I’m Katy, mum to Sam aged 14 who has Morquio Syndrome, we’ve successfully campaigned to ensure the first ever treatment called Vimizim is funded by the NHS.

Otley, West Yorkshire, UK
Joined November 2014
Sponsorship opportunity ❤️. Charity Ball for @MPSSocietyUK in Harrogate on 7th Oct. Do you run a small business or know someone who does, who might sponsor a table for £20? We’ll thank & acknowledge you & share leaflets / business cards on the night. Thank you x x
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Last 4 weeks of ticket sales! Please help us with a final push! We’ve an incredible evening planned. From walk around magician to surprise entertainment, from Photo Booth to 1980s style video games, disco, dancing, 3 course meal and fizz, as well as raffle and silent auction 🙏
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Pls retweet & help us to publicise our family organised event to raise money for a wonderful small charity. You may not have heard of @MPSSocietyUK, unless you’re affected by MPS & related diseases. But they’re a lifeline if you are. Tickets available at [email protected]
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4 months tomorrow it will be party time! Don’t miss out, get your tickets now by emailing us at [email protected] 💙. Really appreciate everyone’s support xx
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MPS Awareness Day 2023 . Super proud of Sam & the amazing young man he is becoming ❤️. I’m emotionally all over the place with MPS at the moment as things are not easy so I’m going to go less for words & more for this👇. Doing all we can to increase MPS Awareness. Pls support x
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Our family is working so hard to make this ball a huge success but to create real impact, we need the kindness and generosity of others. Can you or someone you know help us with raffle prizes, sponsorship or even a celeb connection? 🙏❤️🙏 Always grateful and always hopeful x
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Replying to @sarajcox
@sarajcox our family are organising a ball in Oct to raise money for a fab cause close to my ❤️. MPS diseases are rare genetic conditions, our son Sam has one. I’d love to find someone exciting / more interesting than me to join us & draw the raffle. Could R2 friends help? 🙏 x
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Organising a ball as a family is really hard work but lots of fun too! Can you help us spread the word? The more tickets we sell, the more successful it is & the more we raise for @MPSSocietyUK Pls retweet & email [email protected] for tickets x x youtu.be/zb3sFMsgAOk
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Replying to @skoshyork
@skoshyork thank you so much for another incredible lunch yesterday (the blood orange tart - wow!) and thank you too for donating a raffle prize to support our charity ball to raise money for @MPSSocietyUK - it means the world to us x x
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Hi Sara - amazing :) and funny you mention Harrogate, I’d sent you an email via your website hoping you might be able to support us with a charity ball we’re organising, in Harrogate in Oct 🙏 See below a video we made with the kids x youtu.be/zb3sFMsgAOk
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Please watch and share our video 😊 and come and join us for a brilliant night to raise money for a wonderful charity @MPSSocietyUK x x youtu.be/zb3sFMsgAOk
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