Carole Sian

It's the final countdown! Just 6 days until The Festival of Genomics & Biodata kicks off in London 🎉 Come and see what we have planned for the long-awaited reunion of the #genomics and #biodata community:  hubs.la/Q03ZD7130 #FOG2026

And the mystery speaker is... Stephen Fry! We’re thrilled to announce this latest addition to The Festival of Genomics and Biodata agenda. Stephen will take part in a Fireside Chat with Vivienne Parry. Find out more on our website: hubs.la/Q03Yg5WX0 #FOG2026

🟣 This time next week I'll be heading back off to London 😁 ( Yes! With her stripy holiness, Zoella, as its rare disease day next week) Every year for a number of years I've participated at this event as a speaker. Each time has been a little different to the time before. 🔶️ However, the messages I take are always in keeping with our aims and dreams for holistic healthcare for complex health patients. 🔸️Multidisciplinary and multistakeholder approaches to all things healthcare. 🔸️Promoting that 'collaborative approach' to embracing all our health conditions as one instead of one at a time! 🔶️ Better patient engagement practices within industry, drug development and clinical research/ trials. 🔸️ Engaging with patients as early as possible and listening properly to what they want and need. Hoping that our needs are not taken out of context or twisted to suit what industry decides it wants. 🔷️ This year, I'm presenting a set of personal patient experiences and expressing the fact that it's never just one patient journey, but several. 🔹️The real-life view of the logistics it takes to go through diagnosis, treatment and healthcare management, appointments, locations, people, ongoing tests and reviews, aftercare, etc, until treatment finishes. 🔹️If it finishes! #patientvoice #patientexperience #patientjourney #Collaboration #treatmentpathways #complexhealth #diseasemanagement #carepathways #healthsystems #healthcare #wellbeing #chronicillness #cancercare #multistakeholder #holistichealthcare #pharma #clinical #medical #personalisedhealthcare #precisionmedicine #immunotherapy #shareddecisionmaking #informedconsent