Patient-led charity sharing lived experience to improve the lives of cancer patients and their families.
Dundee, Scotland
Joined February 2018
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#ALLIANCEScot
Implementation Gap....
The disconnect or failure to bridge the difference between planned goals, policies, or strategies and their actual, tangible outcomes in practice.
#hopetoaction
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@CancerDundee at the #ScotCanConf @ScotCancerConf Keeping lived experience at the heart of discussions
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Terrifying ......14 years since life expectancy increased and now it's on the decline..... with little opportunity to step out of the poverty that causes it #OurVoicesMatter @ALLIANCEScot @MichaelMarmot
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#OurVoicesMatter
Professionalising lived experience involvement may just ensure lived experts drive change and improvements in service delivery & design.
@ALLIANCEScot
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@ALLIANCEScot OK so #OurVoicesMatter just dropped the concept of #seismicshift in Health services on my head. @UniStrathclyde The incredible Margaret Moncrieff is so inspiring in her battle for lived experience-led and holistic care for long-term health conditions.
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#OurVoicesMatter
But that doesn't mean lived experts have a vote in decision making.
Margaret Moncrieff describes the importance of good relationship building in the absence of procedural commitment to lived experience involvement. @ALLIANCEScot @neilcgray
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