National Alopecia Areata Foundation (@NAAF_org) header
National Alopecia Areata Foundation (@NAAF_org) profile picture

NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those impacted, and educates the public about the disease.

Novato, CA
Joined March 2009
For a lot of people living with alopecia areata, the diagnosis isn't the hardest part. It's watching your sense of self shatter - in the mirror, in relationships, at school, at work. Beyond the Mirror exists to make that visible. naaf.org/beyond-the-mirror #MoreThanHairLoss
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NAAF support groups provide a welcoming environment where individuals, families, and friends can connect, share, and support one another. Check out this month’s meeting dates. We hope to see you there. 💙 Learn more and find a support group near you at naaf.org/support-groups
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✨ ICYMI: Our October eNews is here! 🪞 Beyond the Mirror Campaign Launch 📣 Recruiting 2027 Teen Advocacy Fellows 🗨️ Annual Conference: Call for Presentations & Registration 🎥 Webinar Series ⚖️ Wigs for Warriors Act 🧪 Clinical Trial ➡️ Read more: ow.ly/3KxO5102tLu
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Join our next You Are Not Alone Webinar! 💙 Hear from Maria Hordinsky, MD, Angela Christiano, PhD, and Javed Shaik, PhD, as they explore emerging research on the connection between the gut microbiome and alopecia areata. 👉 Register: ow.ly/iHFK5100XU7
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Growing up is about discovering who you are. For Liam, living with alopecia areata adds challenges that go far beyond hair loss. As part of our #BeyondTheMirror campaign, Liam shared his story to help reveal the unseen impact of this autoimmune disease. #MoreThanHairLoss
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If you have alopecia areata, you already know you're not alone. Nearly 7M in the U.S. have it, or will develop it. More than 80% show signs before age 40 — 40% by age 20. naaf.org/beyond-the-mirror Share your story #MoreThanHairLoss
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Alopecia Areata Awareness Month may be over, but there is still so much to celebrate! From treatment guidance advancements and expanded options for young people to a record-breaking Walk For Alopecia, we are grateful for the community driving progress. Thank you. 💙
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📣 📣 NAAF is accepting presentation proposals for our 42nd Annual Conference, June 24–27, 2027, in Anaheim, CA! We’re seeking engaging sessions that reflect the diverse experiences of the alopecia areata community. 📅 Deadline: Dec. 4 👉 naaf.org/call-for-presentati…
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What others see is hair loss. What they don't know: it's your immune system attacking your body. Today, we launched Beyond the Mirror because alopecia areata is more than what you see. About 1 in 50 people globally are affected. Visit naaf.org/beyond-the-mirror #MoreThanHairLoss
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Want to stay up to date on alopecia areata clinical trials? NAAF's new Clinical Trials Newsletter delivers the latest information about recruiting studies, emerging research, and opportunities to participate. Sign up today: naaf.org/clinical-trial-info…
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✨ Teens: Your alopecia areata story has the power to improve lives! Become a NAAF Teen Advocacy Fellow to 👉 Learn about advocacy 👉 Develop your story 👉 Meet with lawmakers Apply by Oct. 31 or share with a teen who wants to make their voice heard! 💙 naaf.org/teenadvocacy
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Join us for our next You Are Not Alone Webinar with Dr. Victoria Barbosa on navigating alopecia areata in skin of color, one of our most requested topics at the Annual NAAF Conference, two years in a row. 👉 Register today for this free webinar: ow.ly/l9bQ50ZUWW9
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Whether you're living with alopecia areata or you're the parent of a child with the disease, we'd love to hear from you. Join our Lived Experience Network to help ensure the voices of our community are heard! naaf.org/lived-experience-ne…
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We’re grateful to our partners at @PeDRAResearch and NAAF research grant awardee Dr. Netravali for continuing important conversations about pediatric alopecia areata. We encourage our community, and the healthcare professionals who care for them, to give it a listen!
🎙️ New Episode: Ilka Netravali, MD, discusses insights from the @NAAF_org annual conference. The conversation highlights a central message: meaningful care means treating the child and family, not just the #alopecia. 🎧 Listen now: pedraresearch.org/resources/… #PeDRA #pedraresearch
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✨ ICYMI: As #AAAM wraps up, catch up with NAAF’s September eNews! ☀️ Walk For Alopecia,💊 FDA Expands Approval of Olumiant, 🎥 Webinar Series, 🔑JAK Inhibitors Access, 🩺 Open Enrollment, 🗨️ Conference Proposals, 💙 Employer Match ➡️ Read more: ow.ly/Eeqq50ZT50I
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Thank you @jinix_io for attending the 4th Annual Walk For Alopecia and helping us bring awareness to the community. 💙
Thank you to @NAAF_org for bringing patients and families together at Walk for Alopecia in San Francisco. 💙 At JinIX, we believe the future is Patient + AI + Doctor—helping patients understand their health and find answers. #JinIX #AlopeciaAreata #AIhealth
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NAAF is proud to partner with @snapbacksports in honor of Snapback Sports Founder & CEO Jack Settleman, who was diagnosed with alopecia areata at 14. For every Snapback Sports hat sold between now and December 31, 2026, Snapback Sports will donate $5 to NAAF.
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