Reader, writer, communications, strategy. Passionate about advocacy @rarediseases. Sports enthusiast. Forget cats, the internet was made for corgis.
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ALT Blue background with cartoon zebras and text reading, "Rare Disease Day is February 29 The Rarest Day of the Year! Show Your Stripes for the 1 in 10 Americans with a rare disease" with NORD and Rare Disease Day logo.
ALT Text reads, "Community Conversation: Building Awareness & Support Through Rare Disease Day Thursday, February 8, 2024 at 7:00pm ET" with an image of zebras on a computer and NORD and Rare Disease Day logos.
ALT NORD President and CEO Peter L. Saltonstall addresses a gathering of state RDAC representatives at a special pre-Summit meeting in Washington, DC.
ALT Blue background with orange ribbon on top left reading "Rare Community Spotlight" with NORD 40th anniversary logo the right. In the middle, white text reads, "It would have been so helpful to have had a virtual appointment to ask what exactly this disease is and what is the best way for me to manage it. I had to teach myself all of that. To be able to connect with a specialist would be so helpful and would give people the motivation to get on track and manage their illness. Judy A. Patient with IgA nephropathy." with image of Judy on right.
ALT NORD President & CEO Peter L. Saltonstall.
ALT Woman smiling in Running for Rare tank top and white hat smiling next to NORD zebra mascot wearing an orange NORD shirt and sunglasses.
