Community worker, queer feminist interested in smashing capitalism & the patriarchy, focused on radical rest #LongCovid #PwMe she/her 💖💜💙
Galway, Ireland
Joined August 2011
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To participants of the @Realisation2024 festival: the Earl of Shaftesbury profits while he destroys Lough Neagh. Which is the water source of 40% of the North. The Lough must be returned to the people at no cost as reparations. It is only in his hands due to colonial violence
What you need to realise about the Realisation Festival @Realisation2024.
A 🧵 by the #SaveLoughNeagh Coalition & Slí Eile.
ALT What you need to realise about the Realisation Festival…
I'd be really happy with John or Jon covering the #TheGreatestMEdicalScandal that is Myalgic Encephalomyelitis
#JohnVsJonVsME
@LastWeekTonight @TheDailyShow @jonstewart #MEAwarenessMonth #MECFS
Wow! Originally Team John, I am already rapidly being swayed towards Team Jon! #JohnVsJonVsME #GreatestMEdicalScandal
“I get to cover it” MEME c/o @Ramyisback
ALT A still from the Daily Show in which John Stewart sits at his desk at left facing John Oliver, at right. Stewart says “No, John, I get to cover the greatest ME Scandal!”, to which Oliver replies “No way! I get to cover it!” with the hashtag JohnVsJohnVsME across the top.
Jacinta retweeted
The M.E. Community ask for your assistance with their important call for a protocol to support those with Severe M.E.
Please sign their
Open Letter to the HSE.
organise.network/s/b71cbfc29…
#Call4Protocol4SevereME
Why is Galway's traffic so bad? The solutions are right in front of us!
A great Tuesday morning during #bikeweek with the students from Salerno! This was one action from the @SharedGreenDeal year long project with Salerno, Coláiste Éinde and @MheithealRothar to raise awareness of congestion and student safety outside of the schools in #Galway.
Jacinta retweeted
We spoke to the @thejournal_ie yesterday about today's Oireachtas hearing. A parent of a teenager living with #LongCovid was also interviewed.
Thank you to the Journal for covering this issue.
#LongCovidKids #Ireland #Irish #Disability
#NotRecovered #LongCovidAwareness
#SOS
An advocacy group for people suffering from symptoms of Long Covid is calling on the Government to urgently review how people with the condition are cared for.
Read more: jrnl.ie/6355872t
Jacinta retweeted
A patient in her 20s with palpitations and tachycardia was told she was too young to justify cardiac testing, however later when she obtained testing through the private system, myocarditis and pericarditis was discovered,potentially life threatening heart conditions
Jacinta retweeted
We desperately need folks like @jonstewart @iamjohnoliver to cover the scandalous history & present of #MyalgicEncephalomyelitis & #LongCovid. Misinformation is the norm; it falls on us patients to educate doctors, family, friends. Good media coverage can change this.
The health system is letting down young people with #LongCovid all over the country. Read this young person's account of their experience of 4 years with #LongCovid on #LongCovidAwarenessDay #LongCOVIDAD24
Another young person dealing with #LongCovid shared his story with us.
His family will also be submitting this letter to TDs this week.
Families all over the country have been left to deal with this on their own!
#LongCovidAwarenessDay #LongCovidKids #Disability #chronicillness
Jacinta retweeted
Very proud of #Derry’s own DJ Provai from .@KNEECAPCEOL on #LateLateShow tonight .@RTEOne They said they’re using their platform to call for an end to #GenocideinGaza for people to keep protesting & to support .@BDSmovement
Really quick survey by Invisible Disabilities Ireland, give them your feedback #InvisibleDisabilities
Please take 45 secs(ish) to complete this survey from Invisible Disability Ireland, if you're in #Ireland & living with an #invisibledisability.
RTs much appreciated.
#ChronicIllness #Irish #pwME
#Fibromyalgia
#endometriosis #LongCovid
docs.google.com/forms/d/e/1F… @invisibledisab2
Jacinta retweeted
So excited that you can now pre-order my first collection Trust the Damage!
dedaluspress.com/product/tru…
@dedaluspress #writing #irishpoetry #chronicillness #disabili
Jacinta retweeted
I look forward to reading the published results of a Phase 3, randomised, double-blind, placebo-controlled clinical trial on Giselle Boxer's "ear seeds". Can @BBCDragonsDen or @BBCOne tell us when that will be? 🧐 #MECFS
There are lots of ways Disability Allowance could be reformed like increasing it to cost of living levels to ensure disabled people aren't living in poverty. Sadly that's not what's on the table, the current proposals are regressive and dehumanising #ScrapTheGreenPaper
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Jacinta retweeted
Please Join our Peaceful Protest tomorrow, Thursday 7th Dec - 12-2pm at Dáil Éireann TURKEY ALERT 👇 Please RESIST Govt’s ‘Green Paper’ on ‘Disability Reform’ Dickensian & Ableist Charter to Compulsorily ‘Categorise’ #Disabled Irish Citizens Capacity to Work. In short -a Turkey
Jacinta retweeted
The Tory attack on benefits is performative cruelty. It won’t boost employment or even make big savings. But it will hurt the right people.
My col. theguardian.com/commentisfre…
Jacinta retweeted
We are uniting with @NeuroPrideIRL @AccessForAll7 @DW_Ireland #OpposeReformOfDisabiltyAllowance to tell @welfare_ie that there is too much informed outrage in the disabled community- they must #ScrapTheGreenPaper
Join us outside Leinster House at 12pm-2pm, Thursday 7th Dec.
ALT A white person with bright red hair sitting in a wheelchair. They are wearing ear defenders, a bright red dress and a red mask that has writing on it saying "nothing about us without us". They are tearing up the Green Paper on Disability Reform. Surrounding the person is scraps of paper with text. Image text Disabled people demand the Irish Government: Scrap the Green Paper on Disability Reform Protest at Leinster House 7th Dec 12pm Find out what disabled people have to say 4th Dec 6pm Online Find out more from https://beacons.ai/scrapthegreenpaper
Jacinta retweeted
85 v 55
No Sanctions for Genocide
Government votes for its own counter motion against the @SocDems motion which called for sanctions against Israel, including expelling the Ambassador
#ExpelTheIsraeliAmbassador
#Dail #GazaGenocide
Jacinta retweeted
🇵🇸 Our demo at the Dáil demanding the government vote in favour of motions to sanction apartheid Israel, refer it to the International Criminal Court for its crimes against the Palestinian people and to expel the Israeli Ambassador, on the Six One News. #GazaGenocide #ICC4Israel
Jacinta retweeted
#MEAction is excited to announce that @MEencyclopedia (#MEpedia) has gotten a complete overhaul courtesy of a generous grant! We've updated our software, staging, graphics, and design-- which got an accessibility audit, too! Visit the new MEpedia here! me-pedia.org/wiki/Welcome_to…
ALT Graphic of a computer screen and mobile phone screen displaying the updated MEpedia page. Behind the screens the words "Live Now!" repeat. The top of the graphic has the #MEpedia circular logo with the text "A project of #MEAction" beside it. At the bottom of the graphic is the website address: me-pedia.org plus the text: "Updated, Expanded, Revamped MEpedia!"
