Ilyce Randell (@CureCanavan) header
Ilyce Randell (@CureCanavan) profile picture

Ilyce Randell

@CureCanavan

Join the worldwide mission to cure Canavan disease. https://nitter.gq/t.co/u6FJWpP09h #CureCanavan

 United States
curecanavan.org
Joined October 2013
  • Tweets597
  • Following1.9K
  • Followers919
196Media
Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)Photo by Ilyce Randell (@CureCanavan)
#freeyoga for #RareDiseaseDay #MaxieForever patch.com/illinois/buffalogr…

Flow For A Cause

One of your neighbors posted in Neighbor News. Click through to read what they have to say. (The views expressed in this post are the author’s own.)

patch.com
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Excited to share this wonderful news with our #Canavan community! #CureCanavan #Families4TheCure facebook.com/167968669969551… curecanavan.org
Image from Ilyce Randell (@CureCanavan)
Excited to share this wonderful news with our #Canavan community! #CureCanavan #Families4TheCure facebook.com/167968669969551… curecanavan.org
Help turn the internet blue on 4/18/21 exactly one year since Maxie left this earth. Bright blue was his favorite color & we're inviting everyone to wear blue & tag us & share pictures on social media: hashtags: #MaxieForever #RememberingMaxie #CanavanAwareness #CureCanavan
Image from Ilyce Randell (@CureCanavan)
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The most painful mailing I've ever had to do. Please join us in on April 18th, 2021 by wearing blue and sharing your pictures with us on using the hashtags #MaxieForever, #TurnTheInternetBlue, #CanavanAwareness, #CureCanavan, & tag me @CureCanavan With gratitude & hope, Ilyce
Image from Ilyce Randell (@CureCanavan)
fb.me/e/1ean9kUWV #RememberingMaxie #MaxieForever #CureCanavan #CanavanAwareness
link.medium.com/DSzWHVMYxeb #Canavan #MaxieForever #CanavanDisease #ChildLoss #RareDisease #Childhoodillnesss
complexchild.org/articles/20… #canavan #canavandisease #curecanavan #MaxieForever #RareDisease
#duckduckjeep ○|||||||○
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This makes my heart so happy. Maxie's smile traveling to Jeeps all over! #duckduckjeep #duckingjeeps #MaxieForever #MilesOfSmiles #itsajeepthing #jeepers #jeepgirl #jeepnation #JeepFamily
Image from Ilyce Randell (@CureCanavan)
facebook.com/167968669969551… #CureCanavan #canavandisease #CanavanAwarenessMonth #canavanresearch #raredisease #research
Canavan Disease Research

Canavan Disease Research

Dear friends families and members of the Canavan community, Yesterday was six months since Maxie's funeral, and not a second has gone by when my heart doesn't ache to feel him in my arms again. His...

facebook.com
aaww, this makes me so happy! Another person who got one of Maxie's ducks reached out to let me know they liked it. 🐤🐤 ○|||||||○ 💙💙💙 #duckduckjeep #duckingjeeps #MilesOfSmiles #MaxieForever
Image from Ilyce Randell (@CureCanavan)
True story! 🐤🐤 #duckduckjeep #duckingjeeps #jeepgirl #jeep #MilesOfSmiles #MaxieForever
Image from Ilyce Randell (@CureCanavan)
#duckduckjeep #duckingjeeps #MilesOfSmiles #MaxieForever
Image from Ilyce Randell (@CureCanavan)
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I just ordered 200 of these cards and ducks! Local Jeep owners of all models in BG and AH, (Illinois) get ready to be ducked in honor of Maxie! 💙🐤 #duckduckjeep #duckingjeeps #MilesOfSmiles #MaxieForever #RememberingOurMaxie
Image from Ilyce Randell (@CureCanavan)
If you're coming on Saturday please try to wear blue 💙 Visitation 11am-1:30pm Service 1:30-3:00pm All the details are in the link. I miss him so much it's unbearable, but I'm grateful that we can finally have this memorial service.💔 glueckertfuneralhome.com/obi…
Glueckert Funeral Home | Arlington Heights, IL

Glueckert Funeral Home | Arlington Heights, IL

Visit Glueckert Funeral Home to start planning a funeral or cremation today. Contact us to learn how to plan for yourself or someone you love.

dignitymemorial.com
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glueckertfuneralhome.com/obi… Public memorial service for all of Maxie's friends and family, details below. Please RT and share! #RememberingOurMaxie
Glueckert Funeral Home | Arlington Heights, IL

Glueckert Funeral Home | Arlington Heights, IL

Visit Glueckert Funeral Home to start planning a funeral or cremation today. Contact us to learn how to plan for yourself or someone you love.

dignitymemorial.com
glueckertfuneralhome.com/obi…
Glueckert Funeral Home | Arlington Heights, IL

Glueckert Funeral Home | Arlington Heights, IL

Visit Glueckert Funeral Home to start planning a funeral or cremation today. Contact us to learn how to plan for yourself or someone you love.

dignitymemorial.com
Please share this information with everyone who would like to come! gofundme.com/f/remembering-o…
Donate to Remembering Our Maxie, Memorial Service July 18th, organized by Ilyce Hartman Randell

Donate to Remembering Our Maxie, Memorial Service July 18th, organized by Ilyce Hartman Randell

I just got off the phone with Glueckert Funeral Home to confir… Ilyce Hartman Randell needs your support for Remembering Our Maxie, Memorial Service July 18th

gofundme.com
Great job, everyone involved made this such a wonderful experience
𝐍𝐨𝐭𝐫𝐞 𝐃𝐚𝐦𝐞 𝐂𝐨𝐥𝐥𝐞𝐠𝐞 𝐏𝐫𝐞𝐩 (@nddons) profile picture𝐍𝐨𝐭𝐫𝐞 𝐃𝐚𝐦𝐞 𝐂𝐨𝐥𝐥𝐞𝐠𝐞 𝐏𝐫𝐞𝐩@nddons20 Jun 2020
Thank you @MediaCrew_NDCP for your important role in the ceremonies!
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