Carson Martinez retweeted
Kudos to all involved on the passage of Genetic Information Privacy Act, now law. 💯
cc: @CarsonMart @k_ringrose @BuffyWicks @TomUmbergCA @Ancestry @23andMe @EFF @ConsumerReports @EPICprivacy
Carson Martinez retweeted
FPF is seeking to hire a Policy Counsel or Senior Counsel (dependent upon experience) to lead its work on emerging questions of privacy and data protection related to health data. Learn more at the link below. fpf.org/health-policy-counse…
Carson Martinez retweeted
Thanks for the shoutout @womenknowlaw! #WomenDoKnowLaw — and tons of them are killing it in the privacy/genetic privacy arena @qramjee, @elizabeth_joh, @CarsonMart, @kingjen and more. 🧬💙
Check out @k_ringrose's piece in @BerkeleyTechLJ on the new DHS/CPB/ICE DNA collection policy: buff.ly/318vrxE
Carson Martinez retweeted
The evolving health data ecosystem poses new challenges for policymakers and industry. FPF & @iaf_org have released "A Taxonomy of Definitions for the Health Data Ecosystem" to enable a more nuanced conversation around these issues. Read more: fpf.org/2019/05/29/fpf-and-i…
Carson Martinez retweeted
Packed room for “The Ethics of Geo-Location” with @futureofprivacy ‘s Jeremy Greenberg & expert panelists - dozens or more being turned away outside. Location privacy undoubtedly one of the most prominent topics of 2019. Wow! :) #GPS19
Carson Martinez retweeted
What an incredible policy team assembled @futureofprivacy . Amazing work being done to showcase how privacy can be done while making innovative use of data. @JulesPolonetsky @CarsonMart @BrendaKLeong @gabrielazanfir @staceygraydc
Carson Martinez retweeted
Happy to share our commentary, accompanying the cover article in Nature today on part-revived pig brains. "Part-revived pig brains raise slew of ethical quandaries" nature.com/articles/d41586-0…
Carson Martinez retweeted
Start with fairness in shaping #privacy policies for data.
The “Fair Information Practices” framework has stood the test of time for 40+ years per @SavageLucia #HDpalooza
Carson Martinez retweeted
#3. Research: AG should evaluate impact of #CCPA on beneficial research w non-HIPAA data e.g. wearables; apps; genetics. While these companies should be subject to data privacy rules, some req's may pose particular challenges for researchers. 5/9
Carson Martinez retweeted
On Friday @futureofprivacy submitted comments from @ameliaivance, @CarsonMart and myself to @AGBecerra and team on the California Consumer Privacy Act (#CCPA). Read our highlights & comments here: fpf.org/2019/03/11/fpf-comme… Specifically we highlighted five areas: 1/9
Carson Martinez retweeted
.@astepanovich talks with @daniellecitron about her new paper, Sexual #Privacy @futureofprivacy #PPPM
Carson Martinez retweeted
.@FamilyTreeDNA program to provide consumer genetic data to law enforcement without legal process is unwise and risky. No real choice for users. Out of line with consensus best practices of industry leaders. More here: nitter.gq/johnverdi/status/10913…
Carson Martinez retweeted
Much has been written about #IoT devices, but not enough is said about the privacy implications these have for users with disabilities. Come to our white paper launch on Thursday, where we will be discussing just that! #DisabilityInclusion #IoTPrivacy eventbrite.com/e/the-iot-peo…
Carson Martinez retweeted
When you don’t address human bias, that bias gets automated.
Machines are reflections of their creators, which means they are flawed, & we should be mindful of that.
It’s one good reason why diversity isn’t just “nice,” it’s a safeguard against trends like this ⬇️
A new study says Amazon facial-detection technology often misidentifies women as men, particularly when they have darker skin.abcn.ws/2G2TAg7
Carson Martinez retweeted
What are some #privacy considerations for persons with disabilities using #InternetOfThings services? Come to the launch of our white paper, "The Internet of Things and Persons with Disabilities" on 1/31 to find out! Details and registration 👉 fpf.org/event/the-internet-o…
Carson Martinez retweeted
"Can #GDPR Work for Health Scientific Research?" We highlighted the challenges of processing health scientific research #data in a workshop co-hosted with @EFPIA and @the_CIPL. Read more about the workshop: fpf.org/2019/01/09/fpf-efpia…
Carson Martinez retweeted
Still looking for a #NewYearsResolution? We've got you covered! Learn how to set up the privacy controls on smart gadgets and other popular gifts. #InternetOfThings fpf.org/2018/12/21/a-new-yea…
Carson Martinez retweeted
If you have thoughts how data are exchanged among providers and payers, and often blurred distinctions between exchanges for treatment vs. payment (given payer care recommendation/coordination roles), you should opine on the OCR HIPAA RFI. federalregister.gov/document…
Carson Martinez retweeted
Join us Tuesday at @DukeinDC to learn what's next for the #HIPAA #Privacy Rule. We'll hear from FPF Senior Fellow @crozlaw + Marcy Wilder of @HoganLovells + Mario Romao of @Intel + Kim Gray of @IQVIA_US + Kirk Nahra of @WileyRein & more! eventbrite.com/e/the-hipaa-p…
Carson Martinez retweeted
The @carinalliance has released the CARIN code of conduct for how entities not covered by HIPAA can voluntarily handle health care data on behalf of consumers. Read the code of conduct: bit.ly/2SkHVwn prn.to/2P4xdIj