Ruby was taken by #rhabdomyosarcoma 2 weeks before her 7th birthday. She was amazing. We fundraise for better treatments and a cure. Over £245k raised so far.
Scotland, United Kingdom
Joined February 2020
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Be More Ruby 🎗🦄💗⭐️🌈 retweeted
📢 The 1st spin-off project from the baseline review has been published!
The Local-REFoRMS paper looking at the use of combined surgery & brachytherapy for children/young people with relapsed/refractory #rhabdomyosarcoma is now available online! 👇
onlinelibrary.wiley.com/doi/…
ALT The reforms project - project update banner
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
International childhood cancer awareness day. Reminding people of the stats and why change is needed. #sophieslegacy #childhoodcancer
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
We chatted about the use and design of the online resource. All of this information will be used to improve the accessibility and transparency of research into treatments for children with relapsed/refractory #RMS
And we even finished the day with some amazing cupcakes!!
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
📢CAN YOU HELP?
We're developing an online resource about Living-REFoRMS to let families & professionals access info about studies in the review. We’d love you to get involved if you have experience of #rhabdomyosarcoma - fill out the form: forms.gle/oYuozX5CrJ2jeiGz6
or email/DM us
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
LAUNCH OF OUR 25TH ARC IN THE UK - NEIVE'S ARC
Welcome Neive's Arc to our ever-growing army of UK Arcs. Neive is currently on palliative care. She has run out of treatment options. This is not good enough. Read her story here. #thearcs #rhabdomyosarcoma
alicesarc.org/arc/neive-warw…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Our Art in the Park #childhoodcancer art exhibition is on display in the woods near the Coventry Peace Orchard until 24th Sept. It's a lovely space to display the art and stories
Video credit: Shawry's Videos and Images #GoGold #CCAM #ChildhoodCancerAwarenessMonth #Covhour
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
July is #SarcomaAwarenessMonth 🎗️💛
7 in 10 children who are diagnosed with #rhabdomyosarcoma will survive – but this is a lot lower than the average survival across all cancers.
That’s why #SNFs like @PassTheSmileOrg & @BeMoreRuby1 are so important 👇🏻
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Today, Alice's Arc and the story of our £1million grant to unravel the mystery of relapsed rhabdomyosarcoma led by @ICR_London @PaedCancerEvol featured online and on BBC South East Lunch and Evening news. Please view @BBCiPlayer. #rhabdomyosarcoma
bbc.com/news/uk-england-kent…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
If you go down to the woods today (or any time over the next few weeks) look out for our outdoor art exhibition, created by children with cancer and their artist advocates 💛🎗️💛
The SENA woods are by the #Earlsdon water fountain, Earlsdon Ave South
#ChildhoodCancer #Coventry
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Bennett's Arc, first US Arc in support of Alice's Arc US,(501 (c) 3 status pending) formed under sad circumstances, just weeks after Bennett died. Rhabdomyosarcoma is a global challenge. Break down research barriers. New treatments are urgent. #thearcs
alicesarc.org/arc/bennett-me…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
£1million grant from Alice's Arc to find new therapies to prevent or treat relapsed rhabdomyosarcoma. Prognosis at relapse is a dismal 8%. An impossible situation. The team @ICR_London are working to change this. #rhabdomyosarcoma #thearcs #ChildhoodCancer
Our scientists have embarked on pioneering research to find new therapies that will prevent or treat relapse in #Rhabdomyosarcoma - thanks to a £1 million grant from @AlicesArc, which was set up in memory of Alice Wakeling who died from the disease aged 7❤️🧵 (1/6)
ALT Composite image (clockwise): Alice Wakeling, Dr Alejandra Bruna, Professor Janet Shipley, and Professor Trevor Graham.
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Alice's mum, Sara says, "We are ambitious as a charity, and we want to be at the forefront of research. Discovering more about the biological mechanisms that drive this disease creates a sense of hope for families. @AlicesArc is delighted to be funding this project" (3/6).
ALT A laughing Alice Wakeling, holding a paint-splodged hand up in a high five.
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
We are still looking for #parents, #carers & #sibling of #children with #SeriousIllness #MedicalComplexity #ComplexHealthNeeds & #HSCP (including #AHP) to take part in workshops to find out how best to implement a new tool to find out what’s important to children and their family
We are holding workshops at the end of March/beginning of April with #parents, #carers & #HSCP to find out how we can best #implement C-POS in paediatric palliative care #pedpec. If you are interested: contact with @HannahM_Scott20 at [email protected] for more information
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Half of the REFoRMS team have been at the #CCLG2023 winter meeting today. Our work is on display at stand 43 of the abstract stands so go check it out if you want to know more about understanding treatment decision making for children with relapsed/refractory #rhabdomyosarcoma
ALT Poster of reforms project
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
We're looking for parents of a child with cancer to join an online chat this Friday, 11-1, to find out what you know and what you think about @CCLG_UK - this will help us with our storytelling, improve our work with supporters and ultimately fund more research 1/2
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Patients before publication. Success and impact should always be measured by the impact on the patient. Simple in theory but complex in the world of academic research #CGCSummit #NexTGen #rhabdomyosarcoma
Ben's dad & Sara from @AlicesArc & the #NexTGen advocates poster #CGCSummit
Measuring projects success should be based on the +ive impact on patient t'ment, prioritised over publishing academic papers. Common sense, but needs stating so research is focused on WHY it's being done
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
New Cancer Grand Challenges are just being announced and there is one looking at childhood solid tumours. This is brilliant news. Progress.
And most importantly, HOPE 💛🎗️
#CGCSummit #childhoodcancer
9 new #CancerGrandChallenges 📢
We're inviting international teams to apply for up to $25m in funding. Expressions of Interest are now open until 22 June. Explore the challenges⏬
cancergrandchallenges.org/ne…
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
Our school was full of colour and kindness yesterday as we marked @BeMoreRuby1 day, raising an overall total of £325 for Super Ruby’s Rhabdo Raiser part of @CCLG_UK #teaminchture
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
#InternationalChildhoodCancerDay last year cancer stole our 7 year old son Dexter, we are devastated. Today Dexters Dragon Egg bath bomb at lush is launched internationally to raise charity funds for Dexters Arc, a non animal testing arc ran under @AlicesArc. Help progress.
Be More Ruby 🎗🦄💗⭐️🌈 retweeted
DEXTER'S DRAGON EGG, CREATED BY LUSH IS GOING GLOBAL TODAY. Following a campaign raising £163K in the UK, gold bath bomb is now for sale across Asia, Europe, USA and Australia/New Zealand, funds raised expected to be £600K. What a platform! #iccd2023 #rhabdomyosarcoma #thearcs
