Author, Sit Down Before Reading · Founder, ActiveMSers · Disabled health advocate · A systems thinker who accidentally rewrote medicine. Still at it.
New Mexico
Joined March 2013
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Dave Bexfield retweeted
Although MS does not directly affect the heart and lungs, older people with MS have on average 30-40% lower V̇O2peak than the general population according to this study, and many are below the 5th percentile compared to controls. jsams.org/article/S1440-2440…
Dave Bexfield retweeted
New report: Suspected cases of alpha-gal syndrome (AGS), a tick bite-associated allergic condition, have substantially increased since 2010. Between 2010-2022, CDC identified more than 110,000 people suspected of living with #AGS. Read more: bit.ly/mm7230a2
ALT An illustration of a rash on a person's back. Text reads, "Have you heard? Alpha-gal syndrome is an allergy to red meat associated with tick bites. Clinicians: When patients have symptoms 2-6 hours after eating meat or dairy products, consider testing for alpha-gal IgE."
Dave Bexfield retweeted
I just watched someone talk about her mental health struggles on TV. Bell's palsy plainly evident.
I'm not going to say who she is--Not needing to be accused of "diagnosing someone over TV."
But people should know Lyme can cause Bell's palsy, & that neuropsychiatric manifestations of Lyme are common.
Dave Bexfield retweeted
via @NYTimes
Good quiz - and they get right that there are exceptions to the 24hr transmission dogma! nytimes.com/interactive/2022…
Dave Bexfield retweeted
Nothing says spring like a picture full of nymph ticks!
This is how small ticks are at this time of year. Ticks are out and questing for a blood meal.
Do those tick checks every time you come in from outside and use a good repellant containing Picaridin/Incaridin. #LymeDisease
Dave Bexfield retweeted
Most (over 90%) of #LymeDisease cases are associated with the bite of the nymphal stage of the blacklegged tick (the size of a pinhead.)
This study fund nymphal #ticks can transmit Lyme within 12 hours. #BeTickAware lymedisease.org/tick-lyme-tr…
Dave Bexfield retweeted
"I failed MS medications because I have #Lyme disease. And based on that 2019 research of MS prevalence in the US—the one with the map that unmistakably parallels tick country—others misdiagnosed must be failing their MS treatments, too."
In multiple sclerosis, what if one big secret to the disease lies not tucked away in the incremental treatment successes, but buried deeply within its failures? #LymeDisease
sitdownbeforereading.com/pos…
Dave Bexfield retweeted
A protein in spirochetes (bacteria like those causing Lyme & syphilis) looks like myelin to the immune system.
Myelin surrounds our nerves. A confused immune response against it causes demyelination, hallmark of MS.
This is only a tiny bit of the data linking MS to infection.
Dave Bexfield retweeted
@CDC_NCEZID new poster on different Lyme rashes. Please know that there are many different kinds of rashes besides the “bulls eye” rash.
Dave Bexfield retweeted
In our MyLymeData research project of patients misdiagnosed, 14% reported that their misdiagnosis was with MS. Many patients who responded to our subsequent survey who had been misdiagnosed with MS reported that treatment with antibiotic were helpful. lymedisease.org/lymepolicywo…
Dave Bexfield retweeted
“The biggest problem we see is that MDs don’t believe there’s #Lyme disease in #California or they think it’s so rare they’ll never see a patient with it despite the fact that it’s been here for decades” Wendy Adams, BAL research grant director. today.com/health/disease/lym… @TODAYshow
Dave Bexfield retweeted
Yes, this happens often when patients are misdx’ed and treated w/steroids for presumed #autoimmune disease, when they actually have #Lyme. Consequence of inaccurate diagnostics @ActiveMSer
Dave Bexfield retweeted
World first clinical trial finds vitamin D supplements do not prevent the development of #MultipleSclerosis.
That’s the finding of a ground-breaking trial funded by @MS_Australia to determine if oral vitamin D supplements can delay the onset of #MS🧵
msaustralia.org.au/news/worl…
Dave Bexfield retweeted
Access to care...one of the greatest challenges of Lyme & TBD patients even if money is not an obstacle. @ActiveMSer @NIH @ilads_lyme @LymeDiseaseLDA @Lymenews @Lyme_X #TBDWG
“Help me. Treat me. Rehabilitate me.” That was my final, desperate plea to the most unlikely of potential partners in my fight with #LymeDisease.
activemsers.org/post/chapter…
Dave Bexfield retweeted
Aerobic exercise training could help restore function in MS patients who show atrophy in a brain region called the thalamus. buff.ly/3RHYa4z
#multiplesclerosis #msnews #msawareness #msresearch
Dave Bexfield retweeted
Lyme is known as the Great Imitator because its symptoms can look like so many other diseases. If you have Lyme, were you ever misdiagnosed? Comment below and share to inform others who may have been misdiagnosed!! #LymeNow #LymeAwareness
Dave Bexfield retweeted
Don't miss our latest newsletter that focuses on the question is it Lyme disease or MS and how MRIs are used as diagnostic tools. You can read the latest issue here acceleratedcure.org/sites/de….
Dave Bexfield retweeted
Very important point. Some acad. med centers don’t know how to, or won’t, treat anything but a well defined, narrow case def of #Lyme. @ClevelandClinic & @StanfordMed send pts to TBD specialists for IV antibiotics, but won’t do it themselves. Scared @IDSAInfo will come after them
“Help me. Treat me. Rehabilitate me.” That was my final, desperate plea to the most unlikely of potential partners in my fight with #LymeDisease.
activemsers.org/post/chapter…
Dave Bexfield retweeted
This is why @BayAreaLyme has always pursued improved diagnostics. They are the key to early treatment/right treatment (not, ahem, immunosuppressants). Lyme misdiagnosis is commonplace, we’ve heard the same story 1000X. @JohnRossMD @sabeti_lab @davidasinclair @KariusInc
Dave Bexfield retweeted
SHOCKED AND DISGUSTED WITH ALBASTAR AIRLINES - told me I should wear a nappy on board as I’m disabled and they don’t have an aisle chair. This is what I had to resort to. Please share - This isn’t acceptable!!! #disabled #wheelchair #AlbastarAirlines