Paediatric Emergency Nurse Practitioner @Leic_hospital, Children’s ED and a Mum to a Myalgic Encephalomyelitis and MCAS warrior.
Quorn
Joined October 2016
- Tweets441
- Following282
- Followers285
- Likes3.5K
Debs Dakin retweeted
Coroner will be issuing a Prevention of Future Deaths report - the 1st for #ME
"There is a need to dispel the deeply entrenched view, held especially by older medics, that ME is a psychological condition." @TimesONeill #MaeveInquest
telegraph.co.uk/news/2024/09…
Debs Dakin retweeted
"There isn't a single bed anywhere in England set aside for #ME"
Poignant & eloquent piece on BBC Breakfast with @swastrosarah & @BinitaKane
The NHS urgently need to commission specialist ME services
@wesstreeting #MaeveInquiry
Debs Dakin retweeted
Today (8 August) is Severe ME Day. It's a day when we remember people who've lost their lives to ME and think of all those who are still suffering from the most severe forms of #MyalgicEncephalomyelitis. Vid link for #MedTwitter. #SevereME #severeMEday
dialogues-mecfs.co.uk/films/…
Debs Dakin retweeted
Sometimes it feels like we've been shouting into a void for the last 4 years. Health professionals who did not strive to learn how to manage this condition have a lot to answer for - frankly, there is no excuse now.
theguardian.com/society/arti…
Debs Dakin retweeted
It's World ME Day - #MyalgicEncephalomyelitis is more common than you realise. It is EVERY health professional's duty to be aware of how to work safely with #pwME
#WorldMEDay
@thecsp @thecspstudents @WorldPhysio1951 @theRCOT
A thread of resources for physiotherapists and all Allied Health Professionals for #WorldMEDay
You might work with someone with #MyalgicEncephalomyelitis in ANY specialism.
1. For those in specialist services, an in-depth book on understanding and management (with 25% off)
Debs Dakin retweeted
M.E. takes away so much from those we love.
Was pleased to lead a Westminster Hall debate @UKParliament yesterday in support of this community and very much welcomed the fresh commitments from Government. @actionforme
Debs Dakin retweeted
This is distressing footage but I'd like any AHPs to watch with the knowledge that people with severe ME can suffer extreme hypersensitivity to light. This isn't being overly dramatic. She doesn't need to "stop being upset".
#SaveCarlasLife
CW: distressing
We want you to meet Carla #SaveCarlasLife #ExposeMENow
With family's permission we're sharing some videos of her experience in West Middlesex hospital.
This first video is what happens when she is exposed to bright light. Staff won't cover the door window.
Debs Dakin retweeted
Millie is in 🏥 suffering from gastroparesis caused by severe #MyalgicEncephalomyelitis. Drs insist she has an eating disorder. There's a risk she could starve to death if she's forced to stay there + not treated properly. Pls #BringMillieHome. #DontLetMEDie @gmcuk @RCPhysicians
Debs Dakin retweeted
Millie fears she may die in hospital unless doctors start taking her severe ME symptoms more seriously. She says the hospital enviornment is 'torture' but medics 'won't listen' @MEAssociation @MEActNet
mirror.co.uk/news/health/sev…
Debs Dakin retweeted
'A Rollercoaster Of Awful Emotions': Family Speaks Out for NHS Overhaul to Prevent Deaths of Severely Ill ME Patients – Byline Times
Thank you so much @TinyWriterLaura for writing this amazing article about Millie! #severeME bylinetimes.com/2024/03/19/a…
Debs Dakin retweeted
Save Millie's life!
Another very severely ill #pwME is being mistreated & we share another call for help. Please sign & share this petition as widely as you can.
chng.it/PPKvy6j2 via @UKChange
#MyalgicEncephalomyelitis #VerySevereME
Debs Dakin retweeted
"There's a culture and attitude that M.E. doesn't exist."
For years many doctors believed M.E. was 'all in the mind' of those who were suffering. Times reporter Sean O'Neill lost his daughter Maeve 2021 aged 27 after suffering from severe M.E.
Debs Dakin retweeted
People with #MECFS had lower quality of life scores than people with other major illnesses.
Conclusion: the Quality of Life of ME/CFS patients is "significantly lower than the population mean and the lowest of all the compared conditions." #MyalgicEncephalomyelitis #MECFS
Debs Dakin retweeted
TODAY IS YOUNG HEARTS DAY 29TH NOVEMBER. Here are our candles to remember young people with ME everywhere! If you asked @tymestrust for a little gift for your child with ME it'll be there soon!
Debs Dakin retweeted
In light of the just-published nonsense in a Scandinavian journal from the CBT/GET ideological brigades--calling themselves the "Oslo Chronic Fatigue Consortium"--I thought I'd re-post this interview I did with Yale's star immunobiologist Akiko Iwasaki: youtube.com/watch?v=ASaqfaNg…
