Bit of patient knowledge/experience 2 transplants 39yrs Dx Wilson's disease. Creaky joints. Complex illness Coproduction. QI #RareDisease #Candour. Like history
N Ireland
Joined June 2012
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In past 2 weeks I was dropped at the door of BCH Tower Block, Belfast.
Made my way to the 11th Floor.
A nurse walked me down to my family 5 days later after a second kidney transplant.
Again indebted to a donor, their family & the magnificent BCH multi-disciplinary renal team.
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Newborns are suffering because RFK Jr persuaded their parents refuse vitamin K injections. And for no good medical reason.
New: As more parents reject a long-standard shot for babies, hospitals are seeing cases of vitamin K deficiency bleeding — once considered virtually eliminated. Doctors don’t always recognize or know how to treat the life-threatening condition. propub.li/48589vI
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Gardaí and other emergency services are at the scene of a serious road traffic collision in Dún Laoghaire. It appears a car mounted the footpath outside the shops and hit a number of pedestrians on the Oliver Plunkett Road near the junction with Kill Avenue rte.ie/news/ireland/2026/110…
It’s not too late to do something to improve patient safety & decrease risks for those who make a complaint at this Trust.
All empty promises to people harmed if you don't.
@RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
MLAs haven't acknowledged any of my e-mails since this one
Have they realised how serious it is & there's fear not hope
Don’t know
Harmed patients/families should be priority
@RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
New NIPSO tried. Senior Trust staff wouldn’t listen.
Ask Dr Hagan to tell the truth, reject the 2011 complaint findings, stop blocking legitimate concerns & work from there.
@RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
Carol McCullough 🦓 ⚡🐬🗿 retweeted
What I will never, ever understand - or forgive, for that matter - is the absolute contradiction inherent at the policy level of 'normalising' Covid-19, yet simultaneously severely limiting vaccine access and refusing to explain to the public the value of using respirator masks.
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Quote..
“Patients at the end of their lives are being increasingly forced to rely on emergency support because of variable access to care closer to home, a charity has warned.
While some patients will need hospital care, gaps in round-the-clock end-of-life care in the community mean a growing number are turning to urgent and emergency care when they “don’t have to be there”,
apple.news/Aoc7Vm856QYSMLxD6…
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Complaints are more than a chance to put things right. They give people a voice, help identify issues and drive improvements in public services. Margaret Kelly and Sean Martin discussed their importance at yesterday’s Finance Committee session. niassembly.tv/committee-for-…
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Hmmm. "The UK's copper wire landline system - which would work even in a power cut - will be switched off on 31 January 2027" 🤔
What happens if the internet goes down? BlackSky - the UK's emergency backup plans bbc.in/4BLDC3u
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Don't know why Farage is laying a wreath at the Cenotaph? His side lost in 1945! #Antisemite
#bbclaurak
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Preprint: Limiting COVID vaccines to 65+ could raise hospitalizations 23–27% across all ages.
➡️Modelling (Illinois data) shows vaccinating younger adults & children cuts transmission enough to meaningfully protect higher-risk older adults.
Restricting eligibility to 65+ only increases infections (especially in kids) and hospitalizations (especially in the elderly) over multi-year horizons!
➡️Those indirect effects matter!
➡️The authors note that serious vaccine side effects are rare. Therefore, any reduction in side effects from limiting eligibility would not outweigh the resulting increase in COVID hospitalizations.
medrxiv.org/content/10.64898…
Carol McCullough 🦓 ⚡🐬🗿 retweeted
For last 24 hours I’ve seen footage of horrific scenes from Gaza, just absolute human misery. Yet..it’s not there on any news outlet’s home pages, not discussed on our witless political shows. We’re just going to ignore it? Is that the plan?
Carol McCullough 🦓 ⚡🐬🗿 retweeted
BREAKING: Trump may have accidentally chosen the wrong Dana White for his White House Press Secretary offer.
There is a woman named "Dana White" who is the former Assistant to the Secretary of Defense for Public Affairs, more commonly known as the Pentagon's chief spokesperson, from April 2017 to the end of 2018.
She briefed the press from the Pentagon podium, and served as the principal media adviser and communications lead for the Secretary of Defense. She also was a Fox News publicist and worked at the conservative Heritage Foundation. She even started her career as a press secretary for the House Republican Conference.
Someone at the White House likely recommended her to Trump and he thought they meant UFC CEO Dana White, then went ahead and announced it on Truth Social thinking it's his UFC friend, and nobody around him was willing to correct him.
Furthermore, Trump is actively searching for a new press secretary after Karoline Leavitt left and Katie Zacharia lasted five days, so names are being pitched to him right now.
Per CNN, UFC's Dana White has declined the offer, and one aide now claims Trump was "joking."
Carol McCullough 🦓 ⚡🐬🗿 retweeted
All because when harmed patients and their families raise concerns they get bullied intimidated threatened blatant lies corruption and covering up and when we go to our government they will protect them by telling you they can't get involved in individual complaints
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Endless NHS SCANDALS
No one Punished
Files Deleted #Nottingham
Unregulated #Managers
A Protected #Cult ?
@andyburnham @YvetteCooperMP @karinsmyth @MichelleWelshMP @NHSEmployers @NHSConfed @IHM_tweets @CMO_England @SwordsFrankie @svig2
@TheLawSociety @TheLawyermag
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Senior people within this trust know exactly what happened to these records. The dishonesty and lack of integrity shown at an institutional level is astounding, even when viewed through the lens of the state of the NHS at the moment. @YvetteCooperMP this is pure, evil corruption
“the individual who deleted the files could not be identified by any investigation”
-This has got to be the biggest scandal heard from the same Trust that breached medical notes of our children from Nottingham attacks.
- We found data breaches and now systematic and planned data deletion. This is totally scandalous.
I have long said the Sec of State for Health needs a total management replacement at this hospital immediately……..
Sec of State you are sleeping on the job…..get on with it.
This Trust has got to be the most scandal ridden in the country.
“Get Nottingham right, get the country right”
@YvetteCooperMP @DHSCgovuk @KemiBadenoch @DamianHinds
bbc.co.uk/news/articles/cmly…
Carol McCullough 🦓 ⚡🐬🗿 retweeted
There’s no way to spin the resurgence of measles in the US. It’s a public health disaster. Who will take responsibility, and what will we do to fix this?
There is an overwhelming sense that the U.S. will soon lose its hard-won measles elimination status, according to CDC staffers and public health groups at a meeting this week. nbcnews.com/health/health-ne…
Carol McCullough 🦓 ⚡🐬🗿 retweeted
Files relating to child, neonatal & maternal deaths at @nottmhospitals was "intentionally/maliciously" deleted by someone who can't be identified.
A reminder, if needed, that not everyone in the NHS acts in patients interests & underlines why the scandal needed exposing:
