The UK’s leading charity for Vascular Ehlers-Danlos Syndrome working in partnership with the NHS EDS National Diagnostic Service.
Bury, Manchester UK
Joined February 2013
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We’re closing our X account soon and focusing our digital efforts on the platforms where our vEDS community is most active and engaged. This shift will help us strengthen communication, improve reach and ensure our content continues to meet the needs of the people we support.
Thank you so much to everyone who supported last night’s Brandon’s Legacy fundraising event. Because of your incredible generosity and participation, a total of £1,606.70 was raised to support our vEDS community in Brandon’s memory.
Meet May Roberts, a MSc Genetic Counselling Student completing her training at @cardiffuni. We look forward to launching her research project: How do adults with #VascularEDS reflect on early experiences of the condition and family communication surrounding their diagnosis?
This study is now open to recruitment and aims to answer an important, previously unexplored question: Do people with vascular Ehlers-Danlos Syndrome (vEDS) process, store, or use fat differently from people without vEDS?
A major new #vEDS research opportunity has officially launched! The MPEDS Study (Metabolic Phenotyping in Individuals with #vascularEDS.
Learn more: annabelleschallenge.org/mped…
Annabelles Challenge Vascular EDS Charity retweeted
Zevra is wearing red for #REDS4VEDS
We’re raising awareness for vascular Ehlers-Danlos Syndrome (VEDS), a rare, life-threatening condition. Learn more about VEDS: zevra.com/vascular-ehlers-da…
Annabelles Challenge Vascular EDS Charity retweeted
Tomorrow is #REDS4VEDS Day 2026!
Learn more at reds4veds.org
Annabelles Challenge Vascular EDS Charity retweeted
Gateshead dad fundraising to support others with genetic disorder affecting him and his son
itv.com/watch/news/gateshead…
itv.com/watch/news/gateshead…
FREE community event in Bury at The Millgate Shopping Centre.
Communities celebrating multiculturism, faith & diversity, various stalls - food, faith & volunteer organisations coming together on Wed 22nd July.
See emergency vehicles police, fire, army and ambulances.
Annabelles Challenge Vascular EDS Charity retweeted
Last run til the big one on Sunday. 135 miles of training put in this year on top of the 1179 miles last year. As ready as I can be for the 26.2 miles for the adidas Manchester Marathon. Wish me luck and please visit my just giving page,every penny counts (link in bio)💜🙌🏼
Taking place this weekend raising funds & awareness for AC and #vascularEDS.
We Deserve More Tomorrows! 💜
Representation matters, especially in #raredisease!
Our board, chaired by David Catterall DL, includes 67% trustees who are directly affected by #vascularEDS.
We lead with lived experience because our community deserves more tomorrows. 💜
Sheffield Half Marathon done in 2:24:38 ✅ plus an incredible £1,135 raised for Annabelle’s Challenge.
Well done Jess who is one of the GC’s in the EDS Service.💜
Helping us make more tomorrows possible for people living with #vascularEDS.
Look who turned 17 today! Happy Birthday Annabelle.
May you continue to shine brightly and provide inspiration to those in our community. We hope you have a lovely birthday. 🎉 💜
Annabelles Challenge Vascular EDS Charity retweeted
Thanks to all for the recent donations. £200 in £979 to go to hit last years running mileage target 🙌🏼💙❤️
justgiving.com/page/carl-smi…
Update from our CEO on the latest results for 2025 helping to fund our VEDS Support Programme, Counselling Service & Research.
Happy Christmas and New Year from all of us at Annabelle’s Challenge. 💜
Dear vEDS by Connor Peebles premiers at 7pm GMT. youtu.be/7Nf0MUoKrDM
Team AC is the backbone of Annabelle's Challenge, a team of over 40 amazing people working to support the charity and the #vascularEDS community we serve.
Meet Team AC: annabelleschallenge.org/our-…
