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Health Care Access Research and Developmental Disabilities: a research partnership to improve the health of Canadian adults with developmental disabilities.

Ontario, Canada
Joined June 2012
Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)Photo by H-CARDD (@HCARDD)
H-CARDD retweeted
🫶Thank you to everyone who joined us for Finally Seen: From Diagnosis to Daily Life! Special thanks to our collaborators: Health Canada, @ScienceUpFirst, @WHRCluster, womenmind™ and CAMH’s Azrieli Adult Neurodevelopmental Centre! 🔗Learn more: camh.ca/en/camh-news-and-sto…
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Today, Ombudsman Paul Dubé published his report, Lost in Transition, revealing how the province’s systemic failure to help people with complex developmental disabilities and high needs has left too many to suffer for unnecessarily long periods in hospital. (1/4)
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H-CARDD retweeted
Read our joint statement with @ReenaFoundation in response to yesterday's report from the Ontario @Ont_Ombudsman about the urgent gaps facing Ontarians with #developmental #disabilities. Read our full statement:
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Excited to share some @CAMH_AANC and @HCARDD mental health resources and tips tomorrow evening with @CdnDownSyndrome (still time to register for this free event)
Don't miss Managing Your Mental Health with Dr. Yona Lunsky of CAMH tomorrow at 7:00pm Eastern. If you've already registered, check your inbox for your link. If you'd like to join us, visit buff.ly/4b5rJHf #MentalHealthMatters #DownSyndrome
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H-CARDD retweeted
Check out the latest must-read report from @HCARDD showcasing innovative practices for transitioning ALC patients with dual diagnoses from hospital to homes across Ontario! Read here: ow.ly/yXoq50Tkcb3 #KnowledgeExchange #Healthcare #ALC #TransitionCare #Ontario
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Thank you to @StandUpAli for hosting the terrific Canadian launch of @ManniCoeWrites and Reuben Coe's memoir brother. do. you. love. me. The Coe brothers were brilliant, and the turnout was fantastic! If you missed it, you can watch the recording here: youtube.com/watch?v=RVVvDtKq…
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At TDRA’s recent event, we included a special presentation on the intersection of #intellectualdisabilities and #dementia. This talk's been distilled to its key points here: bit.ly/455rQRr. Thank you @yonalunsky and team for the partnership! #NAAW2024 @HCARDD @CAMH_AANC
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🧵Big day! Learn about our landmark Canadian study on pregnancy and disability led by @HilaryKBrown @ICESOntario @UTSCresearch @uoft_dlsph @CAMHnews #NationalAccessAbilityWeek #NAAW2024
Over the last 7 years, our team has undertaken the largest study of disability and pregnancy in Canada. We analyzed data on ~150,000 births to people with disabilities and talked to 62 people about their experiences of pregnancy care. 1/16
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Read this thread and go to the @ICESOntario to view the full report with an Easy Read version developed together with @hcardd advisors. Key part of this project was learning with and from ppl w disabilities - And that includes making our knowledge products accessible
Replying to @HilaryKBrown
Today, we release our final report: ices.on.ca/publications/rese… 2/16
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Another great day together with our friends from @BethServices @HCARDD at the @SOOntario #SpringGames2024 introducing athletes to Steffi easy-to-understand health information: steffihelps.ca/home/
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Just in time for National #AccessAbility week next week - Check our the @InclusionCA resources we developed together with @PeopleFirstCA and us @CAMHnews @CAMH_AANC - because we need to communicate things so everyone can understand!
The final resource created from our recent accessibility project are best practice info sheets, explaining how to use Easy Read documents, videos, audio, images, & more to make information accessible to people w/ intellectual disabilities. Check them out! bit.ly/3QENplZ
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📢 @HCARDD / @CAMH_AANC is looking for participants for a new study focused on people with an intellectual disability and their families. For more details and to get involved, check out the poster below and fill out the form: redcap.link/9uja13v6
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So pleased that @BJLD_Wiley encouraged a video abstract and published our easy read with our @CAMHResearch @HCARDD @SurreyPlaceON paper. This is what accessibility of research is really about. Loved working with our great team on this study, including the accessible summaries.
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H-CARDD retweeted
Staff shortages and delays in care highlight the urgent need to address the challenges faced by alternate level of care (ALC) patients in Ontario. @HCARDD and @CAMHResearch have developed guidance in response to this issue: camh.ca/en/professionals/pro… #BrainAwarenessWeek
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We're releasing a toolkit to transform how physicians support mental health in adults with intellectual & developmental disabilities. After collaboration with professionals, caregivers & people with #IDD, we're proud to share this essential resource: bit.ly/3Thtpry
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Check out this Easy Read guide for a new paper published by Yousef Safar! In this guide, we learn about ongoing challenges faced by Canadian adults with intellectual disabilities during waves 2 and 3 of the COVID-19 pandemic. Read the full paper here: journals.sagepub.com/doi/10.…
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👋 We're hosting a free Resource Clinic on February 29! Adults with developmental disabilities & caregivers will have the opportunity to meet with our staff one-on-one to ask questions, get advice and learn about available supports in #Toronto. Sign up: bit.ly/499gcGl
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Our teaching team, comprised of family caregiver and self-advocate advisors, is gearing up to instruct mental health care providers on how to work together to improve communication in mental health care settings. Stay tuned for more! #CAMH #AANC #IDD #mentalhealth
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Many siblings of a person with a disability are unprepared for the transition to caregiver and lack the resources to succeed with their new responsibilities. If you are a sibling, learn more by watching our Webcast and answering our 3-question survey ⬇ #Siblings @NikitaHayden
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