Campaigning for NHS prescription for medical cannabis for Teagan & all who need it to treat epilepsy #helpforteagan
Joined October 2018
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Nominated again for @ndawards 💜
If you'd like to vote please follow the link. Thank you xx
nationaldiversityawards.co.u…
HelpForTeagan retweeted
Unable to continue the long-term costs of advanced cannabis medicines, Teagan has deteriorated, requiring intubation. Further treatments haven't been effective. We hope @DHSCgovuk considers our recommendations and brings about urgent access.
#dravetsyndrome
#epilepsy
So very grateful to be on this show tomorrow! Thank you
#BBunker #helpforteagan
Tuesday 1pm on the #BBunker Radio Show our guests are
Oliver & Lucy @prinfab
Emma @ForTeagan
All the details here ==> buff.ly/2iSC6Wq
This is the effect #Wimbeldon has on Teagan 💜 Who knew it was that entertaining 🤣 #HappyFriday
HelpForTeagan retweeted
Joining me & @julesserkin on next weeks #BBunker Radio Show our guests are
Oliver & Lucy @prinfab
Emma @ForTeagan
All the details here ==> bizradio.co.uk
So grateful to @JasonManford and @AshleyBanjo for making the time to meet Teagan today 💜 Thank you so much. Definitely recommend @yellowbrickroad - it was a fantastic show!
HelpForTeagan retweeted
#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for @Unique_charity too 😊 #idic15 #dup15q
HelpForTeagan retweeted
Spent the day interviewing parents of children left in a bleak situation with their cannabis prescriptions. Many are going to end up back in ICU. Some will die.
Because funding and manufacturing their medication in the UK isn't profitable.
The price of a child's life.
On a more positive note - 'We're off to see the wizard ' on Sunday at The @LondonPalladium. Keep an eye out for us @JasonManford and @AshleyBanjo - we'll be in the front row (for Teagan's benefit of course 😉) 💜 @yellowbrickroad #wizardofoz #helpforteagan #relaxed
For those of you who haven't seen the update on our tiktok page..... Things are extremely scary right now. We don't know what's going to happen #helpforteagan
We are scared for Teagan 💔
🚨DEVASTATING NEWS🚨
It's been confirmed today that the doctor that was hoping to step in to prescribe for Teagan is now NOT happening!! We've also been told Teagan's main oil company have closed down. This is the worst possible news we could have got 💔 #medicalcannabis
#epilepsy is now affecting Teagan's skills. I have no idea what's going to happen next month when her private doctor retires 💔 @NHSEngland need to do something desperately #medicalcannabis #helpforteagan
Today we have been told when Teagan's private doctor retires in July there is no replacement! This puts Teagan's life in danger. She needs this medication. Please help us share this. #NHS and #government need to step in. Teagan could end up back like this imminently 💔
HelpForTeagan retweeted
Finding your community can make all the difference.
We're here for you.
#MentalHealthAwarenessWeek
NATIONAL DIVERSITY AWARDS 2023 IN ASSOCIATION WITH @itvnews
Last chance to vote today!! Please vote for Teagan using this link 💜 @ndawards
nationaldiversityawards.co.u…
#NDA #NDA23 #NationalDiversityAwards #NominationsNowOpen #Vote
HelpForTeagan retweeted
I attended @cannabiseuropa last week and spoke on a panel about the continued issues around access for children to cannabis based medicines. I was humbled to hear about what happens when there’s no access, families are forced to illegally access cannabis. (1) #westandwithyou
