Exploring views of stakeholders on the proposed CF screening protocol incorporating next generation sequencing. @louisecmoody @imaginingfuture @JaneChudleigh
England
Joined June 2022
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Perceptions of NGS for CF Screening retweeted
xitter.cf/CFScreeningNGS/status/… @DaveWalkerGen @JNomics @h_knight5 @katienickson @jesshbateson @Shenriques3 @TalkingGenes @AmandaPichini @theAGNC @GeneticAll_UK @ingenious82 @JJCadwallader @loudoobs @AForman_CGC @lisarcoop @RSpencerTansley
Are you a #geneticcounsellor? Please tell us your views about the proposed use of extended sequencing for #cysticfibrosis screening in England (kcl.ac.uk/research/cf-ngs) here:
qualtrics.kcl.ac.uk/jfe/form… or to find out more, please share your details: qualtrics.kcl.ac.uk/jfe/form…
Perceptions of NGS for CF Screening retweeted
Full paper on genetic nomadism available here: sciencedirect.com/science/ar… #BSGM2022
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We would love to hear from chiren over 10 years with CF, a CFSPID designation or who are a carrier of CF:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]
@CowlardJacqui
We would love to hear from parents who have a child with CF, a CFSPID designation or who is a carrier of CF:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @CowlardJacqui
We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]
Professionals who have worked with children with CF:
Would you like to take part in a study exploring views of using extended sequencing to screen for more DNA mutations via newborn screening for CF in England. Find survey link here: qualtrics.kcl.ac.uk/jfe/form…
xitter.cf/CFScreeningNGS/status/… @DaveWalkerGen @JNomics @h_knight5 @katienickson @jesshbateson @Shenriques3 @TalkingGenes @AmandaPichini @theAGNC @GeneticAll_UK @ingenious82 @JJCadwallader @loudoobs @AForman_CGC @lisarcoop @RSpencerTansley
Are you a #geneticcounsellor? Please tell us your views about the proposed use of extended sequencing for #cysticfibrosis screening in England (kcl.ac.uk/research/cf-ngs) here:
qualtrics.kcl.ac.uk/jfe/form… or to find out more, please share your details: qualtrics.kcl.ac.uk/jfe/form…
Are you a #geneticcounsellor? Please tell us your views about the proposed use of extended sequencing for #cysticfibrosis screening in England (kcl.ac.uk/research/cf-ngs) here:
qualtrics.kcl.ac.uk/jfe/form… or to find out more, please share your details: qualtrics.kcl.ac.uk/jfe/form…
xitter.cf/CFScreeningNGS/status/… @WeHealthVisitor @cuppacat @smyth_adrienne @sallybeth37 @DebbieHV4 @HealthWalsall @MarieBtheHV @Alison_Morton2 @lewishamhv @CityHackneyHV @IamaHV @JaneTasker @CatherineBoar13 @SolihullHVs @frannice_hv @JennyCroxtonHV @AfC_RBWM_HV @TamesideHVs
Are you a #healthvisitor? Please tell us your views about the proposed use of extended sequencing for #cysticfibrosis screening in England (kcl.ac.uk/research/cf-ngs) here:
qualtrics.kcl.ac.uk/jfe/form… or to find out more, please share your details: qualtrics.kcl.ac.uk/jfe/form…
Are you a #healthvisitor? Please tell us your views about the proposed use of extended sequencing for #cysticfibrosis screening in England (kcl.ac.uk/research/cf-ngs) here:
qualtrics.kcl.ac.uk/jfe/form… or to find out more, please share your details: qualtrics.kcl.ac.uk/jfe/form…
We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]
Perceptions of NGS for CF Screening retweeted
xitter.cf/CFScreeningNGS/status/… @DoctorCF @DrRebeccaThomas @andrewprayle @laurakinseyRD @janedaviescf @hldouglas @ResearchGray @CFCanada @CF_Foundation @ECFSRegistry @CFSouthAus @cf_ireland @saudicforg @CFAustralia_ @FHFT_Research @Manchester_cf
Professionals who have worked with children with CF:
Would you like to take part in a study exploring views of using extended sequencing to screen for more DNA mutations via newborn screening for CF in England. Find survey link here: qualtrics.kcl.ac.uk/jfe/form…
Perceptions of NGS for CF Screening retweeted
xitter.cf/CFScreeningNGS/status/… @TeessideCF @yorkhullcf @AdultCystic @NUH_CFUnit @cfadultsni @CFLeeds @thecfphysio @PearceWardMFT @cf_newcastle @SWolf335 @CF_Exercise @CF_physios @BristolAdultCF @C_F_Doc @RachelPhysio @acpcf @AcpcfR @PhysioSarah @DrDamianDowney @AlexRHorsley
Professionals who have worked with children with CF:
Would you like to take part in a study exploring views of using extended sequencing to screen for more DNA mutations via newborn screening for CF in England. Find survey link here: qualtrics.kcl.ac.uk/jfe/form…
Perceptions of NGS for CF Screening retweeted
Professionals who have worked with children with CF:
Would you like to take part in a study exploring views of using extended sequencing to screen for more DNA mutations via newborn screening for CF in England. Find survey link here: qualtrics.kcl.ac.uk/jfe/form…
CF dietitians and physiotherapists, would you like to join a workshop about extended sequencing for #cysticfibrosis screening and earn £20? Please provide your details here for more info: qualtrics.kcl.ac.uk/jfe/form… @CF_dietitians @bda_cf @ecfs_ecfng @CF_physios @acpcf @CF_Exercise
xitter.cf/CFScreeningNGS/status/… @yorkhullcf @Wessex_adult_CF @lucyewadsworth @CysticAdult @ssnjimb @jacckbyrne @liammchugh1961 @Barbara48133331
We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]
We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected]
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @louisecmoody
@imaginingfuture
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @louisecmoody
@imaginingfuture
We would love to hear from parents who have a child with a CFSPID designation:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or [email protected] @louisecmoody
@imaginingfuture