Elena Filipczyk (@ElenaFilipczyk) header
Elena Filipczyk (@ElenaFilipczyk) profile picture

Writes about autism, disability, trauma, grief & animals. PhD candidate. Autistic. ADHD. Probably lying down. πŸŒ±πŸ›ΌπŸ’žπŸŽΈ

Biripi & Worimi Country
Joined March 2009
Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)Photo by Elena Filipczyk (@ElenaFilipczyk)
I FINALLY made a website for my writing!!πŸ“πŸŽ‰ If you're interested in the book I'm writing about autistic shame, it would mean a lot to me if you signed up to my email-friend list. I'll send you book excerpts + personal updates on the publication journey: elenafilipczyk.com/about
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Elena v Cholesteatoma Part III: Medical Misogyny edition (cool / gross photo at the end of the thread). I had my third surgery on Wednesday (2017, 2019, 2026). I've had awful symptoms for over two years, and symptoms longer than that.
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Anyway, I'm glad I stood up for myself, and that my (young, female) GP stood with me. I am going to write her a card and send her chocolate to thank her for believing me when all those male ENTs didn't. My young, female therapist believed me too, as did my sisters and friends.πŸ’–
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After I recover, I need to finish this damn PhD. And hopefully I can have my life back. Working without pain! Writing more! Skating again! Swimming! Gym! Guitar! Socialising!
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After seven months of suffering and multiple CT scans, MRIs, and appts with doctors and my surgeon I've finallyyyy been given a surgery date 😭😭😭 September 23! I'm taking leave from work and my PhD in a few weeks. I am nervous, but now also terrified the surgery won't help πŸ’€
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Wanted to submit my PhD before surgery but it doesn't look like that'll happen. Was expecting surgery to be in November/ thesis submission end of November. Scared I'll come out of surgery feeling worse but surely not... Idk how I've gotten through this year so far.
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I've made multiple 600km round-trips to Syd to see doctors and my surgeon so hopefully this will be the last trip of the year and it'll actually help me feel somewhat normal again. This pain, vertigo, tinnitus, deafness, and exhaustion is next level.
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3 pieces of good news. 1) I did it!! It took an hour and 26 bad takes but I recorded an okay 45-second video for the Sat Paper like they asked. I think I had the confidence to do this today because: ...
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And then he smiled and nodded at the paperwork and said "this is all good". Now I'm worried I heard him wrong the first time lmao. Soz mate I'm deaf. Anyway thanks @ him for giving me some confidence today.
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Btw for anyone who doesn't know the Elena lore, this is why I was afraid of doing the video.
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