Kandy Simons

Well said. Kade knew from his 1st injection it worked. We witnessed it w/our eyes. We received confirmation he received NurOwn & not placebo. He deserved a chance at more. I have much disdain for not just the FDA but those in this community who spoke against his chance at more.

Honored to call you friend & advocate beside you fighting for #NurOwn approval… not just for Matt & Kade but for thousands more. Fighting for the next group of moms who will hear their young child only has 2-5 years to live; so their child has a chance to get #NurOwn at Dx.

My son was Dx at 21 & one of youngest in Ph 3 trial. While still blinded, he felt & functioned better on the T× than without. Please look at this collage & tell me that my son (who hasn't had an injection in 3 years &9 months) shouldn't get more. Early & juvenile onset is real.

Yesterday was this spectacular gal’s birthday 🎂 🎉 My younger sister LOVES to celebrate her birthday. She’s 52 now. You can see her beautiful spirit shine through & she never hesitates to strike a pose! The girl has moves 💃🏻 #UnconditionalLove #BigHugger #DownSyndrome

I’m an open book. You can ask me anything. I have 2 wonderful boys… Kade is 25 & Kruz is 23. Kade was Dx at 21 & was one of the youngest in the Ph 3 trial. I know of 1 other 21-year old and he has since passed believing he rec’d placebo. Kade steadfastly believes he received Tx

Love that David! 🐾 5 months after Kade’s Dx, he got Phish (73pounds now); On Christmas Day, Phish’s babies were born and we have Ace and Baloo! 🐾🐾 We love our #pits 💚🐾💚🐾💚🐾…. Along with our 2 non pits 🤣

Please take the time to watch this. @limpbroozkit is bringing much needed attention to #ALS in such a bright and cheerful and informative way. She has perfected the art of informing through laughter 😍

Thank you @david_wainer for this story. My son was Dx with #ALS at 21 yo. He was in the Ph 3 #NurOwn trial and while the trial isn’t unblinded, he knows this treatment worked for him. Knew it from the 1st injection into his spine. It’s critical for the PLWALS to be heard.

Can’t wait to hug your neck!! 💚. Safe travels. My beverage looks a bit different than yours! 😳. Ha ha

My son had to be one of the youngest in the trial. 21 yo. He knew then & knows now that #NurOwn worked for him from the 1st injection. We saw evidence with our own eyes. #RWE #PRO #NurOwnWorks

@SenatorLankford @SenMullin @stephaniebice @RepMariaSalazar @POTUS @FLOTUS @DrCaliff_FDA @FDACBER #NurOwn works! #AdComm #RealWorldEvidence

My son Kade was 21 in the Ph 3 #NurOwn trial is #DyingWaiting to hear how the Type A meeting went today @Cylebo. Will @FDACBER allow those with #RealWorldEvidence share their experience that #NurOwn slows/halts paralysis & has allowed some to restore function? #NoAdcommNoVoice

Come on my fellow #Okies. Very few people worldwide have been remotely close to a #NurOwn treatment. 4 incredible #Oklahomans have firsthand knowledge of what it’s like to receive this injection. Less than 10 people in the 🌎 know what it’s like to receive 6 doses. #LetThemSpeak – at Coral Terrace, FL

Look at you go @SarahNauser #FightLikeAGirl #SarahsSoldiers 💪💪💪💪 Sarah is most definitely a GD #cheetah She embodies the spirit of #WeCanDoHardThings each day. #NurOwnWorks #EndALS #AdComm – at Coral Terrace, FL