Adrenal Diseases 🦋 (@Addisons_and_AI) header
Adrenal Diseases 🦋 (@Addisons_and_AI) profile picture

Adrenal Diseases 🦋

@Addisons_and_AI

Adrenal Diseases Support Global/Group is the world’s largest social media support place for persons with Adrenal Diseases and Adrenal Insufficiency.

 Worldwide
facebook.com/adsg.home/
Joined May 2016
  • Tweets2.4K
  • Following186
  • Followers1.7K
268Media
Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)Photo by Adrenal Diseases 🦋 (@Addisons_and_AI)
Adrenal Diseases 🦋 retweeted
CARES Foundation (@caresfoundation) profile picture
CARES Foundation@caresfoundation23 Jan 2020
Meet other CAH patients and families, support CARES and HAVE FUN! Register here: caresfoundation.z2systems.co… #congenitaladrenalhyperplasia #CAH #cornhole #cornholetournament #familyfundraiser #fundraiser #ashburnva #fun
Image from CARES Foundation (@caresfoundation)
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Don't forget our next social meet-up is tomorrow! This time in Shoreham-by-Sea, West Sussex. 🗓️ Friday 24 January 2020, 11am For more info & how to RSVP please see our website. We hope to see you there! addisonsdisease.org.uk/Event…
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Here we go!! @DrBaldeweg is now taking over our Twitter for the next hour. Start asking your questions and don't forget to tag us and use #pituitarytakeover 🤩
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Adrenal Diseases 🦋 retweeted
@NADF_Kalina (@NADF_Kalina) profile picture
@NADF_Kalina@NADF_Kalina31 Dec 2019
Hope the New Year will bring good health, love and joy to each and every one of you. From all of us at NADF, thank you for your support and dedication to adrenal patients! Let’s hope for more research, new and better treatments, and cures in 2020!
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Adrenal Diseases 🦋 retweeted
The ID Band Company (@theidbandco) profile picture
The ID Band Company@theidbandco1 Jan 2020
What Are Your Resolutions For 2020 ?
Image from The ID Band Company (@theidbandco)
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Adrenal Diseases 🦋 retweeted
@NADF_Kalina (@NADF_Kalina) profile picture
@NADF_Kalina@NADF_Kalina9 Oct 2019
Please protect yourself, get a flu shot
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Adrenal Diseases 🦋 retweeted
@NADF_Kalina (@NADF_Kalina) profile picture
@NADF_Kalina@NADF_Kalina9 Oct 2019
Several clinical studies are ongoing in US for patients with adrenal insufficiency clinicaltrials.gov/ct2/resul…
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Managing Addison's disease on top of everyday life can itself be a cause of stress. 🗣 We understand how difficult this can be, so have shared tips & advice to help if you're struggling. addisonsdisease.org.uk/reduc… #WorldMentalHealthDay  #MentalHealthAwarenessDay
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Trustee Rachel Bracken opens our #ADSHGDublin Conference. A packed agenda including not one, but TWO Endocrine nurses presenting on adrenal crisis management and injection training and a #WorldRecord attempt! #Endocrinology #Dublin
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
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Pts. with Addison's disease continue to have #adrenal crises that require admission even though stress dosing can prevent them. Fewer than 1/3 of such patients admitted to New South Wales hospitals had attempted stress dosing. #JES @TheEndoSociety ow.ly/1SKT50witvk
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Adrenal Diseases 🦋 retweeted
Beacon for Rare Diseases (@RareBeacon) profile picture
Beacon for Rare Diseases@RareBeacon12 Sep 2019
#RareDisease fact: In the UK, 3.5 million people live with rare diseases day in day out. They are individually rare but collectively common! #RareAware #1in17
Image from Beacon for Rare Diseases (@RareBeacon)
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Adrenal Diseases 🦋 retweeted
V (@NEDD2323) profile picture
V@NEDD232311 Sep 2019
#Addisons you can only do each day what your body will allow, adjusting to losing control over yourself due to illness, one that is hidden at that, is one of the hardest things to deal with ♥️
Image from V (@NEDD2323)
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Adrenal Diseases 🦋 retweeted
Beacon for Rare Diseases (@RareBeacon) profile picture
Beacon for Rare Diseases@RareBeacon13 Sep 2019
#RareDisease fact: Did you know that the average rare disease patients waits 4 years before they receive their final diagnosis? How long did you wait? #1in17 Source: @rarediseaseuk
Image from Beacon for Rare Diseases (@RareBeacon)
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What an interesting question Lynette. Asking our followers, what’s the prescription length those living with Addison’s in the UK & Ireland, have for their hydrocortisone?
39%1 month prescription
31%3 months prescription
18%6 months prescription
13%Other
62 votes • Final results
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Adrenal Diseases 🦋 retweeted
Libby Holland (@LibbyH74) profile picture
Libby Holland@LibbyH743 Sep 2019
A must for those with Addison’sDisease @AddisonsUK @Addisons_and_AI
NHS (@NHSuk) profile pictureNHS
@NHSuk2 Sep 2019
Setting up the emergency medical features on your phone could save your life. It allows ambulance staff to see info like allergies, medical conditions and who to contact in case of an emergency. Your device's documentation should tell you how to set it up.
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Adrenal Diseases 🦋 retweeted
Dr. Maria Fleseriu (@MariaFleseriu) profile picture
Dr. Maria Fleseriu@MariaFleseriu31 Aug 2019
Replying to @JoyYWu
Love the quote....& article of course, still using for #Medschool talk. "The grudge" persists even on recent, lower replacement GC dose, AI awareness much needed! Great context in the new NEJM #adrenalcrisis @OHSUBrain @EndoMedia @Pituitary_org #endotwitter @Addisons_and_AI
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Giving a hydrocortisone injection to yourself or a loved one in an adrenal crisis can seem daunting, but it could save a life. 👍🏻 Practise makes perfect, so we’ve put together some “how to” videos, so you can familiarise yourself with the process. 🔴 addisonsdisease.org.uk/emerg…
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
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Whether you're after dosing guidelines for your next dentist appointment, or more information for your GP about Addison's disease - we have a range of publications for you! 📍 Download your copies for free: addisonsdisease.org.uk/infor…
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
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Managing your Addison's ⌚️From the importance of taking your tablets every day, at the right time of day; to getting back into sports & exercise. Check out our free publication. addisonsdisease.org.uk/manag…
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
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Phew, the end of a sizzling week! Why not put your feet up with our new book, “Living with Addison's Disease", a guide answering questions regarding medication, sick-day rules, pregnancy, sports & more! 📚 To get your copy, please visit our website: addisonsdisease.org.uk/news/…
Image from Addison's Disease Self-Help Group (ADSHG) (@AddisonsUK)
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