AdrenoLeukoDystrophy

Another form of treatment that is being tested is bone marrow transplant and steroids.

Such as oils called Lorenzo's oil. (Named after the son of the family who discovered the disease.)

Many cures are being tested and experimented on patients.

Because the quality of life is so low, patients are often in a coma.

For patients with ALD everyday life is very difficult. It is not easy to move, speak, or understand what is happening.

Ben's Friends is an organization that finds support groups for anyone that needs help coping with a rare disease.

#FunFact a disease or disorder is considered rare when it affects fewer than 200,000 people. ALD is considered a rare disease.

There are 3 major categories of this disease. They are the childhood cerebral form, adrenomyelopathy, and impaired adrenal gland function.

Female carries can be diagnosed 85% of the time using an acid test & a DNA probe in special labs.

#Discovers of ALD Haberfeld and Spieler

#OtherNamesForAld Adrenomyeloneuropathy and Schilder Addison Complex

For children with ALD it is a progressive disease that leads to a long term coma for about 2 years after a neurological systems develop.

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