Two more texts from @Michele_Tafoya She's relentless. And annoying.

On my Facebook too??????? @Michele_Tafoya Stoooppppppppp!!!!!! 🛑✋🛑✋🛑✋🛑✋🛑✋

Ah, my GMA TV shared guest! Hello from Mia, Gianna, Bella and Kim!

Red dye..... "fight breast cancer!" Local beloved pancake chain.

Many years ago, I wrote a post for Huffington Post called, Even Among Misfits. It’s long deleted from the HuffPo site with the warning, “Removed to protect public health” or some such nonsense. It mentioned vaccines. And autism. THIRD RAIL!  ZAP!  Anyway, it was about how even in the disability world, autism gets short shrift. There’s precious little of the kindness and “awwwws” given to others. Yesterday, I was walking through Lowe’s, on a mission to find a replacement dishwasher for my elderly Mom.  Like many of us old timers, I care for my three daughters, and I man the cameras and run much of the household for my Mom in Massachusetts.  Three years ago, she was a victim of  theft and fraud by a “trusted” handyman.  I unraveled it.  There’s a court case in Massachusetts. And now my sister, brother and I are her assisted living staff. From afar. I handle the lion’s share. My sister handles medical. My brother the financials. OK. Lowe’s had this magnificent Rudolph The Red Nose Reindeer lawn display for Christmas. I stopped. Stared. And almost cried. My oldest would love it. She is my Rudolph Christmas (1994) baby. We watch video snips all year long. Little did I know we’d move onto the Island of Misfit Toys like the Hotel California. We can never leave.

Oh my God @Michele_Tafoya you've been spamming my cell for weeks. O send 🛑 and you use another number. No debate. You've pissed me off royally. I live in CT.

Nice people are not gleeful when colleagues lose their jobs. When patients are turned away. When restaurants & concertsrevert to Jim Crow. When schools expel students.

By Cathy Jameson It’s never more than a 20 or so minute meeting with one of our case managers.  Last week’s went well beyond that, creeping up to almost 2 hours.  We pick evening hours for these meetings so my husband and I can sit together, learn together, and advocate together for our son with special needs.  I manage much of the day-to-day, but we are in step with what work needs to be done, work in the moment and in the long-term.  For weeks before, and up to that evening meeting, we fought together for Ronan.  I could have handled the most recent problem we’re having.  But we immediately brainstormed what needed to be done and reached out to people together.  Those people could have resolved some of the issues when they were brought to their attention by an overseeing agency, but it’s now turned into a long-term issue that includes losses.  Concessions were made to no avail.  That forced us to make adjustments where none should have been made.  These have been costly and now affect aspects of everyday living. Services. Direct support. Our caregivers. Even though last week’s meeting was as long as it was, nothing was resolved.  More worrisome, we’re not on borrowed timeanymore; we have simply run out of it – for services and that direct support from our amazing caregivers.  Besides the loss of hours of direct care that impact Ronan’s needs, it’s nowimpacted me, my husband, our jobs, and our family.  Where one simple click of a button could have seen Ronan’s long-standing and necessary services continue, we’re now resubmitting already filed forms.  We’re re-documenting the laundry list of diagnoses line by line.  We’re including supplemental information that we pray someone up the admin chain will understand.   It’s invasive. It’s unnerving.   It’s beyond frustrating.   It’s for Ronan, though, so we march ahead together.  Hoping.  Praying.  Fighting.  For our son who relies on us to speak up for him.  For his rights.  To keep what was working.   We expect adjustments every now and then, because… that’s life.  But having to adjust what was working because of someone else’s lack of attention is unacceptable.  And believe me, we’ve made that known.  That hasn’t mattered yet as we are no closer to resolving the latest worry.  We’re no closer this week than we were last week.   So onward we march.   Together.   For Ronan, because he is worth every step forward.     Cathy Jameson is a Contributing Editor for Age of Autism.

Is Calley the boy or the girl Means? Just quit?

Rock a bye, baby At CHOP's OR We will vax you From near or from far When Mom's heart breaks Because you lied To worship your pharma Her baby died ageofautism.com/anesthesiolo…

A parent's ability to clearly consent to vaccination under sedation while their child is about to undergo surgery is akin to a drunken drug addled woman in a frat house really agreeing to sex. Saying yes under duress is not consent. The fear, worry, financial stress that accompany sending your child into the OR negates informed consent. ageofautism.com/anesthesiolo…

Hey, Hey, Hey. Or? 🎶 H-E-L-L No!" Perfect timing for Halloween, a frightening Children’s Hospital of Philadelphia continues its May 2026 program, “Close Your Eyes, We’ll Immunize.” This program is meant to allay fears of vaccination for children by jabbing them while they are under anesthesia for other procedures. CDC recommends 15 – 30 minutes of observation after vaccination to monitor adverse effects.  Would being under mean masking immediate side effects? What if the heart has a problem that would not have happened during the surgery without the vaccination? What’s the rationale? COMPLIANCE.  Under the costume of “removing barriers,” Close Your Eyes is reported to have vaccinated more than 2000 kids since its May 2026 launch. It gets worse. Below the press release excerpt, a medically detailed response on the dangers of this program from Board Certified Anesthesiologist @Madhava_Setty CHOP press release excerpt: The program, “Close Your Eyes, We’ll Immunize,” has been providing influenza vaccines to children undergoing sedation or anesthesia for other procedures since 2023. During influenza season, families receive information about the program as part of their preoperative communications. On the day of the procedure, staff revisits the opportunity for vaccination, assesses interest and identifies eligible patients. When families agree, the vaccination is then administered while the child is sedated. Success has been measured primarily by the number of vaccines administered each season. In the 2025-2026 flu season, we delivered 2,054 influenza vaccine doses to children already undergoing sedation or anesthesia. Importantly, approximately one-third of families report that their child would not have otherwise received the influenza vaccine due to reasons including needle phobia, limited seasonal healthcare access, and vaccine hesitancy. Building on early success, we aim to expand the program’s reach and scope. Our current focus is on two areas for expansion…. …Bundling care for neurodiverse patients  (our comment – this means autism)— We are currently exploring ways to better support children with certain neurodiverse conditions who may experience barriers to routine care, such as needle aversion or difficulty tolerating outpatient procedures. One potential strategy is to develop an automated process that identifies children already scheduled for procedural care who are also due for immunizations or routine laboratory testing, allowing these services to be coordinated and completed, when appropriate, during the same encounter.Offering additional vaccinations — We are also exploring the feasibility of offering additional immunizations, including RSV and COVID-19 vaccines, as well as developing pathways to support catch-up immunization for children who are not up to date. REBUTTAL EXCERPT The program is called “Close your Eyes. We’ll Immunize” This is stunningly irresponsible. Here’s why: Anesthetists are extremely risk avoidant and endeavor to minimize patient exposure to anything which carries potential side effects. This is particularly true of pediatric patients who very often have never been exposed to anesthetic medications. We simply cannot know how an individual child will respond to these drugs for the first time. READ THE FULL ARTICLE ageofautism.com/anesthesiolo…

Today my mostly scripting 31 year old daughter said, "Thank you, Mom" as I fastened her seatbelt in the handivan that takes her and her sister to a behavior based day program. And now, I will cry.