Taking a rest from advocacy Activist health, well-being, welfare & work #LongCovid #FBLC @WorkingWithLC Retired occupational therapist, PhD #SuicidePrevention
Joined November 2015
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Will you wear a mask please ?
Hairdresser: โyesโ
Vet: โyesโ
Carpenter : โyesโ
Never a NO from anyone I ask until this:
#NHS #nurses : โNo itโs our right not tooโ
#COVIDisAirborne
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
@RCPCHtweets @RCollEM @rcgp๐จ
It has happened againโฆ.infact twice!
The parents of sick children, whoโve been seen & assessed by a GP & require urgent assessment by a Paediatric Dr, are being told to take them to Paeds ED to join the queue TO BE TRIAGED.
This is ๐ฏ not ok!
1/2
People in generally good health that I know are normalising having to take to thier bed sick in October with what they say is anything but #Covid_19
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
๐ข UPDATE: Today Iโve written to the APPG on Long COVID.
Iโve asked them to bring my independent #petition and open letter to the UK Prime Minister to the attention of decision-makers, and to ensure our voices are heard.
#LongCOVID needs a properly funded national strategy. ๐
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Our poster from the ISLC-PAIS conference:
PEM is characteristic of and unique to ME, and is equivalent to PENE as defined by the ICC. Required to be prolonged, disproportionate, systemic, may be delayed, can cause lasting functional decline ๐งต
positivenutrition.ie/wp-contโฆ
ALT Image of the full poster, far too much text but the link in the tweet brings you to the actual pdf
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
A long๐งตbut itโs brilliant.
We had hoped that following criticism of the UKโs IPC on covid transmission at @covidinquiryuk that future guidelines would reflect current evidence & ensure safety for all in healthcare settings
A spectacular failure from Scotland
๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟNEW IPC GUIDANCE
Scotland has quietly introduced a brand new approach to respiratory infection prevention & control in healthcare.
This change has MAJOR consequences for both patients & staff.
The story behind it is quite extraordinary so grab a cuppa & Iโll explainโฆ
๐งต
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Please follow this account for news and notes from our international organization led by physiotherapists living with Long Covid and their allies. We continue to advocate for improved education and research for people living with #LongCovid, as well as to provide peer support.
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
We are different at @HCWsAC
We are transparent.
Here is where your money has gone.
Thank you!
๐ข HAC Legal Fund Update: Weโre committed to transparency, and the fight isnโt over. Please keep donating regularly and sharing our crowdfunder to help us take the next stage of litigation forwardโ
๐ณ๏ธ Donate: tinyurl.com/mr2bahjr
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
The #COVIDInquiry has shown the serious failures in #SocialCare during the pandemic. Disabled people paid an unacceptable price when social care was treated as an afterthought. #DisabledPeople must be involved to shape these reforms. Read our response: tinyurl.com/bdh4m9nj
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
โFor people living with chronic health conditions or disability, the air in a room can decide whether theyโre able to safely attend work, school or an appointment, and right now theyโre left guessing.โ
#MakingTheInvisibleVisible
The air we share indoors shouldn't be invisible.
GO AQS is back for #MIV26 with @SaferAirProject! ๐ Weโre sharing our live indoor air quality. Transparency makes the world better
Read the full article: goaqs.org/2026/10/26/go-aqs-โฆ
#IndoorAirQuality #MakeTheInvisibleVisible
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
#journalists ahead of the #budget a plea to remember
๐จPersonal Independence Payment (PIP) is NOT an out of work benefit ๐จ
Please challenge guests who assume it is.
You can work AND claim PIP.
#Budget2026
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
We know #LongCovidCosts and the evidence is piling high... yet we still have unsafe workplaces and a disregard for the need for #CleanAir and #Masks and the significant risks of reinfection for workers with #LongCovid
@LC_Physio
@SupportingHH_UK
jheor.org/article/170196-ecoโฆ
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
๐จ EXC: Nottingham hospital launches urgent investigation into hip fracture deaths as its mortality rate hits 50% more than national average - the problem is linked to long delays for emergency surgery according to internal documents.
Full story: thetimes.com/article/b5bc397โฆ
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
I will say this- again.
In a safety critical 'industry' like healthcare?
Lesser trained staff usage-at scale-will cause harm.
You will 'get away with it' a lot of times.
Yet all it needs is 'one miss'.
And the higher training reduces the chance of that 'one' - it's what training is all about.
If you don't understand that?
You fail safety issues
And you fail as an educator and trainer.
Thank you @JanetEastham for continuing to raise the issue.
The irony?
Every single person responsible for such decisions regards 'what the public can have' - reaches out to a doctor when they need help for their loved one.
'Cake for me. None for you.'
Dylan Cope died after an A&E nurse practitioner mistook his abdominal pain for flu, having ignored his GPโs referral for suspected appendicitis. His family thought she was a doctor.
A coroner found he would have survived had a senior doctor examined him.
telegraph.co.uk/news/2026/10โฆ
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
The most incredible & most accessible gig I have ever attended.
๐ท or pluslife
Lft negative
Signed & captioned
๐ฆฝ accessible
Livestreamed
@SmartairUk purifiers
My friends Kindred Prisms & Stottie two of 5 disabled artists showcased
@Drake_Music showing what can be achieved ๐งต
ALT A photograph of the host Miss Jacqui and 5 disabled artists showcased. All apart from Miss Jacqui wearing a mask on stage.
ALT A selfie of me and 4 friends sat around a table all masked. I have covered some faces with masked emojis.
ALT a photo of the many posters around from LSO St Lukes Help us protect everyone please wear a mask, with a graphic of a mask wearing person. Thank you LSO
ALT a picture of the projection above the stage with Interval, please keep masks on.
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Here are the studies๐งตCovid can cause;
Cognitive impairment, brain shrinkage, heart attacks, strokes, kidney damage, lung damage, diabetes, clots & other blood disorders, immunological & neurological disorders.
It is multisystem, acute & potentially chronic (1 in 10 infections)๐งต
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Mask up & stay safe everyone! ๐ท๐ฆ ๐ซ
YOUR ATTENTION:
๐จEvery new COVID-19 (re)infection elevates your cardiovascular risk profile. Even mild cases can raise the odds of a heart attack, stroke, heart failure, and other CV events for months to years afterward. Risk is higher with more severe illness, yes, but itโs certainly not limited to severe disease. Updated vaccination will show some mitigation(infection severityโ) but doesnโt give you a risk-free pass!
#AvoidSars2 #AvoidReinfections #UpdateVaccination
โก๏ธSupportive links:
1. Xie et al., Nature Medicine (2022): Long-term cardiovascular outcomes of COVID-19 (elevated risk even in non-hospitalized patients, graded by severity).
nature.com/articles/s41591-0โฆ
2. American Heart Association news release (2024) on the UK Biobank analysis (โ2ร risk of heart attack/stroke/death for up to 3 years after any COVID-19 infection).
newsroom.heart.org/news/coviโฆ
3. Lindgren et al., Journal of Internal Medicine (2026): Nationwide Swedish matched cohort (nearly doubled long-term MACE and death risk in hospitalized cases, persisting beyond year 1).
onlinelibrary.wiley.com/doi/โฆ
4. Hadidchi et al., Journal of Human Hypertension (2026): Elevated CV outcomes (including in non-hospitalized patients) among those with pre-existing hypertension.
nature.com/articles/s41371-0โฆ
5. CARTESIAN study, European Heart Journal (2025): Accelerated vascular aging / arterial stiffness after COVID-19, including mild cases:
academic.oup.com/eurheartj/aโฆ
โก๏ธThese five links give a clear progression from the early 2022 data through 2024โ2026 confirmation!!
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
TW suicide & #LongCovid research ๐
When previously advocating with #LongCovid groups this is something we warned about in our written U.K. government submissions @WorkingWithLC
We must have #SuicidePrevention
@LC_Physio
@SupportingHH_UK
Sometimes it is with a heavy heart that the increasing relevance of particular research projects is brought home. So too with our funded project on "living death, social death and #suicide amongst #LongCovid patients in the Netherlands and Germany".
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Fantastic information from @UKPoTS on #PoTSAwarenessDay
Many of our #LongCovid members suffer with this debilitating condition
Educational resources for both patients and HCWs on their website
potsuk.org/
1/5 Happy 7th ๐#PoTSAwarenessDay๐
Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.
#PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we donโt have to think about.
Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position.
The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse.
If you are new here please take the time to view the image thread below to learn some basics about PoTS:
๐ฃ Symptoms
๐ฃ Tests/Investigations/Diagnosis
๐ฃ Treatment- lifestyle changes & medication
View our website to learn more about symptoms: potsuk.org/about-pots/symptoโฆ
#MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation
@Dr Jenny Ceolta-Smith PhD RetiredOT ๐๐ retweeted
Thanks @covidinquiryuk
The lives and deaths of the social care workforce matter very much.
Data is the bedrock for parity of pandemic protection and commemorations.
ALT Extract from p201 from Module 6 Report published in October 2026 - about collection of mortality data.
Great example of power of collaboration and need for data. Disappointed our FOI request @The_HCPC didn't yield much
whatdotheyknow.com/request/hโฆ
Did @theRCOT track impact Covid & Long Covid on members who lost their lives and livelihoods, through membership data & Advisory Service?
