Using tech and games to improve #physiotherapy for children and young people with #CysticFibrosis funders: @RosetreesT @CFTrust @UCLPartners

London, England
Joined May 2018
We chatted to Morgan about his goal to become the first person with CF to be a professional footballer and his experiences of school and ADHD. ➡️ ow.ly/74mV50TLnto #ADHDAwarenessMonth #CF #cysticfibrosis #CFcommunity
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What a privilege to be invited to speak in this packed session and present @FizzyoCF ACT data at #NACFC2024 in Boston.
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Less than 4 weeks until #NACFC2024 Delighted to have been asked to speak in Workshop 8-PT and RT Research: Year in Review about "The impact of breath-controlled gaming on the quality of airway clearance treatments in children with CF during Project Fizzyo" @FizzyoCF
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Project Fizzyo retweeted
ARTP Annual Conference 2024 - Two Weeks To Go! There is still time to book your tickets ➡️ execbs.eventsair.com/artp-co… Don’t miss out on what is sure to be a great keynote session with Dr Sanja Stanojevic!
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Project Fizzyo retweeted
Hello!! Still looking for #cysticfibrosis #nurses and #dieticians to take part if you fancy a chat about female reproductive health in CF! ☺️
Hello! Any #cysticfibrosis clinicians able to answer a short survey about female reproductive health and #CF ? Will only take 5 minutes :) Thanks!
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Project Fizzyo retweeted
The fantastic @ffizyo paper referenced at #NACFC2023. If you haven’t read it yet, do. One of my favourite papers: erj.ersjournals.com/content/…
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It's 3 months since our @FizzyoCF @ paper was accepted by @ERSpublications erj.ersjournals.com/content/… Thanks for all the shares and discussion. If you didn't manage to read it yet, here's a one page summary:
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Airway clearance techniques are beneficial when performed as recommended, but most people spend time and energy using methods that do not improve lung function. Work is needed to increase the proportion of people doing effective airway clearance at home. bit.ly/43yDVMV
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This article investigates the effectiveness of airway clearance techniques (ACTs) in children and young people with cystic fibrosis (CF). buff.ly/3Pz5CAj
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Airway clearance techniques are beneficial when performed as recommended, but most people spend time and energy using methods that do not improve lung function. Work is needed to increase the proportion of people doing effective airway clearance at home. bit.ly/43yDVMV
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Exciting ACT @FizzyoCF results presented by @Niksfil at #ERSCongress #ERS2023
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Always pleasing to disseminate research findings .. but this one is EXTRA SPECIAL. It feels like we are beginning to crack this tough nut at last. Grateful for the phenomenal efforts of so many people who contributed to this important work! ❤️
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Project Fizzyo retweeted
Important work that puts past airway clearance studies into context as well as pointing the way to where we should go with future research. Technique is important & electronic data capture is powerful in understanding adherence including competence. One to read! @acpcf @TheACPRC
Delighted to share that our publication "Real world effectiveness of airway clearance techniques in children with cystic fibrosis" is now in press in the ERJ @ERSpublications erj.ersjournals.com/content/…
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#ERSCongress2023 Tues 4pm Poster session 490: Cystic fibrosis: disease monitoring, biomarkers, and psychosocial issues @Niksfil @FizzyoCF PA4998: Project Fizzyo: Identification of optimal pressure-length breath profiles for airway clearance techniques in children with CF
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There were two Project Fizzyo physical activity data posters by @HLDouglas at the European CF conference last week in Vienna. More info and the full posters available here: tinyurl.com/projectfizzyo #ECFS2023 #cysticfibrosis #cfweek #physicalactivity #respisbest #respiratory
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Project Fizzyo retweeted
Quantity and quality of airway clearance in children and young people with cystic fibrosis cysticfibrosisjournal.com/ar… TA: @msupedspulm #pedspulm #cysticfibrosis
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We’d love a few more people with CF or healthcare professionals from around the UK to fill out these surveys. Please help us if you can..they don’t take long! #cysticfibrosis @cftrust @ECFSConference @ECFSPhySIG @CF_Exercise
We’re developing training resources to help CF centres improve exercise provision for people with #cysticfibrosis. If you’re an adult with CF, or a healthcare professional, you can help by filling in our survey about exercise and CF. ➡️ ow.ly/IJle50NmNBK
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