@GoPI3Ks

A UK registered charity (1176289) for those living with PROS (PIK3CA Related Overgrowth Spectrum)

 Lancashire, UK
gopi3ks.com
Joined January 2016
  • Tweets5.9K
  • Following351
  • Followers576
1.4KMedia
This is our website for anyone who wants to check us out: gopi3ks.com
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Our mental health project is now complete & on our website to help you navigate your PROS journey. Whether you are an adult with PROS, a parent of a child with PROS, a young person or you need help navigating your journey with healthcare providers: gopi3ks.com/navigating-your-…
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Read the article here: cureus.com/articles/520122-m…
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessOct 8
Optimistic October - Day 8: Make some progress on a project or task you have been avoiding actionforhappiness.org/optim… #OptimisticOctober
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Read the PDF here: amjcaserep.com/download/inPr… or article here: amjcaserep.com/abstract/inde…
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessOct 6
Optimistic October - Day 6: Remind yourself that things can change for the better actionforhappiness.org/optim… #OptimisticOctober
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Read the review here: pubmed.ncbi.nlm.nih.gov/4237…
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Read the article here: pubmed.ncbi.nlm.nih.gov/4244…
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessOct 4
It’s a new week. Take a deep breath and remember: We can do this! 😊 Image: instagram.com/happyzodesigns
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#OptimisticOctober 😀
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessSep 17
There’s room for growth, but there’s room for rest too Image: instagram.com/twloha
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
GrauperaLab@MarionaGrauperaSep 15
If you are interested in vascular anomalies, registration for the next VAC meeting is now open: vacure-conference.net
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A more detailed explanation of HFH HemiFacial Hyperplasia: incitefulmed.com/resources/g…
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
CamRARE (Cambridge Rare Disease Network)@camrarediseaseSep 8
Join us on Wed 7 Oct for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation. 📍 Cambridge or online 🎟️ Programme & tickets: camraredisease.org/raresummi… #RareDisease #RareConditions
Rare summit branded graphic with photos of previous summits and title: Agenda is now available to view

ALT Rare summit branded graphic with photos of previous summits and title: Agenda is now available to view

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Join CamRARE on Wed 7 Oct for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation. 📍 In person or online
🎟️ Programme & tickets: camraredisease.org/raresummi… #RAREsummit26 @camraredisease
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessSep 4
Plan for the weekend: Be kind to everyone, including yourself Image: instagram.com/littlesisterss…
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Read the article here: pubmed.ncbi.nlm.nih.gov/4211…
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Self care September
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We give grants to help those living with & affected by PROS. See below a small example of what we provide funding for but happy to help in any way we can. Here’s our application form: docs.google.com/forms/d/1gMy…
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GoPI3Ks (Genetic Overgrowth PI3K Support) retweeted
Action for Happiness
@actionhappinessAug 27
You can’t pour from an empty cup. Fill your own first so you can help others Image: instagram.com/katherineherre…
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You can read the article here and also listen the article instead of reading if you wish: hcplive.com/view/genomics-ch…
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