Herefordshire Community Learning Disability Team, part of @HWHCT_NHS. Please note this account is not monitored outside of usual working hours.
Herefordshire
Joined May 2021
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Herefordshire Community Learning Disability Team retweeted
Our #LeDeR deep dive on genetic and chromosomal conditions in people with a learning disability is now available.
kcl.ac.uk/ioppn/assets/pdfs/…
Further work in terms of academic publications is under way and will be updated.
@KingsIoPPN
Herefordshire Community Learning Disability Team retweeted
People with a learning disability should be at the heart of research about their lives and healthcare.
Harry Roche, Research Advisor at Mencap, explains why people with a learning disability shouldn’t just take part in research, but help lead it: youtube.com/shorts/cj_xUZJ7q…
Herefordshire Community Learning Disability Team retweeted
She listened to people with a learning disability and their families as they shared their experiences of social care, and the ways it needs to be improved for those who need it.
Thank you @itvnews for capturing the need to improve adult social care: brnw.ch/21x5Ond%0A
Herefordshire Community Learning Disability Team retweeted
Our new paper in @BMJ_Open uses qualitative analysis to investigate how DNACPR decisions for people with a learning disability were not followed as intended in emergency contexts because of challenges in communication and documentation.
bmjopen.bmj.com/content/16/6…
@KingsIoPPN
Herefordshire Community Learning Disability Team retweeted
Beyond the annual reports, our research goes deeper. Our Avoidable Cancers and DNACPR deep dives are out now, with further deep dives on, vaccination barriers, and genetic conditions coming soon. 📊
Read the findings: kcl.ac.uk/research/leder
#LeDeR #ClinicalResearch @KingsIoPPN
Herefordshire Community Learning Disability Team retweeted
The latest LeDeR Annual Report is OUT NOW. 📢Read it here
Report: kcl.ac.uk/ioppn/leder/leder2…
Appendices: kcl.ac.uk/ioppn/leder/leder-…
Priorities for implementation: kcl.ac.uk/ioppn/leder/leder2…
Key infographics: kcl.ac.uk/ioppn/leder/leder2… #LeDeR #NHS
#LearningDisability #Autism
@KingsIOPPN
Herefordshire Community Learning Disability Team retweeted
New figures out today show that people with a learning disability are dying, on average, 19 years younger compared to the general population and they are twice as likely to die avoidably.
These are not just statistics, these are real people, and real lives lost too soon.
Herefordshire Community Learning Disability Team retweeted
Can you help with this study about pain in young adults who have Down's syndrome?
Please scan the QR code or contact the email provided on the poster if you'd like to get involved.
*Please note that the DSA supports the aims of this study but any text describing/advertising the study is provided by the research team.
Herefordshire Community Learning Disability Team retweeted
News. RCN publishes recommendations to save the learning disability nursing workforce.
The report assessed the current state of learning disability nursing to understand the risks facing the profession and make recommendations to improve its future.
learningdisabilitytoday.co.u…
Herefordshire Community Learning Disability Team retweeted
@theRCN has warned that the number of learning disability nurses has fallen by a third since 2009.
@jon_sparkes OBE said: "If we are serious about tackling health inequalities, we must urgently protect, invest in and grow this vital workforce."
brnw.ch/21x3qoq
Herefordshire Community Learning Disability Team retweeted
Online Support Group for Families of People who have Down’s syndrome Aged 40+.
Thursday 28 May 2026 | 10.30-11.30am | FREE
This new support group is for parents and siblings who support a person age 40 and over.
The group will involve facilitated discussions on relevant issues with occasional guest speakers.
Please sign up here: downs-syndrome.org.uk/our-wo…
Herefordshire Community Learning Disability Team retweeted
Parent Support Meeting – Down’s syndrome with Complex Needs
Online Event | Tuesday 2 June 2026 | 10.30am – 12noon | FREE
Just a reminder to sign up to this online event if you haven't already!
Are you a parent/family carer of someone who has Down’s syndrome and complex needs age 4 years and over?
By complex needs we usually mean that a person has an additional diagnosis such as, but not exclusively autism, ADHD and/or complex multiple health needs.
Our regular meetings enable parents and family carers to share information and experiences and to guide DSA work.
Please sign up here: downs-syndrome.org.uk/our-wo…
Herefordshire Community Learning Disability Team retweeted
A research team from the University of Leeds would like to hear from UK-based healthcare workers to help them explore how they experience communication in their daily work.
Further information can be found here: downs-syndrome.org.uk/news/n… and on the flyer.
Herefordshire Community Learning Disability Team retweeted
It's 1 week until our FREE webinar how to manage difficult behaviours using non-violent resistance in families with neurodiverse members.
Sign up learningdisabilitytoday.co.u…
ALT Image of colourful paper doll chains. Text says: Free webinar how to manage difficult behaviours using non-violent resistance Wednesday 13 May, 1 to 2pm BST
Herefordshire Community Learning Disability Team retweeted
Have your say on our Community Activities consultation which sets out plans for a new and improved way of providing community activities for adults with extra care and support needs
The consultation runs until Tuesday 2 June
For more and to take part, visit 🔽
orlo.uk/8RdGO
ALT Two men laughing together, with text overlay about a community activities consultation by Herefordshire Council.
Herefordshire Community Learning Disability Team retweeted
Menopause and Down’s syndrome -
Research has shown that women who have Down’s syndrome experience menopause up to five years earlier.
This article by Dr Elizabeth Herrieven looks at perimenopause, (which may happen in women who have Down’s syndrome between ages 36 and 42) including common symptoms and treatment.
Herefordshire Community Learning Disability Team retweeted
Clive Treacey was failed in life, but his family are ensuring there is a lasting legacy in his name.
For #worldautismawarenessday, learn more about the Clive Treacey Checklist: sudep.org/checklist-must-be-…
#SUDEP #epilepsy #epilepsyawareness
Herefordshire Community Learning Disability Team retweeted
News. A new painless method for blood tests, currently being trialled by University Hospitals of Morecambe Bay NHS Foundation Trust, could assist people with learning disabilities who are afraid of needles, pain, or clinical settings.
learningdisabilitytoday.co.u…
Herefordshire Community Learning Disability Team retweeted
It's the start of Down’s Syndrome Awareness Week 2026! 🧦💚
Make sure to show your support and celebrate from the 16 to 22 March 2026 (World Down Syndrome Day is on the 21 March.)
Join with us and with people around the world to stand Together Against Loneliness! Simple, small things – like a smile, a conversation in the queue for the bus, taking time to listen, making simple changes to the way you do an activity – can all make a huge difference.
Remember, we'd love to see your photos/videos and hear about how you are spending your time this week. Please send them to [email protected] if you are happy for them to be used on our social platforms.
For all things Awareness Week such as where you can get your socks/badges, fundraising information, colouring sheets and more, click here: downs-syndrome.org.uk/our-wo…
#WorldDownSyndromeDay #TogetherAgainstLoneliness #LotsOfSocks
ALT Image of our graphic for Awareness Week and World Down Syndrome day. Image of a teenage boy and girl at their prom. The boy has Down's syndrome.
Herefordshire Community Learning Disability Team retweeted
We're excited to share that with @PavPub we're hosting a FREE online webinar on non-violent resistance and neurodiversity. The webinar, introduces NVR as a therapeutic, parent-focused approach for neurodivergent families. Find out more learningdisabilitytoday.co.u…
ALT Image of colourful paper doll chains. Text says: Free webinar: Non-Violent Resistance and Neurodiversity Wednesday 13 May, 1 to 2pm BST