Living with rheumatoid arthritis. Passionate about effective patient engagement through patient information, social media, communication and user involvement
London
Joined November 2011
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So well deserved @Neil_Betteridge 👏
A very unexpected honour, and one I’m thrilled to accept on behalf of the many inspiring patients advocates and supporters I’ve had the pleasure of working with down the years.
Thank you @eular_org for the nice piece on it. 🙏
#NotFinishedYet!
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Kate Betteridge retweeted
📢 World Arthritis Day is 6 days away!
For people with chronic inflammatory conditions, true remission goes beyond what can be measured in a lab or scan, it’s about the freedom to function and live comfortably.
In advance of #WorldArthritisDay on October 12, learn about how remission is more than a number: bit.ly/4jnxhV8
Kate Betteridge retweeted
Today, the Global Remission Coalition hosted the webinar "Pursuing Remission in Lower Income Countries."
Dzifa Dey, MD, FWACP, MSc, rheumatologist and founder of the Rheumatology Initiative, Ghana, explored the barriers patients face on the path to remission. Andrew Briggs, PhD, professor at Curtin University, examined global policies affecting access to care and opportunities for change. Patient advocate Franklin Hiagbe shared his experience living with rheumatoid arthritis and why early, accurate diagnosis matters where rheumatologists are scarce.
Watch the recording: bit.ly/3Td1jjX
#PursuingRemission #ValueOfRemission
Kate Betteridge retweeted
GAfPA is at the AGORA Conference 2026 in Sofia, Bulgaria, where people living with rheumatic and musculoskeletal diseases are at the center of every conversation.
Today, @Neil_Betteridge took the stage to share insights with patient advocates and experts from across Southern Europe. GAfPA is proud to support organizations focused on Early is Better care and on elevating patient voices.
#AGORA2026 #RMDs #EarlyIsBetter #PatientVoice
Kate Betteridge retweeted
"We should be fighting for the best possible care for every single person living with an inflammatory condition. Why aren't we?"
Hear more from GRC's @Neil_Betteridge: bit.ly/456TE9S
Kate Betteridge retweeted
GRC's @Neil_Betteridge was diagnosed with juvenile idiopathic arthritis in childhood. During Juvenile Arthritis Awareness Month, hear about Neil's experience and why achieving remission matters.
Watch more this #JAAwarenessMonth: bit.ly/4nFeEKX
Kate Betteridge retweeted
📢 GRC's Webinar Is Tomorrow 📢
Don’t miss tomorrow’s webinar, "Healthy Aging & Women with Chronic Inflammatory Conditions," taking place at 9:00 AM EDT.
Join Linda Wilhelm and Luyanda Majija as they explore how women with chronic inflammatory conditions can take charge of their health and aging through early treatment, informed decisions and self-advocacy.
‼️Register NOW: bit.ly/4fCJtj4
I am exceptionally proud of my husband @Neil_Betteridge. He is a well deserving recipient of the Carol Nachman Medal for his work over many years to further the rights of people living with rheumatic & musculoskeletal disorders. Well done Neil 👏🥳
The Global Alliance for Patient Access is proud to congratulate @Neil_Betteridge on receiving the 2026 Carol Nachman Medal, one of the most prestigious awards in rheumatology.
Presented in Wiesbaden and introduced by laudatory remarks from Prof. Désirée van der Heijde, the award recognizes Neil's more than 25 years at the intersection of patient experience and health policy. From his tenure at Arthritis Care UK and @eular_org to advising the UK government on patient access and disability policy, Neil has never allowed patient experience to be decorative. He has made it structural.
That commitment is exactly what drives his leadership at GAfPA and @globalremission. Patient-centered care is not a symbolic value. It is the standard health systems should be held to, and Neil has spent a career showing what that looks like in practice.
Congratulations, Neil. This recognition is very well deserved.
#PatientAdvocacy #PatientCenteredCare #Rheumatology #GAfPA
Kate Betteridge retweeted
"The condition caused me a lot of pain and almost total immobility for a few years, but I think the anxiety came from seeing the effect on my family."
GRC's @Neil_Betteridge talks to #ThePioneeringPatientPodcast about his #remission journey: bit.ly/456TE9S
Kate Betteridge retweeted
"You have a right to access the best possible treatment in order to get the best possible outcome. And other people, like health care professionals and policymakers, have a duty to make that happen more often for more people."
Hear more from GRC Chair @Neil_Betteridge in @IFAiArthritis' Voices 360 podcast: bit.ly/494JKYg
Kate Betteridge retweeted
AiArthritis does a great job speaking up for people living with autoimmune inflammatory arthritis conditions. So it was good to talk to Leila about what remission can mean, and how the Global Remission Coalition is aiming to support more and more patients to pursue remission.
The idea of remission for AiArthritis diseases used to feel out of reach. Today, that is changing.
In our newest episode, Leila sits down with @Neil_Betteridge from the @globalremission to explore what remission really means, why it matters, and how more patients can get there. They talk about early diagnosis, timely access to treatment, barriers that still stand in the way, and what helps people stay in remission once they reach it.
If you or someone you support is navigating the patient journey, this conversation offers clarity, hope, and practical guidance. bit.ly/3XPooYB
#remission #AiArthritis #autoimmunediseases
Kate Betteridge retweeted
Good to offer an example from @globalafpa of the power of People With Lived Experience in practice on the @ncdalliance 'Walk the Talk' webinar today.
So much impact is possible when people with NCDs are empowered to speak up on policy issues
#ActOnNCDs #HealthforAll #NCDvoices
Kate Betteridge retweeted
I’d be very grateful if you could all sign and share this petition - mobility issues affect so many people. We need Kensington Olympia Station to have a lift. Thank you!
change.org/p/give-olympia-st…
Kate Betteridge retweeted
Today is #WorldArthritisDay. Please do (at least) one thing to raise awareness of rheumatic and musculoskeletal diseases(RMDs). 🙏 At @globalremission we will be releasing new resources every day this week & supporting activities of our 61 members. #worldarthritisday2025
Kate Betteridge retweeted
Inspiring! The Sjõgren Europe Conference has been bursting with passion & creative ideas to turn awareness into action.
So pleased to contribute on behalf of @globalremission & @globalafpa by delivering a patient advocacy workshop with @Kouloumasm
Congratulations SE!👏
🎓 Workshops in focus at #SEPAC2025!
Shared Decision-Making That Works, Advocating for Policy Change in Europe and The Silent Strength: Caregivers in the Journey with Sjögren
Three workshops, one purpose: empowerment, advocacy and compassion in action. 🌿
#Sjögren #SEPAC2025
Kate Betteridge retweeted
People with chronic inflammatory conditions like #RA need not accept second best treatment when they could be supported to pursue #Remission.
At the Patient Empowerment World Congress in London I’m presenting @globalremission as a case study in empowerment #PatientEmpowerment25
Kate Betteridge retweeted
At the 2025 Agora conference in Athens, endorsed by @globalafpa, @valkonsta describes the mutual effects of obesity & inflammatory rheumatic diseases. The Mediterranean Diet now updated to include lifestyle. A key factor in pursuing #remission. @globalremission
Kate Betteridge retweeted
The 2025 Agora Conference in Athens, endorsed by @globalafpa, is inviting rheumatic disease advocates to focus on Innovation, Empowerment & Holsitic Care. All key aspects of @globalremission as we seek policy change to enable more patients to pursue remission. #ThePursuitIsOn
Clearly people living with hip conditions or hip pain won’t be well represented at this conference seeing as the local public transport hub isn’t accessible to disabled people or people with limited mobility. Come on @BritishHip , pls help to lobby @TfLAccess @TfL
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Kate Betteridge retweeted
We’re not asking for the world. Just that people with a chronic inflammatory condition are supported to get the best possible outcome, ideally remission.
Sometimes, when people are diagnosed with a chronic inflammatory condition, they can feel written off. Pursuing remission sends a message of hope that there is support to achieve the best possible outcome.
Hear @Neil_Betteridge speak on the value of pursuing remission: