Supporting patients in all ways; direct peer contact, trustworthy science-supported resources, community events, access to patient voice research opportunities.
Worldwide; Homebase Atlanta GA
Joined October 2014
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Great information for patients facing transsphenoidal surgery by Drs. Raj Mukherjee and Nick Rowan (Johns Hopkins) youtu.be/rIzWWLJ-B7g
In honor of Cushing's Awareness Day, a patient video from Recordati Rare Diseases. youtu.be/vKGvwLG9KI4
Today is Cushing's Awareness Day! Hug a Cushie, and help us work toward faster diagnosis, better prognosis, and kinder understanding.
Help us choose a Cushing's Awareness ribbon! surveymonkey.com/r/awareness…
Join us next week for a webinar focused on Optimizing Post-Surgical Outcomes with Drs. Raj Mukherjee and Nick Rowan from Johns Hopkins! Register and submit questions: surveymonkey.com/r/QoL_webin…
Join us this Saturday for a casual chat with Dr. Roberto Salvatori from Johns Hopkins: csrf.net/webinar-cushings-an…
This year's theme for Rare Disease Day (Feb 28) is Health Equity, an often negative variable in the Cushing's patient's journey that can take the form of bias, lack of access, and longer time to diagnosis. More about Rare Disease Day @RareDiseases
For your Friday perusing pleasure, the Endocrine Society has released a special thematic issue focused on Women's Health - academic.oup.com/endocrineso…
