MND Association

This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Despite huge strides in our understanding of MND in recent years, what causes the disease in most people remains one of the biggest unanswered questions. We’re determined to change this. If we can work out what causes the disease, we’ll have the best chance of working out how to prevent it. That’s why we’re joining forces with @MNDoddie5 to increase investment in research into the causes of MND. Read more here.🔗mndassociation.org/media/lat…

Bake it. Decorate it. Make a difference. 🧡 This Halloween, pick up a pack of Renshaw Tiger Orange Icing, sign up to Bake It at the link in our bio and get creative in the kitchen. For every pack sold, 10p is donated to the MND Association, helping to support people affected by MND. 🔗mndassociation.org/bakeit

Our Understanding My Needs form is now online, helping you record your care needs and preferences in one place and making it easier to share important information with everyone involved in your care. 🔗mndassociation.org/umn Our Care Information Manager, Kaye, explains why having this information organised and accessible can make such a difference for people living with MND.

Last night, the Kevin Sinfield documentary aired on BBC, "Thank You, Sir Kev", celebrating the incredible impact he’s had on the MND community through the money he’s raised and the awareness he’s brought to Motor Neurone Disease. He knows like we do, that the fight against MND doesn’t stop at the finish line. This is a behind the scenes look at our campaign, 'Life stripped Away'. It tells the stories of Jaki, Steve, Tahira and Lorraine, who are all living with MND, and who all generously shared their stories with us. They are a powerful reminder of why this work matters - and why there’s still so much more to do. Help us stop MND.

More than 200 health and social care professionals came together in Birmingham for Inspire 2026, the MND Association's annual networking event for members of the Community of Practice. Read more. 🔗 mndassociation.org/media/lat…

As the clocks go back, take an hour to think ahead. 🕒 We sat down with MND Connect Advisor Ellie to discuss preparing for winter with MND. From making sure prescriptions are up to date to planning for seasonal challenges, a little preparation now could help make the months ahead easier to manage. 🧡

Dancing, friends and family. These are the things that matter most to Lorraine. Meet the incredible people behind our national campaign. #Strictly

As we head into winter, it's worth checking the latest guidance on flu and COVID-19 vaccinations if you're affected by MND. Find out more. 🔗mndassociation.org/support-a…

Through their Swag Bags with Purpose campaign, @ScampandDude & @katelawler have raised over £8,000 for people affected by MND🧡 £10 from every Scamp & Dude X Kate Lawler bag supports our vital work. Thank you, Kate! Get yours: 🔗 scampanddude.com/products/sc…

At yesterday's meeting with the National Institute for Health and Care Excellence (NICE), Sean Davies, who has SOD1 MND, spoke about the difference tofersen has made to his life. As we wait for NICE’s interim decision on whether the treatment will be available on the NHS, Sean shares his thoughts on the day.

Today, we attended a National Institute for Health and Care Excellence (NICE) committee appraisal listening to the evidence for making tofersen available on the NHS people with SOD1 MND. Here, Professor Al-Chalabi, from @KingsCollegeLon gives us a recap of how the meeting went, and we'll keep you updated as things progress.

From LEGO® gene sequencers to eye gaze tech, how we inspired the next generation of MND researchers at New Scientist Live. 🔬 Read more🔗 mndassociation.org/media/lat…

Every day, we support people with motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

Tahira loved gardening with her grandchildren. But because of MND, now her hands can't grip a trowel. Help us stop it. Head to mndassoc.org/life-stripped-a…

Jaki is a born performer, taking to the boards as Nancy in Oliver! Now, MND has stripped away the things she loved - like performing. Help us stop it. Visit mndassoc.org/life-stripped-a… .

Before MND stripped away the things she loved, Jaki loved to sing. 🎶 Imagine losing the ability to do something that brings you joy. What's one thing you'd hate to no longer be able to do? #WorldSingingDay

Go Oscar go! 🧡👏 After being inspired by reading ‘Try’, the children's book written by Sir Kev, 7 year old Oscar set himself a challenge to raise money for MND: walking every day for 7 days! And that’s just the beginning - he plans to walk 77 miles before Christmas to continue to raise vital funds. We’re so proud to have you on the team Oscar, thank you for everything you are doing. 🧡 To donate to Oscar incredible challenge, click here. 🔗 fundraising.mndassociation.o…