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HOPEoutcomes

@HOPEoutcomes

400+ people, from 50+ countries, have developed a minimum data set for future #preeclampsia research Summary report: https://nitter.gq/t.co/joq0RlplXM

dropbox.com/s/vwg27ru0edq46ly/%40HOPEoutcomes.pdf?dl=0
Joined April 2020
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400+ people, from 50+ countries, have developed a minimum data set for future pre-eclampsia research obgyn.onlinelibrary.wiley.co…
Image from HOPEoutcomes (@HOPEoutcomes)
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Really important - what is the solution? (Oucourse I would say @HOPEoutcomes @COMMIToutcomes @EndoOutcomes ...) – at Stratford, London
The BMJ (@bmj_latest) profile pictureThe BMJ
@bmj_latest27 Aug 2020
New #BMJResearch investigates missing outcome data in systematic reviews. When applying plausible assumptions to the outcomes of participants with definite missing data, the median change in relative effect estimate was as high as 7.0%, find @Elie__Akl ow.ly/uV0a50Bamor
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Many people from across the globe helped us
Image from Dr James M N Duffy (@DrJamesMNDuffy)
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The standardised definitions for the #preeclampsia core outcome set (@HOPEoutcomes) have been published today by @ISSHP1 Pregnancy Hypertension: sciencedirect.com/science/ar…
Image from Dr James M N Duffy (@DrJamesMNDuffy)
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We are really grateful to the steering group who have supported @HOPEoutcomes
Image from Dr James M N Duffy (@DrJamesMNDuffy)
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Consensus on measurements for the pre-eclampsia core outcome set (@HOPEoutcomes) will help to ensure consistency across future pre-eclampsia research.

Standardised definitions for the pre-eclampsia core outcome set

Consensus on measurements for the pre-eclampsia core outcome set will help to ensure consistency across future pre-eclampsia research.

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" It is becoming increasingly evident that sharing data demands the collection of appropriate data, standardized outcomes and is greatly facilitated by harmonized datasets
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" Further, institutions and funding agencies have not rewarded sharing data and in fact, being one author of many in a large study has been considered of minimal value
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" What can be done to facilitate data sharing? The first step is mindset. Very few investigators in the past have performed studies with the consideration that the value of their findings would be increased if they could be shared.
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Great @American_Heart editorial by @malamo512 and Jim Roberts @MageeWomens discussing the importance of harmonising data across hypertension in pregnancy research ahajournals.org/doi/10.1161/…

White Coat Hypertension in Pregnancy | Hypertension

ahajournals.org
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#WorldPreEclampsiaDay 22 May 2020 @BJOGTweets publishes the @HOPEoutcomes study: obgyn.onlinelibrary.wiley.co… @CoreOutcomes, a minimum data set for pre‐eclampsia research. #CheckKnowShare
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HOPEoutcomes retweeted
BJOG (@BJOGTweets) profile picture
BJOG@BJOGTweets22 May 2020
Today is #WorldPreeclampsiaDay2020 Published in BJOG from @HOPEoutcomes: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38enD #PreeclampsiaAwareness
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HOPEoutcomes retweeted
BJOG (@BJOGTweets) profile picture
BJOG@BJOGTweets22 May 2020
Today is #WorldPreeclampsiaDay2020 Published in BJOG from @HOPEoutcomes: A core outcome set for pre‐eclampsia research: an international consensus development study fal.cn/38e7J #PreeclampsiaAwareness #preeclampsia
Image from BJOG (@BJOGTweets)
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Delighted healthtalk.org/preeclampsia features healthtalk.org/pre-eclampsia… @healthtalkorg
Action on Pre-eclampsia (APEC) (@APEC_UK) profile pictureAction on Pre-eclampsia (APEC)@APEC_UK19 May 2020
The new APEC newsletter will be hitting your inbox very soon. If you don't subscribe then please have a read here and see what is happening for World Pre-Eclampsia Day 2020 this Friday mailchi.mp/apec/today-is-wor…
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You might find this resource from @healthtalkorg useful @kaytuna2 and @JamesMNDuffy have been instrumental in this and APEC are pleased to support it healthtalk.org/pre-eclampsia… #WorldPreeclampsiaDay #CheckKnowShare
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The @healthtalkorg #preeclampsia research study has explored women’s experiences of self monitoring #BP in pregnancy healthtalk.org/pre-eclampsia… – at Stratford, London
Group B Strep Support (@GBSSupport) profile pictureGroup B Strep Support@GBSSupport22 May 2020
It's #WorldPreEclampsiaDay #CheckKnowShare @APEC_UK are urging pregnant women to carry out home blood pressure testing: CHECK your blood pressure, KNOW your blood pressure and SHARE that with your midwife or GP. Find out more action-on-pre-eclampsia.org.…
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Good morning - today is World Pre Eclampsia day - please check out resources page with lots of new information action-on-pre-eclampsia.org.…
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It’s world pre-eclampsia day ! Thinking of women affected and thanks to those who continue tireless efforts to improve management @APEC_UK @ProfAsmaKhalil @marcusinstroud @OBSevidence @crustymcrusty @LucyChappell2 @RCObsGyn @FIGOHQ #checkknowshare
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A core outcome set for pre-eclampsia research: An international consensus development study. ncbi.nlm.nih.gov/pubmed/3241…
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(9) Download the summary report from dropbox.com/s/vwg27ru0edq46l…
Image from Dr James M N Duffy (@DrJamesMNDuffy)
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topics include: (1) Realising there is a high blood pressure problem in pregnancy (2) Experiences of self-monitoring blood pressure in pregnancy (3) Making decisions about labour, induction and birth (4) Emotions during and soon after pre-eclampsia
Image from Dr James M N Duffy (@DrJamesMNDuffy)
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