We empower Canadians with primary immunodeficiencies to live well. Support, Advocacy, Education *Fmr. Canadian Immunodeficiencies Patient Organization (CIPO)
Canada
Joined October 2014
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ImmUnity Canada retweeted
Brampton City Council proclaims April 22 to April 29 as World Primary Immunodeficiency Week.
We recognize delegates from @ImmUnityCanada and their efforts in raising awareness, amplifying the voices of those affected and driving meaningful action to improve diagnosis and care.
ImmUnity Canada retweeted
A missed, delayed, incorrect, or miscommunicated diagnosis can result from
- incomplete medical history,
- lack of trained staff,
- Poor communication,
- equipment failure,
among other factors.
Addressing these issues will help protect #PatientSafety 👉bit.ly/WPSD2024WHO
ImmUnity Canada retweeted
I was missing the hugs with our little champions! Thank you @ImmUnityCanada for a wonderful day!
ImmUnity Canada retweeted
Wonderful Dr. Gina Lacuesta talking about SCIG and IVIG at the Atlantic Education and Awareness Day in Halifax! @ImmUnityCanada
ImmUnity Canada retweeted
It is always eye-opening to hear about our patient's life stories and how necessary it is to keep hearing them. Thank you @ImmUnityCanada for bringing this event to Halifax!
ImmUnity Canada retweeted
Glad to have been able to present ImmUnity Canada’s Meaghan Mitchell with our proclamation for World Primary Immunodeficiency Week (April 22-29) at my Community Drop-In on Monday (April 29). ImmUnity Canada helps empower individuals impacted by immunodeficiency disorders to live well through education, support, advocacy, community-building and research. To learn more, please visit immunitycanada.org
ImmUnity Canada retweeted
Today marks the starts of #WorldPIWeek ! Let's take this opportunity to recognize those affected, as well as the efforts of so many trying to make a difference! @Info4PI @IDFCommunity @ImmunoCanada @ImmUnityCanada #WPIW #Immunedeficiency
Today kicks off #WorldPIWeek, and this year, we are working towards our mission in loving memory of Vicki Modell, global patient advocate and leader of World Primary Immunodeficiency Week. Join us this week in commemorating Vicki and celebrating #WPIW. 💖 #INFO4WPIW
ImmUnity Canada retweeted
At the request of @ImmUnityCanada, the City of Vaughan has proclaimed April 22 to 29 World Primary Immunodeficiency Week to raise awareness of primary immunodeficiency disorders. To learn more about City proclamation requests, visit vaughan.ca/ProtocolServices
ImmUnity Canada retweeted
Our PID Life Index data shows that many patients with #primaryimmunodeficiencies cannot access diagnosis and or immunoglobulin treatment without financial hardship.
The #HealthForAll objective should include people with #rarediseases.
👉 pidlifeindex.ipopi.org
#UHCDay
ImmUnity Canada retweeted
📢 Last chance to take our survey! Deadline October 15.
Living with a primary immunodeficiency? We'd like to hear how the pandemic has affected your health and quality of life.
The survey is available in several languages.
bit.ly/45ohrPY
ImmUnity Canada retweeted
Good news! You can still join the #YouAreMyMedicine campaign, running until Oct 6. 🩸
To support, record a short video with the phrase 'You are my medicine'. 🗣️ Feel free to share how important plasma donors are for those who rely on plasma-derived medicines.
#IPAW2023
ImmUnity Canada retweeted
📋 Survey alert: Primary immunodeficiency in the post-COVID-19 world!
Are you a patient with PID? Help us understand the lasting effects of the pandemic on your health and quality of life.
OBS! Extended deadline: Sep 30 📆
bit.ly/45ohrPY
ImmUnity Canada retweeted
Thank you for celebrating International Neonatal Screening Day!
As #INSD comes to a close, it’s important to remember that neonatal screening can be a life-changing & life-saving intervention for those with treatable rare diseases
That’s why #NeonatalScreeningMatters
ImmUnity Canada retweeted
Canadians should have access to the healthcare they need, regardless of where you live or if you can’t afford to travel. We’re committed to easing the stress of getting there by providing families with free flights and accommodations. Learn more at hopeair.ca
ImmUnity Canada retweeted
There are over 450 different genetic disorders underneath the Primary Immunodeficiency (PI) umbrella ☂️ The most common is called Common Variable Immunodeficiency or #CVID. Learn more about the different types of PI at l8r.it/U5Lw 🧬
ImmUnity Canada retweeted
The #immunesystem: it's our only defense, but it doesn't work for everyone. Some people are born with immune systems that don’t work very well, or even at all, due to a #PrimaryImmunodeficiency (PI). Learn more about how your body keeps you healthy at l8r.it/ku4R 🦠💥
ImmUnity Canada retweeted
📽 Did you know that we are currently working on a new mini-documentary?
Get ready for it by watching the latest one on the crossover of primary immunodeficiency and autoinflammation.
youtube.com/watch?v=TQbItYSG…
ImmUnity Canada retweeted
"There was nothing wrong with him, except he got sick a lot." We hear these words all too often from parents of children with Primary Immunodeficiency (PI). Learn the 10 Warning Signs at info4pi.org/library/educatio… and share them with your community. You could help save a life! 💖
ImmUnity Canada retweeted
Over 100 delegates from 34 countries attended IPOPI's latest Global Patients' Meeting in Sweden.🌏
There is no better platform for patient representatives to discuss the latest developments affecting #primaryimmunodeficiency patients.
🔗bit.ly/3IvEhgi
ImmUnity Canada retweeted
Gastrointestinal complications are sometimes the first indication of primary immunodeficiency: bit.ly/3Cn7O8a
