All things LUPUS-Links to blogs, videos, info, articles, groups, support, etc!
Joined May 2014
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Short Music Video on 11 Symptom Criteria used to dx #LUPUS! #autoimmune #mctd #sle youtube.com/watch?v=iNiXZFmH…
Lupus Video Channel retweeted
NEW: Woman apparently abducted after trying to escape from a Nissan SUV at a gas station in Buckeye, AZ.
The woman could be seen trying to flee from the car as it stopped to get gas when the male driver grabbed her by the neck and threw her back in.
Buckeye police are desperately trying to get more information on the apparent abduction.
“We know nothing about these two subjects if they know each other if they’re in a relationship together… we don’t know anything about them,” Sgt. Tamela Skaggs said.
“The timing in this investigation is extremely crucial.”
Only one call was received from a witness.
“The witness was extremely concerned and called it in as a possible abduction.”
The police believe the vehicle is a 2021 or 2023 silver Nissan Rogue.
Lupus Video Channel retweeted
Nice bro moment between the U.S. Secretary of State and a guy who compared Israel to the Nazis a few days ago
Met with President @LulaOficial ahead of the G20 Foreign Ministers Meeting. Brazil is a key partner on many issues including combatting the climate crisis and advancing human and labor rights. As we approach 200 years of U.S.-Brazil relations, our ties are stronger than ever.
ALT Secretary Blinken and Brazilian President Lula da Silva shake hands and smile for a photo while standing behind a wooden table. A large world map hands on a white wall behind then.
Lupus Video Channel retweeted
✅ Immense satisfaction to hold in my hands the final version of our manuscript #recommendations for #PhysicalActivity and exercise in #lupus, approved by all co-authors 👍 Thanks to Dr Julien Blaess and Sophie Geneton for their role throughout this work. Next step ➡️ publish!
Lupus Video Channel retweeted
🦵Protecting your joints when you have #arthritis related to disorders like #lupus, #SLE, #Sjogrens, #RA, and #osteoarthritis is important.
🖱️ lupusencyclopedia.com/joint-…
See my latest blog post on practical tips on how to protect your joints and lessen joint pain and damage
![Joint Protection Advice for Lupus Arthritis [July 2025 Update]](https://pbs.twimg.com/card_img/2117889102079246337/w9bwiUkz?format=jpg&name=800x419)
Lupus Video Channel retweeted
🎹🎸 Lupus and the Beatles' "Lucy in the Sky with Diamonds" are intimately connected!
Lucy actually had #lupus #SLE ... click the link to learn about Lennon and Lucy and Lupus
lupusencyclopedia.com/lupus-…
Lupus Video Channel retweeted
🤰Most #lupus #SLE patients will have a successful and safe pregnancy with proper planning.
Learn about the tips and tricks on how to do so here:
lupusencyclopedia.com/succes…
Lupus Video Channel retweeted
✅ Very happy to report that the #LEAF paper has just been PUBLISHED ⬇️ Together with @LouKawka and amazing experts, we have been working on a #digital solution to IMPROVE #FATIGUE in #LUPUS. Thanks to @LupusEurope and to all participants 🙏 Free download
doi.org/10.1136/rmdopen-2023…
Lupus Video Channel retweeted
🚨 Exclusive RED #ALERT on CAR-T cells (click below for more) ⬇️ The @US_FDA has received reports of T-cell malignancies 🚨 including CAR-positive #lymphoma, in patients who received treatment with BCMA- or CD19-directed #CART cell immunotherapies
fda.gov/vaccines-blood-biolo…
Lupus Video Channel retweeted
Neuropsychiatric lupus affects 80-90% of people with lupus. It’s important to speak with your health care provider about all of your symptoms to be able to find the right treatment for you.
Learn more lupus-related terms at lupusresearch.org/glossary
#neuropsychiatriclupus
Lupus Video Channel retweeted
Dive into the dynamic world of lupus research through the Lupus Science and Medicine podcast! 🎙️🔬 Uncover engaging discussions, expert insights, and the latest updates in lupus knowledge. Tune in today: bit.ly/47dJGCc #acr23 @LupusOrg
Lupus Video Channel retweeted
Do you receive your care at Mile End Hospital in London? If you do, please spare five minutes to complete our online survey about your experiences.
LUPUS UK will be conducting a Centre of Excellence inspection of their rheumatology unit on 8th November 2023. [1/2]
Lupus Video Channel retweeted
A very important problem in #lupus #SLE patients due to steroids (uses up muscle and produces fat) and less activity due to pain and fatigue. The main treatment is muscle strengthening exercises to prevent it before it happens, or to try to build back muscle after it happens.
#Sarcopenia #AIRD
🌎
👴🧑🦳#Understanding factors beyond Ageing!
⚡️Major impact on physical, social, & emotional well-being
⚡️Strategies- Exercise, pharmacological T/T & nutritional supplementation, etc
🔥Bookmark this wonderful review🔖
🔗Available Open Access @JRheumatology!
Lupus Video Channel retweeted
CLICK ON LINK: about #SLE #lupus fatigue, treatments, mitochondrial dysfunction; lots of practical advice on fatigue and lupus treatments:
🔥why cell necrosis is BAD for lupus; we WANT more cellular apoptosis...
➡️ Interventions that can DECREASE cell necrosis and increase apoptosis!
🏃♀️See the NIH study that showed exercise improved mitochondrial function, lowered interferon gene signatures, and reduced fatigue!
💊NAC, MitoQ, metformin, HCQ, sirolimus, chloroquine, exercise = may help mitochondrial function, energy, and SLE disease activity
If you missed our free talk on #lupus #SLE fatigue and mitochondria, I share tons of practical advice. Learn about the most important treatment for lupus fatigue! RETWEET ; CLICK BELOW:
facebook.com/lupusla/videos/…
Lupus Video Channel retweeted
If you missed our free talk on #lupus #SLE fatigue and mitochondria, I share tons of practical advice. Learn about the most important treatment for lupus fatigue! RETWEET ; CLICK BELOW:
facebook.com/lupusla/videos/…
Lupus Video Channel retweeted
Join us in 1 hour! Go to Facebook Live with @LupusLA .. just tap the LIVE VIDEO on their Facebook page at facebook.com/lupusla at 1PM EST/10AM PST (SEP 30, 2023).
🎁Win a free copy of The Lupus Encyclopedia, ed 2
🎓Learn about fatigue and mitochondria in lupus
❣️Most importantly, learn what you can do to help yourself!
⁉️Then we will have a Q and A with me (Don Thomas, MD)
I look forward to seeing as many people there as possible!
Sign up on Facebook Live @LupusLA for tomorrow's talk on Lupus Fatigue and Mitochondria. Click on this link tomorrow (SAT, SEP 30, 2023) tomorrow before 1PM EST and 10AM PST: facebook.com/lupusla
Learn about:
🔥 #Lupus fatigue
💊Treatments that increase energy in #SLE
🧪Mitochondria, powerhouse of the cell, do not work normally in SLE, why?, what does this do?
⚕️#1 treatment for lupus fatigue
🛠️Fix abnormal mitochondria in lupus
💻Show up at 1PM EST or 10 AM PST at Lupus LAs Facebook page
Lupus Video Channel retweeted
Sign up on Facebook Live @LupusLA for tomorrow's talk on Lupus Fatigue and Mitochondria. Click on this link tomorrow (SAT, SEP 30, 2023) tomorrow before 1PM EST and 10AM PST: facebook.com/lupusla
Learn about:
🔥 #Lupus fatigue
💊Treatments that increase energy in #SLE
🧪Mitochondria, powerhouse of the cell, do not work normally in SLE, why?, what does this do?
⚕️#1 treatment for lupus fatigue
🛠️Fix abnormal mitochondria in lupus
💻Show up at 1PM EST or 10 AM PST at Lupus LAs Facebook page
Lupus Video Channel retweeted
It's true: lupus brings tough days where exercise feels impossible due to pain & fatigue.
Yet, even on challenging days, we can adapt & find ways to move.
Every step forward is a victory.
Let's show how we can #KickLupus despite the obstacles! Share your experience by📝 📷 📹!
When you have congested my knee, I will have to do short walks and light exercises for two weeks. Never give up doing exercises. #kicklupus #LupusEurope #exercises #exerciseForHealth
Lupus Video Channel retweeted
Lupus impacts younger ages in ways that will look different as opposed to people who are diagnosed later in life. In our recent podcast episode of The Expert Series, pediatric rheumatologist Dr. Tamar Rubinstein discusses how lupus affects teenagers, how they can cope & more.
Lupus Video Channel retweeted
Cognitive dysfunction is a common problem in #SLE #lupus #Sjogrens and other AI disorders. This study notes some risk factors for this problem. Fortunately, improvements occurred. This has been seen in previous studies as well
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