Hope for People with Dilated Cardiomyopathy. If you need support, contact [email protected] or visit our website.
Joined April 2021
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The newly redesigned DCMF website helps patients & families navigate post-diagnosis with confidence—from understanding genetics and gene testing to finding support groups, educational webinars, and specialists. No one should have to figure this out alone.
dcmfoundation.org/
Attention BAG3 patients! On November 16, join Dr. Neal Lakdawala & Dr. Jonathan Lu for a patient-friendly discussion of BAG3-associated DCM, clinical research, and ways to find support.
Register for free: dcmfoundation.org/upcoming-w…
NEW Study Location: NYU Langone Health
Learn more about this study at: geneticcardiomyopathy.org/UP…
💚 As we share this video again, we invite you to learn about the Genetic Cardiomyopathy Registry—a way for eligible participants to contribute to research. Explore the registry, find answers to common questions, and learn how to participate:
geneticcardiomyopathy.org/ge…
Last week we provided an update on our gene-specific support groups. There is a similar group for Gene-Elusive patients, which is a patient's genetic testing did not identify a disease-causing genetic variant that explains their cardiomyopathy.
Join now: dcmfoundation.org/gene-elusi…
🧬 New research is shedding light on a genetic contributor to DCM in people of African ancestry.
A Cleveland Clinic-led study found that a variant in the CD36 gene may play a significant role in DCM risk. Read more: southfloridahospitalnews.com…
Happy Halloween! We hope everyone enjoys a spooky good time with family and neighbors.
There are many tempting treats this time of year. The DCM Foundation has a resource on Diet & Nutrition if you're looking for some tips after Hallo-weekend. Learn more: dcmfoundation.org/diet-nutri…
What makes BAG3-associated DCM different from other genetic forms of heart muscle disease, and what should patients and families know about current research? Join us and two experts to find out.
Registration is free & registrants receive a recording: dcmfoundation.org/upcoming-w…
A contribution will help us to continue our efforts to support patients and their families, increase awareness of the need for genetic testing & research, and provide educational opportunities.
Every dollar helps in the battle against DCM. Give today: dcmfoundation.org/hearts-in-…
Community is a game changer for everyone on the DCM journey 💚
The DCM Foundation has organized 13 support groups for patients with specific gene variants and 1 for gene-elusive patients. Learn more: dcmfoundation.org/patient-su…
Danon is a rare genetic disease caused by a change in the LAMP2 gene. It can affect how cells recycle waste and can lead to health problems throughout the body. Because Danon is rare, knowing the basics can be an important first step.
Learn more: DanonFoundation.org
A 10-year-old with DCM experienced cardiac arrest at school and was saved by the school nurse performing. Now, he's recovering from a successful heart transplant. Read Logan's story:
wsmv.com/2026/10/21/10-year-…
A DCM diagnosis is a starting point. Your medical team provides the plan, but you are the one who manages your daily heart health. Living well with DCM is about small, consistent choices that support your heart and your outlook. For details & tips: dcmfoundation.org/managing-m…
Living with PRKAG2? Your voice matters.
Interested in learning more?
Email Shauna at [email protected] to express your interest and receive additional details. #PRKAG2 #GeneticCardiomyopathy
Bo Nemelka's story makes it clear why communicating with your family about your shared health history can improve wellbeing and save lives. Read more: dcmfoundation.org/patient-su…
Cameron Butcher is back to bike racing in the Australian Transplant games showing us how much can be done after a heart transplant. Cameron was diagnosed with DCM in 2022 and had a transplant in 2024. Read Cameron's story: bicyclingaustralia.com.au/co…
Did you know? There are two support groups on Facebook for DCM patients and families to share and connect. These are great resources for anyone looking to connect with others who can understand what they're going through.
Learn more on our website: dcmfoundation.org/patient-su…
If you received a genetic test for DCM over three years ago, there's value in getting re-tested for free. Watch Megan Sutton, NP explain why you should consider getting re-tested: youtube.com/watch?v=p1Ya-RoB…
You have the power to impact the cardiomyopathy community! Sign up for the GENETIC CARDIOMYOPATHY REGISTRY. The Registry empowers those eligible to advance research to find effective treatments and potential cures for cardiomyopathies like DCM 💚
geneticcardiomyopathy.org/re…
A 7 year old's stomach pain turned out to be hybrid cardiomyopathy: she has symptoms of restrictive and dilated cardiomyopathy. She's now using a Berlin Heart Ventricular Assist Device while waiting for a transplant. Read Essie's story:
uk.style.yahoo.com/seven-old…
"You don't want it to sneak up on you. Actually knowing that there could be an issue...it's eye-opening and you can take the proper precautions."
Cardiomyopathy impacted Adam & Kaylee's family and they shared what they learned. Find more patient stories: dcmfoundation.org/patient-st…