NDSS is creating a world where individuals with Down syndrome thrive.
Washington, D.C.
Joined May 2010
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“We have a player on our team who has a relative with a developmental disability," Castleberry said. "When I finished talking he spoke up and said, 'Hey coach, make my patch the biggest.'" 💙🏀 @FDUKnightsMBB
sports.yahoo.com/articles/fd…
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We're so excited to partner with @FDUKnightsMBB on a jersey patch this season! 🏀💛💙 Go Knights!
@FDUKnightsMBB and head coach Jack Castleberry are excited to announce a jersey patch partnership with the National Down Syndrome Society.
Learn more about @NDSS and Jack’s daughter, Avery, by following along all season long.
#uKNIGHTED | @NDSS
We're thrilled to announce that NDSS is an official charity partner of the Sanlam Cape Town Marathon, the 8th Abbott World Marathon Major and the first Major ever in Africa!🥇 Find race details and apply to run with #TeamNDSS at ndss.org/cape-town-marathon
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CARE Down Syndrome is now featured on @AMAEdHub, the American Medical Association’s online learning platform.
When receiving a Down syndrome diagnosis, 61% of parents reported experiencing negative bias about Down syndrome from medical providers, while fewer than 40% said they received accurate, current, and balanced information from their doctor.
We attended the In Motion, In Community: Wellness for People with IDD/A and their Supporters! With support from the @eaglesautism Community Grant Award, the @TJUHospital FAB Center for Complex Care launched their wellness initiative & gave each attendee an NDSS 321go! Fitness Kit
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The deadline to submit a photo for the 2026 NDSS Times Square Video Presentation is June 4! Submit at pci.jotform.com/form/2601944…
On Tuesday, June 2 at 10 AM ET, NDSS is hosting a meeting with the U.S. Food and Drug Administration (FDA) to discuss Down syndrome-associated Alzheimer's disease (DS-AD). Get meeting details and learn how you can make an impact during this meeting at ndss.org/el-pfdd
NDSS is honored to support self-advocates with Down syndrome in pursuing their goals, whether it’s starting a business, continuing education, or following a personal passion. 🚨 Apply by Friday, May 22 at ndss.org/scholarships.
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We are proud to announce that NDSS will honor Congresswoman @EleanorNorton with the NDSS Lifetime Impact Award on May 13 following our Down Syndrome Advocacy Conference! We are grateful for her years of service advocating for the Down syndrome and broader disability community.
Let’s learn from the lived experiences of people with Down syndrome and work to create a more inclusive, equitable, and respectful world. 💙💛
Click the link below to use our action alert to urge your members of Congress to pass the Words Matter Act and the Words Matter for D.C. Courts Acts. #JustEvolve
ndss.quorum.us/campaign/1574…
Happy #WorldAutismMonth! On April 15 at 1:00 PM ET, NDSS is hosting a 𝗳𝗿𝗲𝗲 webinar, Navigating an Autism Diagnosis and Services. Sign up at us02web.zoom.us/webinar/regi…
March is National Nutrition Awareness Month! 🥗 It's a time to recognize the powerful role food plays in our overall health and well-being, now and in the future. Visit ndss.org/resources/nutrition for our Nutrition & Down Syndrome webpage.
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We want to extend a big thank you to @voya for being a proud sponsor of this year's NDSS Gala & Auction! 🙌 Your support helped make an incredible evening possible, and we are grateful for your continued partnership and commitment to the Down syndrome community. 🧡
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This #WorldDownSyndromeDay, let’s commit to leaving disability-related insults in the past. #JustEvolve @coordown 💛💙
Happy #WorldDownSyndromeDay from NDSS! Whether you're #RacingFor321, wearing eye-catching socks, or honoring the day in your own way, we're glad you're part of our community! Give at ndss.org/donate to help us create a world where individuals with Down syndrome thrive.
There's still time to celebrate NDSS' 40th Gala & Auction in person and from afar!💃 Get your tickets to join us in person by Monday, March 9 and place your bids on our incredible online auction items by the evening of March 12!🎫 ndss.org/gala
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Today is #InternationalWomensDay! NDSS' free resource, the Primary Care Provider’s Guide to Women’s Health and Down Syndrome, is intended to educate PCPs about the nuanced healthcare needs of women with Down syndrome. Download the guide for free at ndss.org/resources/download-…
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NDSS is committed to advancing policies that protect individuals with Down syndrome and other disabilities from discrimination in the organ transplant system. Learn more about Charlotte’s bill and organ transplant discrimination prevention at ndss.org/news/ndss-statement…
