I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth
Singapore
Joined November 2015
- Tweets81.3K
- Following14.5K
- Followers18.5K
- Likes366K
Pinned Tweet
Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 buff.ly/TKHRkRo
#ChronicIllness #disability
ALT About "A Chronic Voice" — Articulating Lifelong Illness Through Various Perspectives. www. a chronic voice .com
“Severe, life-threatening reactions from a condition called #MastCellActivationSyndrome. I have reactions to perfumes, colognes, strong laundry detergents, smoke, chemical cleaners, airborne foods & more – @hospitalprncss ”: buff.ly/5eIbHSY #ChronicIllness #MCAS #NEisVoid
ALT 33 Mini Interviews: Life in Permanent Lockdown with Chronic Illness | A Chronic Voice
"For personal #conversations, use #LiveCaptioning apps, text services & video-relay services. Perhaps the most #empowering step u can take is to learn a #SignLanguage – there are many online videos & dictionaries to help u": buff.ly/fuFA0rc via @psyche_the_mag #disability
"I was in a #health collapse, and #financial collapse as a result. Even if I wanted to engage a program or #treatment, all of it was beyond my means. Where I came from, it’s easy to get lost & nearly impossible to find the trailhead": buff.ly/3ZRLvHC #NEisVoid #healthcare
"I know quite a few #spoonies who have some pretty cool #WalkingCanes. You can do a search online for something that suits your style. Just don’t sacrifice stability and functionality": buff.ly/0qpdLHn
#ChronicPain #physiotherapy #surgery #KneeSurgery #mobility #disabled
ALT Physiotherapy Tools and Resources You Will Need After Major Knee Surgery
"#xylitol does occur naturally..But this particular #sugar alcohol usually appears in commercial products at levels 1,000 times higher than it would naturally be found in our bodies or in #fruits.": buff.ly/S4GH0mO via @discovermag
#ArtificialSweeteners #HealthyEating
"Many people may be able to learn more & empathise, but full #appreciation for what it’s like to live with prob isn’t fully possible unless you’ve been there yrslf in some capacity. Even then, the experience is unique": buff.ly/q1EnxjK by @invisiblymeblog #ChronicIllness
"in a #society that reinforces constant shifting of #attention ..the satisfaction of sustaining yr attention on 1 thing can contribute to the #experience being autotelic – that is, highly enjoyable & intrinsically #motivating.": buff.ly/owdOJey via @psyche_the_mag #mental
"For #physicians, understanding & managing #pain is 1 of the hardest parts of caring for #patients ..self-reported pain has a fragile foundation. 2 people can receive the same stimulus & give very different answers to their #PainLevel.": buff.ly/O2AEN3T via @psychtoday
"Language has occupied a central place in #brain #science since the discovery of #aphasia ..Yet scientists still disagree about exactly which areas support #language & how those areas divide diff #linguistic functions.": buff.ly/m1igyRV
#BrainHealth #psycholinguistics
"My original intention for this post was more of a show & tell session..But it turns out that we all mostly want the same thing no matter where we are in the world - some good old #PainRelief. Even for just a day.": buff.ly/gS3IlM6
#MondayBlogs #ChronicPain #wishlist
"Yr #morning..starts with info gathering. What hurts, what’s stiff, what kind of day yr body seems to be handing u..It’s a diff starting point & #routine advice that skips it isn’t wrong so much as it’s talking abt a diff kind of morning than the 1 u hv": buff.ly/N7LBnYB
"Societal norms typically dictate that #men should be strong and be viewed as providers..‘#Masculine’ traits such as leadership, #emotional detachment & financial #success have been drilled into us since we were little boys.": buff.ly/un25jsT #MensHealth #MondayBlogs
ALT Guest Post by: Stephen White. Men with Fibromyalgia — The stigma, barriers, and challenges faced as a young man in school and in society. Read on: A Chronic Voice .com.
"I name #spiders in my home. There have been a lot but I still remember Fierce Freda who lived in the corner of my bathroom for ages & kept all the summer flies away. Sadly she disappeared 1 day & I found her in a heap on the floor": buff.ly/xQrVaJC by @RaisieBay #spoonie
"It is a silly & #ViciousCycle, because it isn’t my #fault & beating myself up about it is only going to turn the #BadDay into a worse one. It also sets up the framework of how I will be approaching the rest of my day..": buff.ly/IrodPIx
#MondayBlogs #ChronicPain
ALT How to be a Positive Thinker: Without the Unicorns and Rainbows
"I usually try to pick loose-fitting #clothing like dresses, but my outfit choice depends on what type of #surgery I am having because what I wear after an #abdominal surgery may be different than what I’d wear after a #shunt surgery.": buff.ly/qyu4LU6 by @sarahlynn358
"The researchers found that.. #TaxiDrivers had measurably more #GrayMatter in the posterior #hippocampus, a brain area tied to storing large-scale #spatial maps..The longer someone had driven, the larger that part of the #brain.": buff.ly/kYKraE8 via @_TCGlobal
"#Patients may take several #medications that contribute to #dryness. They may also use #antihistamines, decongestants, or over-the-counter sleep aids without mentioning them during a routine #medication review.": buff.ly/VksH0xR via @kevinmd
#DryMouth #MedTwitter
Sheryl Chan asked 40 chronically ill people what hurts more than the physical pain.
The answer, again and again: 𝗶𝘀𝗼𝗹𝗮𝘁𝗶𝗼𝗻. Friends who drift away. Family who don't understand. A career that ends. A body you can't plan around.
Read it:
:#ChronicPain #WorstPart #ChronicIllness #InvisibleIllness
achronicvoice.com/worst-part…
"Because I’ve found more #peace with all of this #pain, I realize that the abundance of baking, decorating & cleaning have to be toned way down..My #family ..definitely don't want me to spend days in pain": buff.ly/3jSZjAY by @ehrmanlisa1
#ChronicPain #WritingPrompts
"When we mention #VitaminD, we tend to think of sunshine & milk. When we mention #VitaminK..people often go, ‘what does that #vitamin do again?’..here's how they work together synergistically for optimal #health & #wellbeing": buff.ly/5IN0ew8 @SpectraSpray
#MondayBlogs
ALT Vitamin D and Vitamin K2 - Why They Belong with Each Other