Phyllis (@Groz_P) header
Phyllis (@Groz_P) profile picture

Phyllis

@Groz_P

DCIS 1995 ➡️ metastatic breast cancer 2008, 2 clinical trials LEE011,SRN,2 ports,2SIRT,Lymphedema,edema,paracentesis,0 tx &0 trials left (ineligible) #MBCKills

 boston area
METUP.ORG
Joined July 2012
  • Tweets9.4K
  • Following1.2K
  • Followers1.4K
995Media
Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)Photo by Phyllis (@Groz_P)
What's it like to have terminal cancer & need a clinical trial? You might be surprised. Patients' Perspectives: metup.org/wp-content/uploads…
Image from Phyllis (@Groz_P)
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RIP Phyllis Groskin. A powerful advocate for herself and her sisters and brothers in the MBC community. ⁦@METUPorg⁩ ⁦@METUPUKorg⁩. Beloved wife of @sperki. Thanks for supporting her. Carry the flame Metsters!
Image from Phyllis (@Groz_P)
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Sharing my piece "Reflections on the Boston Marathon from a Breast Cancer Oncologist (or Why I Just Don't Quit)" nwh.org/media/file/TheOncolo… … … … @newtonwellesley @mamadocsrunthis @HemOncWomenDocs #BostonMarathon2018 #Keepshowingup #CarpeDiem
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I just published “MOTHER-DAUGHTER MORTALITIES” medium.com/@neworleansinseas…
MOTHER-DAUGHTER MORTALITIES

MOTHER-DAUGHTER MORTALITIES

When I was diagnosed with metastatic breast cancer at 45 one of the worst things I had to accept was that my mother would have to watch me…

medium.com
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A #BitofBeauty from our garden. Peonies came from my grandparents in PA to my parents in NY and now me in MA, making the original plants around 80 years old.
Image from Phyllis (@Groz_P)
Image from Phyllis (@Groz_P)
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To have this much influence and this many resources at your disposal, yet still ineffectively utilizing it and benefiting only part of the affected population...its just plain sad @SusanGKomen #pinkisnotacure #fundresearch nitter.gq/METUPorg/status/100183…
METUP (@METUPorg) profile pictureMETUP@METUPorg30 May 2018
We are holding @SusanGKomen accountable on how they use donations. #Stage4needsMore
Image from METUP (@METUPorg)
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Hey @BCBSLA you decided not to cover the TACE liver treatment my radiation oncologist is recommending because he has seen it work for other patients in a position similar to mine. You won’t cover it because it’s ‘investigational’ but isn’t that how science advances?
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Phyllis retweeted
METUP (@METUPorg) profile picture
METUP@METUPorg24 May 2018
You just have to wonder why one of the largest breast cancer non-profits does not understand the sexualization of #breastcancer is not cool with anyone. What about the 30% who detected BC early & it came back to kill them? You should be ashamed @SusanGKomen & @AdCouncil #bcsm nitter.gq/susangkomen/status/999…
Susan G. Komen (@SusanGKomen) profile pictureSusan G. Komen@SusanGKomen22 May 2018
We are proud to announce Komen and @AdCouncil’s new campaign, Know Your Girls! Follow along at @_KnowYourGirls & head to KnowYourGirls.org to learn more about breast health & #breastcancer risk. #KnowYourGirls nitter.gq/_knowyourgirls/status/…
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Hey @BCBSLA why are you denying me the TACE liver treatment I need to stay alive? You say it’s investigational and won’t cover it. To me it is life extending. Obviously your profits are more important than my life.
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Check out #ShareAStoryInOneTweet You’ll need this with you:
Image from Esther Choo, MD MPH (@choo_ek)
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In the spirit of @actupny -- die-in at Living Beyond Breast Cancer calling for action around metastatic breast cancer #LBBCmetsconf #bcsm nitter.gq/METUPorg/status/987812…
METUP (@METUPorg) profile pictureMETUP@METUPorg21 Apr 2018
pscp.tv/w/baurmzFlZGpuZ3p4bE…
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Every single member of the House of Representatives is up for election in 2018. Here’s a list of the members who voted for the #GOPTaxScam #TaxScamBill #VoteThemOut
Image from ScullyResists (@Scully2022)
Image from ScullyResists (@Scully2022)
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So my #sbcinfographic I created in 2015 will be taken over by 2 chairites who won't be giving me any credit for it whatsoever (apart from in one of their "good practise" report) But yes I'm an "inspiration" Tell that to my kids when I'm dead...
Image from Jo Taylor BEM (@abcdiagnosis)
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Phyllis retweeted
METUP (@METUPorg) profile picture
METUP@METUPorg11 Nov 2017
Money is power & drug companies keep patient advocate groups & non-profits silent on drug cost by giving them a lot of it. nitter.gq/abcdiagnosis/status/92…
Jo Taylor BEM (@abcdiagnosis) profile pictureJo Taylor BEM@abcdiagnosis11 Nov 2017
Replying to @bccww @METUPUKorg @METUPorg
I have been trying to find this slide @vinayprasad82 @pash22 I think theres a lot that needs discussing here re patient groups and HCPs ....
Image from Jo Taylor BEM (@abcdiagnosis)
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“Mass shootings are scary and impossible to predict. Except for this one big thing that’s a really good predictor.” youtube.com/watch?v=iBuKbe40…
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Joan, it’s hard to respect your work when it specifically excludes women with MBC and rejects our need for research on metastasis.
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Amazing! Congrats to Dr David Ryan and Dr Lecia Sequist! nitter.gq/mghcancercenter/status…
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