@ERNGuardHeart

ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart. @AMC_nl

 Amsterdam, The Netherlands
guardheart.ern-net.eu/
Joined November 2018
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Don't forget to sign up & join our upcoming ❤️AEPC Heart beats for education❤️ session: ‍🫀 Aortic valve 🗓️ Wed 6 March 17:00-18:30CET ➡️ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #education #aorticvalve @ERNGuardHeart
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Registration is open for our next ❤️AEPC Heart beats for education❤️: ‍🫀 Aortic valve 📆 Wed 6 March 17:00-18:30CET ➡ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #education #aorticvalve @ERNGuardHeart
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❤️AEPC Heart beats for education❤️ Learn about the importance of ‍ 🫀 Home-monitoring and cardiac devices 📆 Wed 21 Feb 17:00-18:30CET ➡ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #homemonitoring @ERNGuardHeart
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❤️AEPC Heart beats for education❤️ continues: ‍🫀 Home-monitoring and cardiac devices 📆 Wed 21 Feb 17:00-18:30CET ➡ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #homemonitoring @ERNGuardHeart
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Join us for our next ❤️AEPC Heart beats for education❤️: ‍🫀 Heart failure transplantation 📆 Wed 7 February 17:00-18:30CET ➡ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #education #HF #heartfailure #transplantation @ERNGuardHeart
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Don't miss our next ❤️AEPC Heart beats for education❤️ hosted by @ERNGuardHeart: ‍🫀 Best treatment for long QT syndrome 📆 Wed 24 January 17:00-18:30CET ➡ Register now: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #education #longqt #arrhythmia
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It is almost time for our final ❤️AEPC Heart beats for education❤️ session in 2023! Join us on 6 Dec 17:00-18:30CET for our third session on #fetalcardiology ‍🫀 ➡ Find out more: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #VSD @ERNGuardHeart
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Join us in a few days for our next ❤️AEPC Heart beats for education❤️: ICU - Cardiopulmonary interactions ‍🫀🫁 📆 Wed 8 Nov 17:00-18:30CET ➡Find out more & register: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #education #PCICU #PICU @ERNGuardHeart
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Today marks World Restart a Heart Day. ❤️ It's a day dedicated to raising awareness about cardiac arrest and the crucial role each one of us can play in saving lives. 🦸🦸‍♂️ @HeartNationAus (1/5) 🧵
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Join us at #AEPC2023 during the "Models of Care in Nursing Within Congenital Heart Disease" Nursing Session with Separate WG on "Nursing and Allied Health Professionals". 🩺Chair: Gaby Stoffel, Switzerland 🩺Co- chair: Jennie Ryan, Ireland Learn more bit.ly/3X9pY5O
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Get ready for our #AEPC ERN GUARD-Heart February sessions! First up: ❤️AEPC Heart beats for education❤️ 5️⃣ Double outlet right ventricle (DORV) 📆 Wed 8 Feb 17:00-18:30 ➡Find out more & register: bit.ly/3OFXBse #AEPCcongenital #congenitalcardiology #YoungAEPC #DORV
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Announcing the next #AEPC @ERNGuardHeart teaching webinar: ❤️AEPC Heart beats for education❤️ 2️⃣ Coarctation 📆 Wed 21 Dec 17:00-18:30 ➡Find out more & register: bit.ly/3OFXBse #AEPCcongenital #YoungAEPC #education #Coarctation
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#AEPC, in collaboration with @ERNGuardHeart, is launching a series of free biweekly #teaching webinars ❤️AEPC Heart beats for education❤️ We will kick-off with a session on #Arrhythmia on 7 Dec 17:00-18:30! ➡Find out more & register: bit.ly/3OFXBse #YoungAEPC
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Hear from 2022 Young Patient Advocate Awardee 🏆, Danielle Drachmann, on the life-lasting impact of the Black Pearl Awards. Enter your nomination today to help shape the future of every family impacted by a rare disease. 👉 blackpearl.eurordis.org/nomi…
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10 oktober 2022 (Engelstalige) patiëntendag voor mensen met een #LMNA aanleg voor erfelijke hartspierziekte (#cardiomyopathie) voor meer informatie en aanmelden zie: lmnacardiac.org

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lmnacardiac.org
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In February 2021, we invite you to participate in our 10th annual Black Pearl Award and the #Rare2030 Final Conference. 🎉Let's celebrate our achievements and lead the way for the future of the #RareDisease community together! 👉eurordis.org/content/eurordi… #EURORDISAwards2021
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6 continents 🌏 6 portraits 🧑‍🦱 6 heroes 🦸 6 lives 👣 Meet Tristan, Angelina, Regina, Syafiq, Jon-Kristian and Harvey. They are the first hero stories of our #RareDiseaseDay 2021 campaign. These are their stories 👉 rarediseaseday.org/page/news…
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"Manifestaciones de la enfermedad y edad de aparición en pacientes con mutaciones en PLN" por el Dr Thomas Verstraelen @CardiopatiasH @ERNGuardHeart @StichtingPLN
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Great meeting in Murcia for Spanish patients and health care providers on all aspects of PLN R14del cardiomyopathy @ERNGuardHeart @AreaUnoArrixaca @CardiopatiasH @StichtingPLN . Proud to present on genetics and our research to understanding clinical variability
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This week, we have launched our first educational video! @ArthurWilde5 discusses the diagnosis and risk of CPVT youtu.be/dnheU1AARuA #ERN #CPVT #GUARDheart #RareDiseases #cardiology #euhealth @eHealth_EU
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