Kev_FND (@Kev_FND) header
Kev_FND (@Kev_FND) profile picture

FND patient since November 2021. It is my intention to advocate for greater research into understanding and eventually better treating FND.

🇺🇸
Joined April 2023
The past year and a half have been the most difficult of my life. Having Functional Neurological Disorder has been hell. If you're suffering too or know someone who is let's work together to fight for more research into understanding and treating FND.
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One of the many wonderful aspects about the 6th International FND Society (@FNDSociety) is connecting with new & old friends from around the globe - an absolute delight to meet Professor Masahiro Sonoo from Japan [characterized the hip abductor sign].
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To everyone who fought to be believed: you were right. Your symptoms are real. Recovery is real. Save this #FND #FNDawareness
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Kev_FND retweeted
“I was diagnosed with Functional Neurological Disorder and discharged from neurology with just the name of a website”. Every single day, for the past 4,482 days, at least 1 person reaches out because of being abandoned. #Neurology you must do better. The #nhs must fund more. #FND
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Thank you @APainPrincess for sharing my blog post on what you don’t see in life loving with #FND. It’s very much appreciated! 🫶
"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.” buff.ly/2d9jlWA @serenebutterfly #FND #chronicpain
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Kev_FND retweeted
Join our FND Awareness Ambassador Jane this April in our 5k for FND Challenge for #FNDAwarenessMonth. Not only will you challenge yourself, but your participation will raise vital funds to help us expand our services. Please scan the QR code to take part or donate. 💚🧡 #FND
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If you're living with FND, you already know how powerful - and changeable - the brain can be.. The good news is, with the right tools and support, real progress is possible. We share lots of tips that help retrain your brain - from small daily techniques to mindset shifts. #FND
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🧡💙 𝐒𝐇𝐈𝐍𝐈𝐍𝐆 𝐀 𝐋𝐈𝐆𝐇𝐓 𝐎𝐍 𝐅𝐍𝐃!! 🧡💙 Amazing to see Glasgow Science Centre lighting up to shine a light on FND awareness Great job Glasgow FND Support Group - Public on organising such a big and meaningful awareness event 🥰 #fnd #fndawareness
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FND is real. It’s challenging. But there is hope. If you’re in the middle of it right now, please know that things can change. Progress might be slow, and it might not look how you expected—but there is light at the end of the tunnel.
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FND Awareness Day 25th Mar 2026 youtu.be/fiVzNkZgmO0?si=x05o… In this video, Tess Rae launches her book Brain Interrupted: The Brutal Truth About FND in a deeply moving and powerful speech. With honesty and compassion. @Tess_Rae_
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I am extremely proud of our @FNDFrieNDsUK team and what we are achieving here in the Southwest, a perfect #FND Awareness Day with a huge thank you to @jonstoneneuro for your amazing talk and our wonderful OT Ruth. 😁we are definitely stronger together.
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One policy I’ve adopted on X, which helps a lot, is any time someone uses “Functional Neurological Disorder” as a joke or insult, I block immediately. No conversation, no second chances. There’s a minimum standard of civility 👍
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Excited to share our first case that shows noninvasive brain stimulation can improve communication and enhance brain function in the aphasic variant of #Alzheimers Special thanks to the patient and the patient's family who participated and the amazing team of co-authors.
Huge pleasure to share our most recent work led by my brilliant colleague friend @TouroutoglouA that shows transcranial magnetic stimulation can improve language informativeness in primary progressive aphasia 💫
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Kev_FND retweeted
Dr. Alexander Lehn breaks down functional movement disorders; what is happening in the brain, what are the potential risk factors and what future treatments and clinical trials we have to look forward to. loom.ly/3ZVToq8
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We had our first in person FND peer support meeting in Cork last Friday. A BIG THANK YOU to all those who attended and shared their experience of living with FND. Thanks to @Corkcoco for their support in providing our meeting space. 💚🧡 #FNDIreland #FND
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Predictive processing is a much more helpful model for understanding #FND than the one sided, simplistic & purely psychological models of the past - academic.oup.com/braincomms/…
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New systematic review #FND in the #perinatal period - 43 women with FND, presentations, pregnancy outcomes and symptom trajectory - first step to explore the unique challenges to consider during this beautiful and critical time #pregnancy @TheBJPsych bit.ly/3BIzff8
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Everyday is a different day when youve wake up in pain and taken seizures not knowing what is wrong with you #FNDAwareness #FND trying my best everyday justto get though it its hard enough no knowing if youre days gonna go any good or if its gonna be a bad day
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Kev_FND retweeted
Functional neurological disorder is a common and treatable condition. Mcloughlin et al. outline ways in which patients have suffered iatrogenic harm due to structural neglect of this condition, and offer potential solutions. tinyurl.com/yz96pdfn
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Kev_FND retweeted
Many bystanders want to share their derogatory opinions of Functional Neurological Disorder yet show no interest in, or avoid, the voices of those who actually suffer from this debilitating condition. I wonder why? #FND
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