The St. Louis Regional Chapter serves the needs of those living with Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's Disease, and their caregivers.
1950 Craig Rd #200, St. Louis
Joined February 2013
- Tweets1.7K
- Following948
- Followers522
- Likes307
ALS St. Louis Region retweeted
Thank you to everyone who joined us for this year’s National #ALS Virtual Advocacy Conference! We are especially grateful to all of our inspiring speakers who provided insights on how we will reach our vision of a world without ALS. #ALSAdvocacy
ALS St. Louis Region retweeted
Thank you so much for helping us celebrate #LouGehrigDay in STL @Cardinals and @CardinalsCare!
#OurALSCommunity #STLCards #ALSAwareness
Busch Stadium is observing Lou Gehrig Day tonight. Katie McGovern with the @ALS_STLRegion shares more about their mission: "We're fighting ALS on all fronts through research, advocacy and patient care."
ALS St. Louis Region retweeted
Giveaway time! This time it's the @MLB 4ALS t-shirt with the #LouGehrigDay logo on the sleeve! These are not available for sale. We will be giving away to 2 winners. (S through 2XL available)
Must RT to enter, the drawing will be Sunday at 9pm ET
ALS St. Louis Region retweeted
Thank you to @MLB, @Cubs specifically and to thousands of others (thinking of @BryanWayneMusic) for putting the spotlight on the best of us who always seem to be the ones struck by ALS. It means the world to millions of us to have #LouGehrigDay
ALS St. Louis Region retweeted
Help continue the fight against #ALS. Join advocates from across the country at the 2022 National ALS Virtual Advocacy Conference to learn how you can change policies that impact people living with ALS and their loved ones. Register TODAY! bit.ly/3Nhpmp4
ALS St. Louis Region retweeted
🚨ANNOUNCEMENT🚨: Our Chapter has been experiencing problems receiving IN BOUND emails since yesterday. The issue is resolved, but if you have been attempting to reach anyone and not received a reply we suggest resending your message or call 1-314-432-7557 or 1-888-873-8539.
ALS St. Louis Region retweeted
Don't forget to sign up for the Jim Schoemehl run for ALS runsignup.com/Race/MO/SaintL… #wgbuzz @ALS_STLRegion
ALS St. Louis Region retweeted
Through the National ALS Registry's research notification system, thousands of people with #ALS have been recruited in over 60 clinical trials and studies. Learn more: bit.ly/3jRT48g. #ALSregistry #ATSDR
ALT "Continuing ALS research is the best way to keep hope alive." Ed, a person with ALS National ALS Registry www.cdc.gov/als
ALS St. Louis Region retweeted
A national paid family and medical leave program for all workers would give people living with #ALS and their caregivers more time and resources needed to navigate life with ALS. We support the work that began in Congress to make this new program a reality.
Congress began important work today to create the nation’s first paid family & medical leave program for all workers. This would be a big help to cancer patients, survivors and their families when trying to cope with their diagnosis. bit.ly/2YIuHBZ
ALS St. Louis Region retweeted
Our St. Louis team enjoyed participating in the @ALS_STLRegion Swing for a Cure Golf Tournament today. Thanks to all who supported this fundraiser to aid in the fight against #ALS! #HeartHats
ALS St. Louis Region retweeted
A beautiful day for the #kimmswick5k admiring the @TheBlueOwl pies before the race! You still have time to join @ALS_STLRegion
ALS St. Louis Region retweeted
NEW EPISODE ALERT! With summer #travel season in full bloom, Jeremy and Jessica revisit a conversation around overcoming the challenges of living with ALS. #podcast @alsassociation @ALSA_MNNDSD @accessibleGO @TeamGleason @PVA1946 connectingals.org/episodes/s… share.transistor.fm/s/a70a03…
ALS St. Louis Region retweeted
With over 300 bipartisan cosponsors, we’re another step closer to passing the #ACTforALS Act & bringing promising new treatments to people with #ALS. Thank you @RepMikeQuigley and @JeffFortenberry for your leadership and all of the #ALSAdvocates for urging support of this bill.
🚨BIG NEWS🚨
#ACTforALS now has over 300 bipartisan cosponsors.
This is a proud moment for the supporters, advocates, and most of all, the patients.
We're one step closer to getting this bill passed, and ultimately on @POTUS's desk to be signed into law.
Let's get it done.
ALS St. Louis Region retweeted
Where do #nonprofits fall on the COVID continuum?
Join @AmPetsAlive's Jamie Case, @GCPASTL's Paul Pagano and @ALS_STLRegion's Katie McGovern to learn how they survived the early days, adapted to restrictions and are now re-engaging donors and volunteers. ow.ly/dW6P50Fr0pu
ALS St. Louis Region retweeted
On Saturday June 26, help Unlock ALS in St. Louis. Starting at 10AM on Facebook, help raise $450,000 and virtually “Walk Your Way”. All fundraising will support those living with ALS, research & advocacy. Visit trib.al/Wl6TQa3 to donate @ALS_STLRegion
ALS St. Louis Region retweeted
You can walk your way Saturday to defeat ALS trib.al/12KYZPo
ALS St. Louis Region retweeted
ICYMI: Scott Liniger, who lost his partner to ALS, and Natalie Pottebaum with @ALS_STLRegion tells us why participating in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. soundcloud.com/550ktrs/walk-…