Diagnosed celiac Tweeting my successes - and failures - eating #glutenfree in Wash DC. These are my experiences, not advice. Always consult your doctor (M.D.).
Brookland
Joined June 2012
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Caitlin S, PhD retweeted
There's still time to join us April 3 at 7 am PDT/10 am EDT for an expert-led School Support Session on #504Plans for #students with #CeliacDisease. This free Zoom meeting is for families with students from early childhood through college age. us02web.zoom.us/webinar/regi…
Caitlin S, PhD retweeted
Now enrolling adults with biopsy-confirmed celiac disease in a phase 1b/2 clinical trial testing the investigational drug KAN-101. Must be 18-70 years old and following a gluten-free diet. Compensation is available. Learn more and see if you qualify at iqualify.celiac.org.
Caitlin S, PhD retweeted
“Researchers have carried out initial phase I safety trials of a glycosylation-modified antigen therapy in people with celiac disease—an autoimmune disease associated with eating wheat, barley, and rye—and phase I safety trials are underway in people with multiple sclerosis.” 🙏
University of Chicago: “A new type of vaccine developed by researchers at the Univ. of Chicago Pritzker School of Molecular Engineering (PME) has shown it can completely reverse autoimmune diseases—all without shutting down the rest of the immune system’
mag.uchicago.edu/science-med…
Caitlin S, PhD retweeted
Howdy! All materials contained in Salt Lick dry rub are considered gluten-free. However, gluten products are manufactured in the same facility. Hope that helps. Thank you!
Caitlin S, PhD retweeted
Reflections on 3 months of DE living celiac-wise:
I can’t find my fav gluten free beers anywhere (in stores or bars), but I’m finding way more gf products in grocery stores, gf options at coffee shops, and things like this gf ticket are a pleasant surprise and a first for me
Caitlin S, PhD retweeted
Increase SNAP Benefits for Those with Celiac - Sign the Petition! chng.it/7j5ksDps via @Change
Big Big Big Deal!
Caitlin S, PhD retweeted
Sorry I haven’t updated yet. I am still extremely ill and in horrible pain from this gluten exposure. But I should’ve been more clear originally that this wasn’t maliciousness on their part. It was ignorance & carelessness — and total indifference when I complained afterwards. 🤬
Caitlin S, PhD retweeted
I’m not sick from some unrelated issue. I called back, and they admitted that my food isn’t gluten-free despite my double-checking when I ordered. They have no clue how serious this is. Praying I don’t start having seizures any minute now like the last time this happened. 😭😱
Caitlin S, PhD retweeted
Portland, OR #Celiac & others: Do NOT eat at Kung POW! on NW 21st. They will tell you items are gluten-free that absolutely are not. Got take-out from there, and I am SO sick right now. I will make this a thread & tell what happened when I can. #GlutenFreePDX #GlutenFreePortland
Caitlin S, PhD retweeted
.@HoneyBakedHam There is so much mixed info on the internet about gluten ingredients in your ham. I used the allergen checker on your website and saw the boneless ham is gluten free, but I'm nervous. Can you clarify? Some say it isn't really gluten/wheat free.
Honeybaked Ham and Turkey is Indeed Gluten Free (GLUTEN WARNING - READ COMMENTS) glutenfreeworks.com/blog/201… #glutenfree #celiac
Caitlin S, PhD retweeted
Fill your pillowcases and Jack O’ Lantern buckets with gluten-free goodies this Halloween! Explore our 2021 Gluten-Free Halloween Treats List to make sure all your candies are gluten-free. celiac.org/gluten-free-livin…
Caitlin S, PhD retweeted
I bet you could switch to gluten free mac & cheese and no one would know! If you went 💯% gluten free, I'd 💯% eat there every week! #celiac
Caitlin S, PhD retweeted
Thanks for reaching out, Caitlin. Tic Tacs are gluten-free. You can go to tictac.com to view the nutrition information for each product.
Caitlin S, PhD retweeted
.@littleminertaco are your tacos #glutenfree (safe for celiacs)? Do you use corn tortillas that you make? Thanks! 🌮 #Brookland
Caitlin S, PhD retweeted
Did you know our menu is 100% gluten free? We use ingredients like tamari instead of soy sauce to make our food available to a wider range of SEOUL lovers❤️
Caitlin S, PhD retweeted
Check out some of the many symptoms of #celiac disease which is why it's often misdiagnosed as other conditions or results in a significant delay in getting accurate timely diagnosis. Learn more abt symptoms, diagnosis and treatment shelleycase.com/celiac-disea… #celiacawarenessmonth
Caitlin S, PhD retweeted
Why should a person with #celiac eat gluten for science? Bc you have to test a drug to replace the #glutenfree diet by eating gluten-containing foods. From @DrJSilvester @BostonChildrens at #HarvardCeliac @NationalCeliac webinar
Caitlin S, PhD retweeted
Interesting poll response from participants in todays
@NationalCeliac #HarvardCeliacProgram May webinar asking if someone with #celiac would take a #medication as a #therapy for #celiac
Caitlin S, PhD retweeted
Thank you to #celiac experts and especially the audience for thoughtful questions at final spring 2021 webinar "All Things Celiac." We'll share the slides and recording for later viewing soon @NationalCeliac @MGH_RI @MGH_Mucosalists @mghfc Fall 2021 coming!