It is all about raising awareness for leukodystrophy called vanishing white matter disease (VWM) ~ while searching to find a cure...!
Joined October 2013
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If you’re passionate about making a difference, join us by reposting or tagging an influencer who would love to support this effort!
Learn more: halfamilliontobeatvwm.org
#HalfAMillionToBeatVWM #VWMResearch #InfluencersForGood
#findacureforvwm
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⏳ Just days left in 2024! Let’s end the year by making an impact. Support the “Half a Million to Beat VWM”’Every donation brings us closer to life-changing breakthroughs.
Join us now: halfamilliontobeatvwm.org 💙
#BeatVWM #EndOfYearGiving #MakeADifference #findacureforvwm
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Find a Cure For VWM retweeted
What is the diagnosis?
20%Vanishing white matter dz
16%Canavan Disease
58%Megalenc. Leukoenceph.
6%Alexander Disease
139 votes • Final resultsShoutout to Run for Nash for supporting our fight against Vanishing White Matter (VWM) Disease! Sending a VWM t-shirt to Dr. Bonkowsky as we work toward raising $500K for life-changing research. Every donation matters.
💙 Donate: vwmff.org/drbrun
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Running with pediatric neurologists in San Diego to raise $500K to fight Vanishing White Matter (VWM) Disease. Every dollar counts. Join us : vwmff.org/drbrun #FightVWM #RareDiseaseAwareness
#findacureforvwm #vwmresearch #halfamilliontobeatvwm
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Dr. Bonkowsky is running 95 miles (500,000 ft of elevation!) to support VWM research. Every mile counts in the race for a cure. 🏃♂️💙 Join us & make a difference: vwmff.org/drbrun
#EveryMileMatters #VWM
#findacureforvwm
#HalfaMillionforVWMResearch
#VWMFamiliesFoundation
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Find a Cure For VWM retweeted
PhD on the effect of nutrition on children with ADHD academictransfer.com/346639/ @werkenbijwur
Find a Cure For VWM retweeted
Inhibiting Acute Episodic Neurological Decline in Vanishing White Matter academictransfer.com/346553/ nitter.gq/amsterdamumc
Dr. Bonkowsky has climbed 438,940 feet of the 500,000-foot goal for VWM research! Help us reach the top—every donation gets us closer to a cure. 💙
➡️ Donate: vwmff.org/what-we-do
#HalfAMillionToBeatVWM #VWMResearch #DonateForACure
#findacureforvwm
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#halfamilliontobeatvwm
#halfamillionforvwmresearch
#findacureforvwm
Every step matters…every foot matters…every dollar brings us closer!
Track halfamilliontobeatvwm.org
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Dr. Josh Bonkowsky, a VWM researcher and clinician, is trying to reach 500,000 feet of running elevation gain by midnight Dec 31,2024
#findacureforvwm
#halfamilliontobeatvwm
#VWMResearch
Learn more: halfamilliontobeatvwm.org
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Find a Cure For VWM retweeted
FDA's new Operation Warp Speed initiative for rare diseases has accepted San Francisco-based biotech @calico's investigational drug ABBV-CLS-7262 for neuro in partnership w/ AbbVie as 1 of <10 in START pilot. Calico/AbbVie's eIF2B activator fosigotifator calicolabs.com/press/calico-…
Find a Cure For VWM retweeted
Shout out to our rockstar doctors, researchers who continue to research and give families HOPE!
Thank you! - ULF Board of Directors Treasurer, Donna Skwirut
#findacureforvwm
VWM Families Foundation
Find a Cure For VWM retweeted
Last week we did a story on a missing laptop from the SLC Airport. It had important medical information and the woman desperately needed it back. Yesterday, I got a call from the person who got it by mistake. What a happy ending! @KSL5TV at 5 and 6.
ksltv.com/youtube_videos/vid…