ILD Nurse Practitioner. Wife. Mom of two. Philadelphia sports lover. Former ICU Nurse. tweets are my own
Joined November 2019
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September is pulmonary fibrosis awareness month. As the month kicks off I can’t help but take time to think about the many patients and their family members I have had the privilege to work with over the last 8 years working in this specialty. #pfmonth
There’s still time to join us today at 1 pm. register at us02web.zoom.us/webinar/regi…
It is one of my favorite days - PFF Hill day. Today I get the honor of advocating for my patients by meeting with our congressional offices and asking them to support pulmonary fibrosis research and supplemental oxygen reform. #pffhillday #pulmonaryfibrosis #advocate #soaract
If you work with patients who have advanced lung disease take some time to listen to the new episode of the @ats Breathe Easy Podcast with guest @CAJonesMD. He shares some great info and approaches to palliative care and hospice for patients breatheeasy.transistor.fm/ep…
This Philly girl is one hundred percent a Philadelphia Eagles fan (the rest of our ILD & Sarcoid team can attest to this)…but it is pretty awesome to see that Houston Texan Tavierre Thomas will be wearing @StopSarcoidosis cleats for @nfl #MyCauseMyCleats
Congrats and welcome! Come join us in ILD clinic….it’s the best clinic.
Thrilled to present the next Penn Pulmonary and Critical Care fellowship class! They are already exceptional and are on their way to being true leaders in our field! @PennPulmonary
What a rock star panel leading us in thinking about addressing quality of life for our patients #pffsummit2023 #pff #ild
Dr. Katzen is sharing his research with patients this morning. What a great opportunity for patients to hear about the hard work that is going into discovering more information about pulmonary fibrosis which may lead to new ways to treat the disease #pennild #pffsummit2023 #pff
The Nurse and Allied Health session yesterday was one of the highlights of the @PFFORG summit for me. When we come together and share our knowledge and experiences our patients benefit so much. #pffsummit2023 #ild #pff
Lori Flint shares with us how to address the challenges of care in ILD. She so eloquently reminded us caring for these patients is complex but as a team we can work to improve the care and experience of our patients #pffsummit #pff #ild
We are kicking off the @PFFORG 2023 summit with our Nurse and Allied Health session. #pff #pulmonaryfibrosis #pffsummit #ild
Imagine an oxygen company telling you they can not give you oxygen supplies so you can leave your home…this happens to my patients. Please ask your congressional leaders to pass supplemental oxygen reform. Visit this link to send a message to Congress. a.lung.org/eoZrWsZ
Do you see patients with cough or shortness of breath? Please take a moment and check out this video - you may come across a patient with #ILD …@ThreeLakes_TLF and @accpchest want you to have the tools to recognize this rare diagnosis youtube.com/watch?v=kAmlfXi-…
Happy #RareDiseaseDay
This video promotes an educational toolkit for PCPs that hopes to close the gaps to diagnosis in #ILD like pulmonary fibrosis. Please help me share it to raise awareness for these complex lung diseases: youtube.com/watch?v=kAmlfXi-…
Jamie Lederer retweeted
We’ve joined 23 other patient, professional, and industry groups to demand changes for how oxygen is provided. We know that access remains a huge issue, and that’s why we’re petitioning Congress. Read our latest blog post and sign the petition: ow.ly/1z2i50N2z9f
Jamie Lederer retweeted
A group photo of the attendees of the first-ever Pulmonary Fibrosis Stakeholder Summit at the end of the first session! And the presentations and discussions were great!
Thanks to all sponsors @nih_nhlbi, @ThreeLakes_TLF
@PFFORG!
#CurePF #ScienceMatters
#PFStakeHolderSummit2022
So excited to spend virtual time with so many amazing #pulmonaryfibrosis researchers and providers today and tomorrow. What a privilege to be a part of the #PFStakeHolderSummit2022
And so it starts! The first-ever Pulmonary Fibrosis Stakeholder Summit! Sponsored by NIH-NHLBI, @ThreeLakes_TLF @PFFORG, others! Really exciting and an important step on the road to #CurePF
#PFStakeHolderSummit2022
What a great resource for our patients on oxygen! @PennPulmonary 👀
NEW Animated Guide to Oxygen Therapy for Lung Diseases from @atscommunity @MechanismsCME and @COPDFoundation! Designed for patients using oxygen therapy, as well as caregivers and those that are interested in learning about oxygen therapy. Visit: YouAndOxygenTherapy.com
ALT You and Oxygen Therapy. Animated guide to oxygen therapy for lung diseases.
Jamie Lederer retweeted
No one has to live with pulmonary fibrosis alone. The PFF has a network of 150+ support groups across the U.S. that you can join today. Joining a support group can boost your mental health and help you learn about living with this disease. Visit www. pulmonaryfibrosis.org/suppor…
