Facilitator, Shared Learning Group on Involvement, in partnership with Derek Stewart for https://xitter.cf/t.co/0kBRG49o7k, whale watcher and cake baker
Brighton, UK
Joined March 2012
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Bec Hanley retweeted
With #WorldAIDSDay2024 around the corner, Sheena McCormack shares how the LGBT+ community have contributed to #HIV research over the years - including in our PROUD trial.
PROUD was the first UK study of PrEP to prevent HIV.
Read Sheena's story👉 buff.ly/3Z99i0o
ALT Photo of Sheena McCormack, Professor of Clinical Epidemiology at the MRC CTU at UCL. Quote from Sheena reads: When a trial delivers a result that is groundbreaking, like the effectiveness of triple therapy or PrEP, the community partners have the activism experience that is essential to persuading policy makers to move at speed. Further text reads: #WorldAIDSDay2024. Next to this text, there is a red HIV awareness ribbon.
Bec Hanley retweeted
🔎 Have you visited NIHR's Learning for Involvement site recently? We share resources and training all about public involvement.
Take a look at this toolkit for researchers who are developing applications with, and for, diverse communities: learningforinvolvement.org.u…
ALT NIHR Learning for Involvement. New resource: Community Engagement Toolkit. Find out more: learningforinvolvement.org.uk
Bec Hanley retweeted
NIHR recently participated in the development of a new guide about fair payment for partnership work.
Five recommendations have been made. Find out more on Learning for Involvement ➡️ learningforinvolvement.org.u…
ALT NIHR Learning for Involvement. New resource: Fair Market Value for Charities in Partnership Work. Find out more: learningforinvolvement.org.uk
Bec Hanley retweeted
What happens at the end of a clinical trial?
Once we've collected all the info we need, we analyse this data. This allows us to find out:
📈 How effective a treatment is
🚨 How safe it is
🤢 If there are side effects
⚖️ Whether it is better than the current treatment or placebo.
Bec Hanley retweeted
Spaces are filling up FAST for our webinar on 12th November! Join us to find out about a career competencies framework for recognising and defining roles in the patient and public involvement (PPI) workforce.
Sign up today to avoid disappointment ⬇️ gmg-lgcgroup.zoom.us/meeting…
ALT Recognising and defining roles in the PPI workforce: a career competencies framework. Webinar. 12th November, 10:30 - 12:00.
Bec Hanley retweeted
🗓️ Join us on 12th November to find out more about a new patient and public involvement (PPI) career competencies framework which outlines the skills needed for #PPI roles and opportunities for development.
Sign up for the interactive webinar: gmg-lgcgroup.zoom.us/meeting…
Bec Hanley retweeted
Our new guide to fairer payment for partnership work is out now!
The guide is designed to help charities and partners calculate Fair Market Value.
It is a joint project with our UK colleagues @Cancer52org, @NRAS_UK and @PiFonline. hrci.ie/fair-market-value-fo… #HealthResearchMatters
Bec Hanley retweeted
👋Youth organisations - Do you want to strengthen your youth voice practice?
@Centres_GWC's Youth Voice Resource Hub brings together information, tools and training to help you embed youth voice in your work.
Explore the Youth Voice Resource Hub👇
ymcageorgewilliams.uk/centre…
Our new Youth Voice Resource Hub enables you to browse resources from across the sector on key topics, such as:
✊ Youth voice in decision-making
🎨 Youth voice in programme design
🤝 How to engage young people
Explore here 👉 bit.ly/3Rc584H
I loved hearing from Larry Masterson, strike thriver, at the #ppifestival2024 today. Such an interesting day. Thanks @UCC for organising.
‘The bang for your buck is especially significant when you involve people in PhD studies’ - great words from Maria Pertl, RCSI PhD supervisor #ppifestival
Bec Hanley retweeted
Last chance to register for Learning Across Borders!
Featuring speakers from Ireland, Canada, Denmark and the UK discussing the opportunities and challenges to sharing knowledge about PPI experience across international borders.
Read more and register tinyurl.com/yuckcx44
Bec Hanley retweeted
We are very excited to be co-hosting a wonderful #PPIFestival2024 event in @_IHREC with @PPI_Ignite_Net on Thursday 3rd Oct at 1.30pm! Hear from @ManojLalu @BecHanley1 @DDEA_Denmark @emmy_racine and more.
Register here: tinyurl.com/PPIFest24
ALT This image shows the event details with the organiser and funder logos (PPI Ignite Network, HRB, IRC and RCSI). The event title is 'Learning across borders: PPI case studies from Ireland and beyond'. It is taking place on Thursday 3rd October 1.30pm to 5pm in the Irish Human Rights and Equality Commission building, 16-22 Green Street, Rotunda, Dublin 7. D07 CR20. Register online via the PPI Ignite Network events calendar.
Bec Hanley retweeted
Results from the first cycle of @mndsmart have now been reported in @TheLancetNeuro Our innovative approach, including co-production alongside people living with #mnd, and scale, with 23 sites across all 4 UK nations, aim to speed up delivery of new treatments.
Bec Hanley retweeted
Patients and carers play a pivotal role in research.
Watch this short film by our friends at @MRCCTU to learn more about the impact members of the public can have in clinical trials: youtube.com/watch?v=t992parW….
Bec Hanley retweeted
"To live a healthy life, is something we all deserve, we need every type of person represented in health research”
We're proud to have partnered on this film showing why we need better representation in health research.
👉🏽 #INVISIBLE out now!
A film exploring why we need more diverse voices involved in health research.
Visit egality.health/be-visible
#BeVisible
Bec Hanley retweeted
Take a look at these new toolkits from @GM_PSRC, focused on enhancing Patient and Public Involvement and Engagement (PPIE) in self-harm and suicide prevention research.
Read them here 📖 psrc-gm.nihr.ac.uk/2024/08/2…
Bec Hanley retweeted
A fantastic collaboration, 2 years in the making. Happy to share #INVISIBLE is out now! 🥳
Go to egality.health/be-visible and check out our film today!
#bevisible #makeresearchinclusive #collaboration #coproduction #diversity #healthresearch
👉🏽 #INVISIBLE out now!
A film exploring why we need more diverse voices involved in health research.
Visit egality.health/be-visible
#BeVisible
Bec Hanley retweeted
This is great!
A fantastic collaboration, 2 years in the making. Happy to share #INVISIBLE is out now! 🥳
Go to egality.health/be-visible and check out our film today!
#bevisible #makeresearchinclusive #collaboration #coproduction #diversity #healthresearch
Bec Hanley retweeted
👉🏽 #INVISIBLE out now!
A film exploring why we need more diverse voices involved in health research.
Visit egality.health/be-visible
#BeVisible
Bec Hanley retweeted
❓ Wondering HOW kids in @TheKidsTrial will plan their trial???
Watch this video, narrated by one of our fabulous Child Research Advisors, that explains what kids will do in the next step of @TheKidsTrial! #GetInvolved