1/5 Happy 7th 🌟#PoTSAwarenessDay🌟 Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition. #PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about. Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position. The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse. If you are new here please take the time to view the image thread below to learn some basics about PoTS: 🟣 Symptoms 🟣 Tests/Investigations/Diagnosis 🟣 Treatment- lifestyle changes & medication View our website to learn more about symptoms: potsuk.org/about-pots/sympto… #MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation

✨ 31 days of PoTS ✨ DAY 28- MY GOAL Living with #PoTS doesn’t mean giving up on your goals. What are you working towards? It could be: ▪ A big life goal ▪ Returning to a hobby ▪ Going somewhere new ▪ Getting through an upcoming challenge ▪ Simply having a better day Big or small, tell us about your goal. Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

PoTS UK were privileged to attend the very first masterclass of the new British Autonomic Society! britishautonomicsociety.co.u… Pictured from left to right at the table: Chair of PoTS UK, Dr Lesley Kavi, Dr. Valeria Iodice, Dr. Boon Lim, and Dr. Helen Eftekhari. All four were speakers yesterday, with Dr. Valeria Iodice leading as President of the British Autonomic Society. It was a fascinating day covering clinical services, new research, and the vital role of patient support organisations. #BritishAutonomicSociety #PoTSResearch #AutonomicConditions #PoTS

💜 A huge thank you to Covesea Lighthouse! 💜 Following storm damage to their lighting, we’re delighted to hear that the issue has now been fixed and that Covesea Lighthouse will remain illuminated in purple to support #PoTSAwarenessMonth until and including 31st October! 💜 We’re so grateful to everyone at Covesea Lighthouse & Royal Navy and Royal Air Force Heritage Centre for their support and commitment to raising awareness of #PoTS. facebook.com/LossieLighthous… Fancy a visit? If you’re local and would like to see the lighthouse illuminated in purple, we’d love to see your photos! Please email your photos to [email protected] to help spread awareness. Every light-up helps shine a spotlight on a condition that is often misunderstood and invisible to others. Thank you for helping us make PoTS visible! #PoTSAwarenessDay #LightUpForPoTS #RaisingAwarenessOfPoTS

💜 PoTS AWARENESS MONTH: FINAL WEEK! 💜 We’re heading into the final week of #PoTSAwarenessMonth, and there’s still plenty happening! From online peer support groups to yoga, relaxation sessions and our final volunteer-led webinar, there are lots of opportunities to connect, learn and feel supported. ONLINE PEER SUPPORT GROUPS 📆 Tuesday 27 October, 7pm Online Peer Support Group, open to all over 18 📆 Wednesday 28 October, 7pm Newly Diagnosed/Awaiting Diagnosis Group 2 🔗 Find out more and register: potsuk.org/pots-uk-online-pe… 🧘 FINAL BREATHWORK SESSION Join Victoria for the final session of her 4-Week Journey to Reconnect with Your Nervous System. 📆 Wednesday 28 October, 8.30am 🔗 Register here: us02web.zoom.us/.../reg.../W… 🧘‍♀️ FINAL WEEK OF PoTS YOGA There’s still time to join Laurie from LEMon Yoga for the final week of our Awareness Month yoga sessions! Join the Facebook group here: facebook.com/groups/25155568… 💻 OUR FINAL VOLUNTEER-LED WEBINAR Finish the month by joining us for PoTS and Friends and Family, exploring the experiences of those who support someone living with PoTS. 📆 Saturday 31 October, 1pm 🔗 Register here: us02web.zoom.us/.../reg.../W… We hope you’ll join us for as many activities as you can! Let’s make this final week count, finish PoTS Awareness Month on a high, and keep raising awareness and understanding of #PoTS. Thank you to everyone who has taken part, shared their stories and supported us throughout the month. Together, we can make a difference! #PoTSAwarenessDay #PoTSYoga #PoTSPeerSupport #PoTSWebinar

✨ 31 days of PoTS ✨ DAY 27- HOW YOU CAN HELP What’s one simple thing other people can do to support someone with #PoTS? Think: ▪ Friends ▪ Family ▪ Employers ▪ Teachers ▪ Colleagues ▪ Healthcare professionals What small change can make a big difference? Share your answer and help others understand how they can support people with PoTS. Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

✨ 31 days of PoTS ✨ DAY 26- MY FAVOURITE PoTS RESOURCE What’s helped you understand or manage #PoTS? Share a resource that’s made a difference to you. It could be: ▪ A PoTS UK resource ▪ Webinar ▪ Leaflet ▪ Support group ▪ Video ▪ Book ▪ Another trusted source of information What would you recommend to someone looking for reliable PoTS information? Tag @UKPoTS and use #PoTSAwarenessMonth #LifeWithPoTS

Thank you to @O2GuildhallS Southampton for lighting up tonight, raising awareness of #PoTS on this #PoTSAwarenessDay! 🫶💜 Please learn more here: potsuk.org #LightUpForPoTS

Thank you @MbroCouncil for lighting up this evening for #PoTSAwarenessDay! 🫶💜 #PoTS potsuk.org

Thank you to @ParadiseBham for lighting up in purple this evening for #PoTSAwarenessDay 🫶💜 #PoTS potsuk.org