@BrainAblaze

As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog

 California
brainablaze.com
Joined February 2020
  • Tweets63.2K
  • Following7.2K
  • Followers10.2K
12.4KMedia
No one person or organization speaks for the whole #epilepsy community. Your story matters, as it might help others. Thank you for being here, supporting us, and sharing who you are. #EpilepsyAwareness
Four hands of different pigments come together over the Brain Ablaze logo over a purple background.

ALT Four hands of different pigments come together over the Brain Ablaze logo over a purple background.

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Our virtual #epilepsy Support Group meets in about AN HOUR. #EpilepsyAwareness We'll also include what plans we have planned for #epilepsyAwarenessMonth in November: brainablaze.com/epilepsy-sup…

PST Epilepsy Support Group Session - Brain Ablaze

If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!

brainablaze.com
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Feeling guilty for living in survival mode? Some social media pushes that everyone with #epilepsy should be "thriving". But let’s be clear: simply surviving, managing medications, and getting through the day is a massive victory. -- Great work! #EpilepsyAwareness
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We've gotten a few DMs from #epilepsy advocates asking why they weren't included in this week's #FollowFriday post. We keep a growing list of 100+ incredible advocates and rotate them randomly each week so everyone gets their spotlight! #EpilepsyAwareness
The words FOLLOW Friday emerge from a purple/pink cloud.

ALT The words FOLLOW Friday emerge from a purple/pink cloud.

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Living with #epilepsy isn't just navigating seizures. -- Do you often feel fear of disappointing yourself or those around you with a seizure that might interrupts plans, work, or daily life? #EpilepsyAwareness
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Hobbies may mitigate the #anxiety, #stress, or #depression that commonly accompanies #epilepsy. -- What are your hobbies? #EpilepsyAwareness
Do you have any hobbies? -- Engaging in a passion project lowers cortisol, disrupts chronic stress, and gives our brains the reset they deserve. -- Hands knit a purple scarf, while another hand spray purple paint on a wall.

ALT Do you have any hobbies? -- Engaging in a passion project lowers cortisol, disrupts chronic stress, and gives our brains the reset they deserve. -- Hands knit a purple scarf, while another hand spray purple paint on a wall.

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We need to pause your #Halloween planning/decorating for this special announcement! 🚨 Our virtual #epilepsy Support Group meets TOMORROW! #EpilepsyAwareness Here's how to join: brainablaze.com/epilepsy-sup…

PST Epilepsy Support Group Session - Brain Ablaze

If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!

brainablaze.com
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Some people with #epilepsy can drive, but doctors describe that those currently experiencing seizures should not. -- What advice would you give to a person who is trying to convince their family/friend to cease driving? #EpilepsyAwareness
A hand wearing a purple bracelet holds a car wheel in a black-and-white world.

ALT A hand wearing a purple bracelet holds a car wheel in a black-and-white world.

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Weathermen might not always get the forecast right, but they can at least spot a storm coming on radar. Seizures don't care about your schedules, plans, or safety. #EpilepsyAwareness
No one can predict a seizure. Epilepsy doesn't give a 7-day forecast. -- A woman stands under a purple umbrella in a halo of golden heart-shaped lights and rain.

ALT No one can predict a seizure. Epilepsy doesn't give a 7-day forecast. -- A woman stands under a purple umbrella in a halo of golden heart-shaped lights and rain.

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It's almost go time for #NationalEpilepsyAwarenessMonth (or #NEAM). We have a week to go before we kick our #EpilepsyAwareness advocacy in high gear. -- Are you ready?
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Many people with #epilepsy know the #spoonie metaphor is real: some days you wake up with a full drawer, and other days you're trying to survive on a single plastic spork. -- What would you do if you suddenly found a stash of more spoons? #EpilepsyAwareness
A collection of 50+ spoons hang from the ceiling around a light fixture.

ALT A collection of 50+ spoons hang from the ceiling around a light fixture.

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If you agree that living with #epilepsy often feels like navigating a minefield, you are not alone. -- What mistakes have you made while trying to manage your seizures? #EpilepsyAwareness
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Rather than following the adage "be the bigger person", we suggest finding the smallest person (the one that everyone overlooks) and helping them to be a bigger person. #EpilepsyAwareness
What is something that a person without Epilepsy can do to still support the Epilepsy Community. -- An image of two hands shaking (one purple), is drawn on a chalkboard.

ALT What is something that a person without Epilepsy can do to still support the Epilepsy Community. -- An image of two hands shaking (one purple), is drawn on a chalkboard.

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Brain Ablaze retweeted
Greg Grunberg
@greggrunbergOct 24
USA - UK TALK ABOUT IT! youtu.be/mOmKHkWsd4w
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October is #HealthLiteracyMonth! One of our goals is to provide clear and understandable info about #epilepsy all year long. #EpilepsyAwareness
A figure made out of a question mark says "Health Literacy Month" -- Clear, understandable information about Epilepsy should not be a luxury.

ALT A figure made out of a question mark says "Health Literacy Month" -- Clear, understandable information about Epilepsy should not be a luxury.

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A "functional neurologist" might sound credible, but it's a fancy word for a chiropractor who cannot provide medical care for people with #epilepsy. -- Don't be fooled by marketing terms, and always verify your providers' medical credentials! #EpilepsyAwareness
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Pivoting away from a medical treatment that is clearly not managing one's seizures isn't "wasting time". It's advocating for a better quality of life. -- Have you ever had to modify your treatment because it just wasn't working. #EpilepsyAwareness
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When living with #epilepsy, it can sometimes feel like there’s no hope in sight. Sticking with your treatment plan is investing in your future self. #EpilepsyAwareness
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The best #epilepsy advocates are not the critics but the doers. -- Do you find that people are more eager to point out problems, than they are at finding solutions? #EpilepsyAwareness
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#FollowFriday @Matty411 @omar_danoun @char_charmed @floppingZack @SaraStaggs @greggrunberg @jessicaksmith @SeanPreneur @TheNotoriousEEG @KatieNunn11 @DazzledSaz @steventeaster @blssln @stephileptic @NeuroMaheshwari @AMoosaMD @RoKKnRobin @_Quinn_Bezer @afan66 #EpilepsyAwareness
A purple sparkling "Epilepsy" is next to a cursive "Awareness" on a green abstract, brushed background.

ALT A purple sparkling "Epilepsy" is next to a cursive "Awareness" on a green abstract, brushed background.

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This #FollowFriday #FollowBackFriday I recommend :- @ablegirl @Adam_Pearson @AndyGibsonTV @ByDonkeys @BrainAblaze @CathyCooper2 @Danwhite1972 @deafswim26 @DrMisraJahnavi @fats_timbo @FHouseIfS @folkertveenstra @FryLegal @gavinneate @GeorgiaVineOT @GetYrselfActive
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