Haemophilia Chartered Physiotherapists Association

United Kingdom
Joined May 2018
Replying to @HCPA11
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Insights from @anaboban_ at the #EHC2026 SLAM session, bringing the survey findings into the wider conversation around gene therapy
🧬 Gene therapy: @EAHADnews survey results at #EHC2026 SLAMS. Prof @anaboban_ presents the EAHAD survey results, offering insights into perspectives on #GeneTherapy. A topic at the intersection of innovation, expectations, & patient experience.
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HCPA retweeted
🩸 Two weeks left to submit your abstract for the 20th EAHAD Congress in Brussels! Share your latest work before the deadline, 21 October 2026: eahadcongress.com/abstract-s…
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#Elearning🎓 Managing pregnancy in women with VRCFD requires more than a one-size-fits-all approach. Our latest e-learning module brings together clinical and psychosocial perspectives to explore key challenges throughout pregnancy and childbirth: academy.eahad.org/eahad/2026…
Explore pregnancy & childbirth in women with VRCFD, from haemostatic changes, miscarriage, and PPH to Factor XIII/VII deficiency management, treatment, delivery planning & psychosocial care. 🎓 academy.eahad.org/eahad/2026…
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📢 EHC joins @ERNEuroBloodNet & @EAHADnews for a webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr @OmidSeidi 🗓️ 10 Sept 2026 ⏰ 17:00-17:45 CEST 👉️ Register: buff.ly/oVWgIlZ
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Congratulations @WillMcKeown 👏🏼👏🏼
🎉 Congratulations to William McKeown, newly elected EHC Vice-President! A #BleedingDisorders patient advocate & Consultant Geriatrician, he'll now work alongside President Tatjana Markovic to lead the EHC forward. 👏
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It's just two weeks until our Parents Conference! Confirmation packs went out yesterday by post or email, depending on your preference. We can't wait to see everyone there! ☺️
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We offer our members a variety of services and supports including: 👉Events 👉Outreach 👉Education 👉 Advocacy Find out more below or visit our website: haemophilia.ie/services-and-…
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Another very successful Annual Educational meeting. Thank you to all invited speakers, our @HCPA11 attendees, and our superb committee members who made it possible.
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How many patients are still living with a bleeding disorder diagnosis that remains unexplained? BDUC and ultra-rare bleeding disorders continue to challenge haemostasis care, from missing diagnoses to complex laboratory assessment and rare variants such as thrombomodulin and Factor V East Texas or Amsterdam. 🎥 Watch the latest e-learning module: academy.eahad.org/eahad/2026…
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We acknowledge the achievement of our Physiotherapists Committee members, whose article “A clinical practice guideline for primary care physiotherapy in patients with haemophilia” has been ranked among the top 10% most-viewed papers published by the @haemophilia_jnl in 2024. Read the full article: eahad.org/wp-content/uploads…
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Now underway in Less Bleeds, More Life? A New Era of Care: Maria Elisa Mancuso, MD, PhD #Italy discusses today’s expanding treatment options and what they mean for real-life outcomes, joint health, and wellbeing for people with #BleedingDisorders. #WFHCongress2026
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In MSK Clinical Cases, healthcare professionals are collaborating in interactive roundtables, exploring musculoskeletal challenges in #BleedingDisorders through real-world cases and shared expertise. #WFHCongress2026
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Congratulations to the winners of the Christine Lee Young Researcher Awards 🏆 🥇Best Free Paper: Arianna Colombo, #Italy 🥇Best Poster: Ilenia Calcaterra, #Italy These award-winning presentations highlighted innovative research advancing care for #BleedingDisorders.
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🎙️ Continuing the conversation on Factor VIII! As innovations such as emicizumab, rebalancing agents, and gene therapy continue to transform care, what is the place of FVIII today, and where is it heading next? 🎧 Catch up on the discussion: open.spotify.com/episode/6AN…
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HCPA retweeted
What if pain is not only physical, but remembered? In this episode, Anna Wells explores how traumatic pain memories can shape the way pain is experienced today in people with haemophilia and allied bleeding disorders. 🎧 Listen now to the podcast: open.spotify.com/episode/31e…
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HCPA retweeted
🎓 Only 2 weeks left to apply!
🎓 The 2026 EAHAD Research Grants Cycle is open! We encourage ambitious researchers in haemophilia and allied disorders to apply and take the next step in advancing innovation and collaboration within our European community. For full details and to apply: eahad.org/research-grants/
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HCPA retweeted
Tune in now to our latest Meet the Author interview with Claire Forde, a specialist Occupational Therapist working in bleeding disorders, and Paul McLaughlin, PhD. 🎧 On Spotify: open.spotify.com/episode/6Zu…
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