IH Awareness Week

After 13 years, Idiopathic Hypersomnia Awareness Week (2013–2025) is concluding. What began as a small community-led initiative became a global awareness effort. Thank you to everyone who helped grow this movement. Michelle Chadwick Advocacy & Awareness continues: @Hyper_Sleep

Whether you’re in Chilliwack Canada, Luxembourg, Croatia, Peru, Scotland, Australia, or Butler County Pennsylvania - whether you’ve been living with IH for decades or just received your diagnosis - we see you. You are not alone. Thank you for being part of this global community.

Hi I'm Michelle from Brisbane, Australia. I am #MoreThanIH. I am also a sleep health advocate, researcher, speaker & mum to 2 amazing young adults (& 3 cute fur babies). I enjoy listening to music and learning to paint with water colours. What is IH? > bit.ly/IHFacts

Idiopathic Hypersomnia is a chronic neurological sleep/wake disorder that often doesn’t respond well to current treatments. Many people continue to struggle with debilitating symptoms. People with IH deserve better understanding, more effective treatments, and improved outcomes.

Despite having extraordinary amounts of good quality sleep people with IH are in a constant state of sleepiness. But IH is much more than that. IH can cause a range of debilitating symptoms including cognitive dysfunction (brain fog) Learn more: hypersomnolenceaustralia.org…

One of the worst things someone with #IdiopathicHypersomnia (IH) can hear is "I'm tired too". IH is a lot more than just feeling 'tired'. Learn more > hypersomnolenceaustralia.org… IH FACTSEET > bit.ly/IHFacts #LivingwithIH #IdiopathicHypersomnia

"Being judgmental of us doesn’t help our situation; in fact it only makes it worse. We feel bad enough about what we can’t achieve and what we miss out on." Read More: hypersomnolenceaustralia.org… #IdiopathicHypersomnia #LivingwithIH

Two of the often debilitating symptoms of IH include: 📍 Cognitive Dysfunction. 📍 Automatic Behavior. These symptoms can affect work, relationships, and safety and are often misunderstood or dismissed. What is #IdiopathicHypersomnia? bit.ly/IHFacts

Imagine spending as much as 50 of your 75 years asleep and the remaining 25 years fighting to wake up and struggling to stay awake! For many people with Idiopathic Hypersomnia this is their reality. What is #IdiopathicHypersomnia? > hypersomnolenceaustralia.org… #LivingwithIH

When I said this back in 2014, I had no idea how many people around the world felt the same way... it is deeply frustrating that, even now, there’s still no medication that effectively treats this distressing & debilitating aspect of IH." - Michelle Chadwick, creator of @IHAWeek