59 p.m. ET. meaction.net/scholars-progra… We have an amazing set of mentors at the ready!
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#MEAction Network retweeted
1/3 🌟 #PoTSAwarenessDay 🌟 potsuk.org Please view our new ✨What is PoTS✨ leaflet in the image thread below. To download the leaflet: potsuk.org/wp-content/upload… Please also watch our popular 4 minute 'What is PoTS' video in the thread below and via this link: youtube.com/watch?v=XoKmJA-o… GP guide: potsuk.org/wp-content/upload… Share to raise awareness 💜 #MedTwitter #MECFS #EDS #TeamGP #MCAS #PoTS #Disability #LongCOVID #Dysautonomia #InvisibleIllness @DrSdeG @LC_Physio
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It's #MedicaidMonday! Today, we are sharing our policy platform. We did our best to keep it simple (as simple as we can make something that was created to be intentionally complicated!). Check out our policy recommendations for states: meaction.net/post/medicaid-c… #Medicaid
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Happy Halloween! Are you into the spooky season? We know it can be hard to join in when living with ME or when a lot of your time is spent as a caregiver, but we have some good options for you. Thanks to Orion, CoRy, and Steven! meaction.net/post/halloween-… #Halloween #Spoonie
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Join us for a roundtable of caregivers discussion facilitated by Denise Lopez- Majano in honor of National Family Caregiver Month that will be held on Nov. 1 at 3 pm ET: “Things We Caregivers Wish We Had Known.” meaction.net/event-details/t… #Caregiver #FamilyCaregiver #pwME #carer
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Join our Pace to the Capitol! We can’t Race, but we can Pace. Register today to help change policy, culture and research funding for ME and Long COVID. meaction.net/pace-to-the-cap… Our most ambitious #MIllionsMissing yet! #pwME #PaceToTheCapitol #pwLC #MEawarenessHour
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#MEAction Network retweeted
🍁 Happy Fall & Halloween 🎃 Y’all! @MEActNet NC State Chapter Support Group is upon us. Wed, OCT 21, 12:30 pm ET US. Join us now for open, paced conversation on highs &lows of living with or with someone with ME/CFS or Long Covid. Next post in 🧵has link to join info.
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Two weeks until election day! Have you voted or made your plan to vote? In September, MEAction participated in the non-partisan Disability Voting Rights Week to help our community be prepared to vote. Check out these resources: ow.ly/rzE450ZZt6B #pwME #Vote #CripTheVote
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Our campaign will culminate with a powerful display at the U.S. Capitol on May 12. This campaign is about so much more than just beds. MEAction is working on a number of UNPRECEDENTED opportunities this year & we are using our Pace to the Capitol campaign to make ME VERY VISIBLE.
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And, we need YOU – our community and allies – to show up from your beds, in your communities and in D.C. to make our months-long campaign a success! Register now: meaction.net/pace-to-the-cap… #PaceToTheCapitol #MyalgicEncephalomyelitis #MECFS #LongCovid
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You are invited to the MEAction Artist Salon on Nov. 22nd at 3 pm ET. meaction.net/event-details/m… The salon is a creative, virtual gathering where everyone in our community is invited to attend live and share their art with the wider community. All types of artwork are welcome!
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#MEAction Network retweeted
The CDC's proposed 2028 survey could leave millions of people with ME/CFS and Long Covid uncounted. Solve is speaking up. You can, too. Submit your comments by October 19! Check out the link below for details: solvecfs.org/cdc-me-cfs-long… #MECFS #CDC #HealthAdvocacy #LongCovid
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RECOVER-TLC’s 3rd annual workshop is coming up this November 4-5, 2026. Registration is open. A draft agenda has just been shared. In-person and online attendance options. All the info you need can be found here: web.cvent.com/event/e0be4010… #pwME #LongCovid #NIH
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Caregiver volunteer Denise Lopez-Majano wants to help spread kindness - 70 acts of kindness by her 70th bday on Dec. 7! The 1st act she suggests is to be kind to yourself! Please share if you committed an act of kindness in comments beneath article! meaction.net/post/70-acts-of…
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1/4. Annual Mtg - this weekend This Sunday! Please join us for our Annual Meeting "Being Seen", October 18 at 1pm ET   Full details and register here: massmecfs.org/events/annual-…
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Please join us on November 15th at 4 pm ET for a special talk with Kim Moy of Caregiver Wisdom - "Being on the Same Team: Strengthening Relationships Through Chronic Illness." It is for BOTH the #caregiver & the #pwME/ #pwLC/ etc. . meaction.net/event-details/b… #FamilyCaregiver
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Have you signed up for our Halloween art workshop yet? It will be October 29th at noon ET- all online & free to join! meaction.net/event-details/o… Orion Romero, a #pwME, educator, artist, & MEAction volunteer, will be hosting! Thank you, Orion! Join in & have fun! Register now!
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MEAction's next #caregiver support call is Oct. 17 at 1:30 pm ET. We welcome caregivers of people w/ chronic diseases such as #MyalgicEncephalomyelitis (ME), #LongCOVID, #MCAS, etc! To join the calls, please email [email protected] at we will get you set up!
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