Helping children and young adults with #cysticfibrosis live life. Building international medical partnerships and sharing best practice across borders.
Joined January 2021
- Tweets57
- Following63
- Followers84
- Likes52
Child Health International retweeted
@ChildHealthInt1 trustee meeting this evening. Have you visited our website yet childhealthinternational.org… and given us a follow. Helping children with cystic fibrosis get the care and the life they deserve.
Child Health International retweeted
A role to make a difference? Are you the project manager @ChildHealthInt1 are looking for?
We’re looking for enthusiastic new project manager to coordinate activities between uk & overseas medical teams. If you like to travel &meet new people, can listen, learn & organise,think everyone with #cysticfibrosis deserves the very best care, read on 👉bit.ly/3lWbiqy
Child Health International retweeted
@ChildHealthInt1 A Charity Started By Roy Ridgway After My Husbands Brother Died Of #cysticfybrosis They Have Made Great Progress But Still No Cure For This Terminal Disease! -Family Sponsored 10k Fund Run
Please Donate On Link & Extend A Child's Life!
bit.ly/3rVO3hs
Child Health International retweeted
This is wonderful news. Kaftrio/Trikafta has been transformational for people but we mustn’t forget the inequalities it’s highlighted. Inequalities between countries (some of whom can’t access even standard care) and in eligibility for these types of treatments. #CFCantWait
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Child Health International retweeted
Will be reading & rereading this framework and really thinking about my role in tackling health inequalities. Recent advances in CF care & my new role as @ChildHealthInt1 trustee have highlighted health inequalities to me. This is important for every clinician.
Health inequalities are every health professional’s responsibility to tackle. Definitely more evident as our health service dealt with the covid pandemic. Www.kingsfund.org.uk/publica…
Child Health International retweeted
Regular, Sustained Exercise Helps in Managing CF, Study Suggests buff.ly/3wKznms
Child Health International retweeted
When the CF Foundation was established in 1955, there were no treatments for cystic fibrosis. Today, there are more than a dozen new treatments for CF. #CFAwareness
Child Health International retweeted
My first @ChildHealthInt1 trustee meeting. Building international #CF medical partnerships & sharing best practice across borders. Have you given @ChildHealthInt1 a follow yet? @acpcf @TheACPRC @bda_cf @ukcfpg
Child Health International retweeted
Time for a Friday Fact! The UK CF Registry’s Annual Data Report for 2019 presents a bigger, older and diverse #cysticfibrosis community. Have you read the at a glance report? Take a look today: cysticfibrosis.org.uk/the-wo…
Child Health International retweeted
We're committed to improving our knowledge of cystic fibrosis-related infections. Over the next 2 days, at a fungal workshop hosted by the Infection Research Initiative, researchers from across the globe will begin designing the largest ever clinical study for Aspergillus in CF.
Child Health International retweeted
So pleased to be appointed as a trustee for @ChildHealthInt1 who work to create international clinical partnerships to support care for people with CF. Please give this great charity a follow @acpcf and share their work.
Life expectancy for a child born with #cysticfibrosis varies hugely from country to country! @ChildHealthInt1 works with medical teams in the UK & abroad, building partnerships & sharing learning so that EVERY child has the very best chance at life.
Together, we change lives!
Child Health International retweeted
Have you the drive & passion to help us improve the lives of children and young adults living with #cysticfibrosis?
We're looking for new members of our team! Find out more about these exciting opportunities & do something amazing today! #volunteer
👉bit.ly/3oI2r9W
Child Health International retweeted
Are you raising a child with #cysticfibrosis? You may have questions about how CF affects aspects of your child’s life. Understand how to manage your child’s daily needs and find the best possible CF care. on.cff.org/3j7UrOi
Child Health International retweeted
People with #cysticfibrosis require more energy to breathe normally, fight lung infections, and make up for poor digestion. How you can work together with your CF care team to ensure you get the calories your body needs. on.cff.org/3otOlIV
Child Health International retweeted
Fabulous session from Heff our CF exercise practitioner at Frimley Park CF unit who has found brilliant and innovative ways of helping out CF patient to exercise during lockdown @FrimleyHealth
So many of you tuned into our CF Live on physiotherapy and exercise but in case you missed it we have uploaded the full session to our YouTube: ow.ly/ZAev50DjEur
Child Health International retweeted
Great #JournalClub session today @Bham_Childrens with #Respiratory & #cysticfibrosis colleagues. An evaluation of #TORPEDO study & open discussion. Presented by our #StarOfTheMonth #CFSpecialistNurse #LouiseWooldridge @BWC_NHS @WeNurses @theRCN @BwchResp @cftrust @AlanRSmyth
